{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2026,6,3]],"date-time":"2026-06-03T19:28:01Z","timestamp":1780514881217,"version":"3.54.1"},"reference-count":64,"publisher":"SAGE Publications","issue":"4","license":[{"start":{"date-parts":[[2025,1,28]],"date-time":"2025-01-28T00:00:00Z","timestamp":1738022400000},"content-version":"vor","delay-in-days":0,"URL":"https:\/\/creativecommons.org\/licenses\/by-nc\/4.0\/"},{"start":{"date-parts":[[2025,1,28]],"date-time":"2025-01-28T00:00:00Z","timestamp":1738022400000},"content-version":"tdm","delay-in-days":0,"URL":"https:\/\/journals.sagepub.com\/page\/policies\/text-and-data-mining-license"}],"content-domain":{"domain":["journals.sagepub.com"],"crossmark-restriction":true},"short-container-title":["The Cleft Palate Craniofacial Journal"],"published-print":{"date-parts":[[2026,4]]},"abstract":"<jats:p>In 2012, the James Lind Alliance (JLA) worked with individuals with cleft lip and\/or palate (CL\/P), their families and clinicians to identify priority areas for future research. This article reviews progress conducted in the United Kingdom in the 3 JLA priorities most closely related to Clinical Psychology. It then builds upon the original priorities to identify 4 future directions, based on contemporary literature and in-depth discussions between clinical and research experts. Finally, recommendations for next steps toward meeting these future directions are outlined, including consistent outcome measurement, engaging diverse groups of people with CL\/P and embedding the principles of codesign.<\/jats:p>","DOI":"10.1177\/10556656251315659","type":"journal-article","created":{"date-parts":[[2025,1,29]],"date-time":"2025-01-29T13:36:11Z","timestamp":1738157771000},"page":"908-914","update-policy":"https:\/\/doi.org\/10.1177\/sage-journals-update-policy","source":"Crossref","is-referenced-by-count":3,"title":["Cleft Lip and Palate Research in the United Kingdom: Advances in Clinical Psychological Knowledge and Future Directions"],"prefix":"10.1177","volume":"63","author":[{"ORCID":"https:\/\/orcid.org\/0000-0003-4400-0320","authenticated-orcid":false,"given":"Matthew","family":"Hotton","sequence":"first","affiliation":[{"name":"University of Oxford"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"ORCID":"https:\/\/orcid.org\/0000-0003-0205-6596","authenticated-orcid":false,"given":"Laura","family":"Shepherd","sequence":"additional","affiliation":[{"name":"Nottingham University Hospitals NHS Trust"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"ORCID":"https:\/\/orcid.org\/0000-0002-1285-691X","authenticated-orcid":false,"given":"Nicola M.","family":"Stock","sequence":"additional","affiliation":[{"name":"Centre for Appearance Research, University of West of England, Bristol, United Kingdom of Great Britain and Northern Ireland"}],"role":[{"vocabulary":"crossref","role":"author"}]}],"member":"179","published-online":{"date-parts":[[2025,1,28]]},"reference":[{"key":"e_1_3_3_2_2","doi-asserted-by":"publisher","DOI":"10.1038\/s41415-023-5998-z"},{"key":"e_1_3_3_3_2","doi-asserted-by":"publisher","DOI":"10.1016\/j.ijporl.2012.11.035"},{"key":"e_1_3_3_4_2","doi-asserted-by":"publisher","DOI":"10.1597\/13-276"},{"key":"e_1_3_3_5_2","doi-asserted-by":"publisher","DOI":"10.1016\/j.bodyim.2007.04.005"},{"key":"e_1_3_3_6_2","doi-asserted-by":"publisher","DOI":"10.1016\/j.bodyim.2013.07.005"},{"key":"e_1_3_3_7_2","doi-asserted-by":"publisher","DOI":"10.1093\/jpepsy\/jsv048"},{"key":"e_1_3_3_8_2","doi