{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2026,9,30]],"date-time":"2026-09-30T03:58:19Z","timestamp":1790740699084,"version":"4.1.0"},"reference-count":41,"publisher":"SAGE Publications","issue":"4","license":[{"start":{"date-parts":[[2025,1,17]],"date-time":"2025-01-17T00:00:00Z","timestamp":1737072000000},"content-version":"vor","delay-in-days":0,"URL":"https:\/\/creativecommons.org\/licenses\/by\/4.0\/"},{"start":{"date-parts":[[2025,1,17]],"date-time":"2025-01-17T00:00:00Z","timestamp":1737072000000},"content-version":"tdm","delay-in-days":0,"URL":"https:\/\/journals.sagepub.com\/page\/policies\/text-and-data-mining-license"}],"funder":[{"name":"Bristol and Weston Hospitals Charity and University Hospitals of Bristol & Weston","award":["2021-Spr-01"],"award-info":[{"award-number":["2021-Spr-01"]}]}],"content-domain":{"domain":["journals.sagepub.com"],"crossmark-restriction":true},"short-container-title":["The Cleft Palate Craniofacial Journal"],"published-print":{"date-parts":[[2026,4]]},"abstract":"<jats:sec>\n                    <jats:title>Objective<\/jats:title>\n                    <jats:p>The aim of this study was to understand the needs of young people, aged 16 to 20 years, born with cleft lip and\/or palate (CL\/P) approaching end of routine care, in the United Kingdom (UK).<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Design<\/jats:title>\n                    <jats:p>Nominal group technique was used during 2 online focus groups to identify priorities for cleft care at transition to adult care. Focus group discussions were recorded, transcribed, and analyzed using reflexive thematic analysis.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Participants<\/jats:title>\n                    <jats:p>Ten young people born with CL\/P, 8 aged 18 to 20 years and 2 aged 16 to 17 years were recruited via the UK-based cleft charity, the Cleft Lip and Palate Association (CLAPA).<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Results<\/jats:title>\n                    <jats:p>Three themes were identified from the analysis: Theme 1\u2014Psychological well-being is not a constant. Theme 2\u2014Asking and listening\u2014the cleft clinic appointment. Theme 3\u2014Approaching end of routine care and re-accessing cleft services.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Conclusions<\/jats:title>\n                    <jats:p>Findings suggest that young people have ongoing needs in older adolescence. Psychological well-being, taking control of their own treatment and re-accessing the cleft team were highlighted as particular issues. Whilst further research with a larger and more representative sample is needed, these results support the need for continued access to and provision from the cleft team at this age.<\/jats:p>\n                  <\/jats:sec>","DOI":"10.1177\/10556656241312494","type":"journal-article","created":{"date-parts":[[2025,1,17]],"date-time":"2025-01-17T10:26:45Z","timestamp":1737109605000},"page":"654-663","update-policy":"https:\/\/doi.org\/10.1177\/sage-journals-update-policy","source":"Crossref","is-referenced-by-count":7,"title":["Exploring the Needs of Young People Born With Cleft Lip and\/or Palate Approaching End of Routine Care, in the UK"],"prefix":"10.1177","volume":"63","author":[{"ORCID":"https:\/\/orcid.org\/0009-0004-5814-9008","authenticated-orcid":false,"given":"Julie","family":"Davies","sequence":"first","affiliation":[{"name":"Bristol Dental School"},{"name":"North West North Wales and Isle of Man Cleft Network, Manchester, UK"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"ORCID":"https:\/\/orcid.org\/0009-0002-3727-5289","authenticated-orcid":false,"given":"Elaine","family":"Davidson","sequence":"additional","affiliation":[{"name":"Bristol Dental School"},{"name":"Cambridge University Hospitals NHS Foundation Trust"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"ORCID":"https:\/\/orcid.org\/0000-0002-5870-2094","authenticated-orcid":false,"given":"Sam","family":"Harding","sequence":"additional","affiliation":[{"name":"Bristol Dental School"},{"name":"North Bristol NHS Trust"},{"name":"Cardiff Metropolitan University"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"ORCID":"https:\/\/orcid.org\/0000-0002-1575-453X","authenticated-orcid":false,"given":"Yvonne","family":"Wren","sequence":"additional","affiliation":[{"name":"Bristol Dental School"},{"name":"North Bristol NHS Trust"},{"name":"Cardiff Metropolitan University"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Lucy","family":"Southby","sequence":"additional","affiliation":[{"name":"Bristol Dental School"},{"name":"North Bristol NHS Trust"},{"name":"Cardiff Metropolitan University"}],"role":[{"vocabulary":"crossref","role":"author"}]}],"member":"179","published-online":{"date-parts":[[2025,1,17]]},"reference":[{"key":"e_1_3_3_2_2","unstructured":"Cleft Registry and Audit Network (CRANE) Database 2020 Annual Report. 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