-asserted-by":"publisher","DOI":"10.1093\/jpepsy\/jsad080"},{"key":"e_1_3_3_9_2","doi-asserted-by":"publisher","DOI":"10.1111\/cch.12805"},{"key":"e_1_3_3_10_2","doi-asserted-by":"publisher","DOI":"10.1177\/2055102915619092"},{"key":"e_1_3_3_11_2","doi-asserted-by":"publisher","DOI":"10.2196\/14776"},{"key":"e_1_3_3_12_2","doi-asserted-by":"publisher","DOI":"10.1111\/sjop.12885"},{"key":"e_1_3_3_13_2","doi-asserted-by":"publisher","DOI":"10.1016\/j.bodyim.2022.03.003"},{"key":"e_1_3_3_14_2","doi-asserted-by":"publisher","DOI":"10.1016\/S1995-7645(13)60016-4"},{"key":"e_1_3_3_15_2","doi-asserted-by":"publisher","DOI":"10.1597\/10-222"},{"key":"e_1_3_3_16_2","doi-asserted-by":"publisher","DOI":"10.1177\/10556656221119684"},{"key":"e_1_3_3_17_2","doi-asserted-by":"publisher","DOI":"10.1177\/1055665620921669"},{"key":"e_1_3_3_18_2","doi-asserted-by":"publisher","DOI":"10.5665\/sleep.3660"},{"key":"e_1_3_3_19_2","doi-asserted-by":"publisher","DOI":"10.1597\/14-242"},{"key":"e_1_3_3_20_2","doi-asserted-by":"publisher","DOI":"10.1037\/neu0000024"},{"key":"e_1_3_3_21_2","doi-asserted-by":"publisher","DOI":"10.1111\/1460-6984.12127"},{"key":"e_1_3_3_22_2","doi-asserted-by":"publisher","DOI":"10.1542\/peds.2013-3072"},{"key":"e_1_3_3_23_2","doi-asserted-by":"publisher","DOI":"10.1597\/13-293"},{"key":"e_1_3_3_24_2","doi-asserted-by":"publisher","DOI":"10.1177\/1055665620959989"},{"key":"e_1_3_3_25_2","doi-asserted-by":"publisher","DOI":"10.1136\/archdischild-2023-325310"},{"key":"e_1_3_3_26_2","doi-asserted-by":"publisher","DOI":"10.1159\/000365389"},{"key":"e_1_3_3_27_2","doi-asserted-by":"publisher","DOI":"10.1597\/14-062"},{"key":"e_1_3_3_28_2","doi-asserted-by":"publisher","DOI":"10.1597\/12-328"},{"key":"e_1_3_3_29_2","doi-asserted-by":"publisher","DOI":"10.1136\/archdischild-2013-305390"},{"key":"e_1_3_3_30_2","doi-asserted-by":"publisher","DOI":"10.1597\/14-063"},{"key":"e_1_3_3_31_2","doi-asserted-by":"publisher","DOI":"10.1597\/14-178"},{"key":"e_1_3_3_32_2","doi-asserted-by":"publisher","DOI":"10.1177\/1055665619896681"},{"key":"e_1_3_3_33_2","doi-asserted-by":"publisher","DOI":"10.1177\/1055665620987109"},{"key":"e_1_3_3_34_2","doi-asserted-by":"publisher","DOI":"10.1177\/1055665620968342"},{"key":"e_1_3_3_35_2","doi-asserted-by":"publisher","DOI":"10.1597\/12-255"},{"key":"e_1_3_3_36_2","doi-asserted-by":"publisher","DOI":"10.1597\/13-314"},{"key":"e_1_3_3_37_2","doi-asserted-by":"publisher","DOI":"10.1177\/1055665620944758"},{"key":"e_1_3_3_38_2","doi-asserted-by":"publisher","DOI":"10.1093\/jpepsy\/jsr089"},{"key":"e_1_3_3_39_2","doi-asserted-by":"publisher","DOI":"10.1002\/imhj.21696"},{"key":"e_1_3_3_40_2","doi-asserted-by":"publisher","DOI":"10.1597\/12-094.1"},{"key":"e_1_3_3_41_2","doi-asserted-by":"publisher","DOI":"10.1111\/jspn.12157"},{"key":"e_1_3_3_42_2","doi-asserted-by":"publisher","DOI":"10.1177\/1367493512473853"},{"key":"e_1_3_3_43_2","unstructured":"NHS. NHS Standard Contract for Cleft Lip and\/or palate services including non-cleft velopharyngeal dysfunction (VPD)(All Ages): Schedule 2\u2013The Services A. Service Specification D. 2013."},{"key":"e_1_3_3_44_2","doi-asserted-by":"publisher","DOI":"10.1038\/s41415-023-5952-0"},{"key":"e_1_3_3_45_2","doi-asserted-by":"publisher","DOI":"10.1597\/15-071"},{"key":"e_1_3_3_46_2","doi-asserted-by":"publisher","DOI":"10.1177\/1055665619898596"},{"key":"e_1_3_3_47_2","doi-asserted-by":"publisher","DOI":"10.1177\/1055665619862457"},{"key":"e_1_3_3_48_2","doi-asserted-by":"publisher","DOI":"10.1177\/1049732311421178"},{"key":"e_1_3_3_49_2","unstructured":"Stock N Blaso D Hotton M. Caring for a Child with a Cleft Lip and\/or Palate: A Narrative Review. Cleft Palate Craniofac J. In Press."},{"key":"e_1_3_3_50_2","doi-asserted-by":"publisher","DOI":"10.1111\/cch.12813"},{"key":"e_1_3_3_51_2","doi-asserted-by":"publisher","DOI":"10.1177\/10556656211028494"},{"key":"e_1_3_3_52_2","doi-asserted-by":"publisher","DOI":"10.12968\/bjhc.2021.0051"},{"key":"e_1_3_3_53_2","doi-asserted-by":"publisher","DOI":"10.1016\/j.jcbs.2016.03.001"},{"key":"e_1_3_3_54_2","doi-asserted-by":"publisher","DOI":"10.1177\/1055665619888318"},{"key":"e_1_3_3_55_2","doi-asserted-by":"publisher","DOI":"10.1177\/10556656211055006"},{"key":"e_1_3_3_56_2","first-page":"105566562412360","article-title":"\u201cIt's on your shoulders now\u201d transitioning from child-to-adult UK cleft lip\/palate services: an exploration of young adults\u2019 narratives","author":"McWilliams D","year":"2024","unstructured":"McWilliams D, Thornton M, Hotton M, Swan MC, Marie Stock N. \u201cIt's on your shoulders now\u201d transitioning from child-to-adult UK cleft lip\/palate services: an exploration of young adults\u2019 narratives. Cleft Palate Craniofac J. 2024:10556656241236006.","journal-title":"Cleft Palate Craniofac J"},{"key":"e_1_3_3_57_2","doi-asserted-by":"publisher","DOI":"10.1080\/13548506.2022.2124291"},{"key":"e_1_3_3_58_2","volume-title":"Goals and Goal Based Outcomes (GBOs)","author":"Law D","year":"2013","unstructured":"Law D, Jacob J. Goals and Goal Based Outcomes (GBOs). CAMHS Press; 2013."},{"key":"e_1_3_3_59_2","doi-asserted-by":"publisher","DOI":"10.1177\/1359104510391859"},{"key":"e_1_3_3_60_2","doi-asserted-by":"publisher","DOI":"10.1177\/1055665619862727"},{"key":"e_1_3_3_61_2","doi-asserted-by":"publisher","DOI":"10.1177\/10556656211025415"},{"key":"e_1_3_3_62_2","doi-asserted-by":"publisher","DOI":"10.1177\/10556656231157449"},{"key":"e_1_3_3_63_2","doi-asserted-by":"publisher","DOI":"10.1177\/1055665617721925"},{"key":"e_1_3_3_64_2","doi-asserted-by":"publisher","DOI":"10.1597\/12-326"},{"key":"e_1_3_3_65_2","doi-asserted-by":"publisher","DOI":"10.1016\/j.copsyc.2023.101579"}],"container-title":["The Cleft Palate Craniofacial Journal"],"original-title":[],"language":"en","link":[{"URL":"https:\/\/journals.sagepub.com\/doi\/pdf\/10.1177\/10556656251315659","content-type":"application\/pdf","content-version":"vor","intended-application":"text-mining"},{"URL":"https:\/\/journals.sagepub.com\/doi\/full-xml\/10.1177\/10556656251315659","content-type":"application\/xml","content-version":"vor","intended-application":"text-mining"},{"URL":"https:\/\/journals.sagepub.com\/doi\/pdf\/10.1177\/10556656251315659","content-type":"unspecified","content-version":"vor","intended-application":"similarity-checking"}],"deposited":{"date-parts":[[2026,4,28]],"date-time":"2026-04-28T16:22:24Z","timestamp":1777393344000},"score":1,"resource":{"primary":{"URL":"https:\/\/journals.sagepub.com\/doi\/10.1177\/10556656251315659"}},"subtitle":[],"short-title":[],"issued":{"date-parts":[[2025,1,28]]},"references-count":64,"journal-issue":{"issue":"4","published-print":{"date-parts":[[2026,4]]}},"alternative-id":["10.1177\/10556656251315659"],"URL":"https:\/\/doi.org\/10.1177\/10556656251315659","relation":{},"ISSN":["1055-6656","1545-1569"],"issn-type":[{"value":"1055-6656","type":"print"},{"value":"1545-1569","type":"electronic"}],"subject":[],"published":{"date-parts":[[2025,1,28]]}}}