{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2026,8,20]],"date-time":"2026-08-20T16:25:40Z","timestamp":1787243140557,"version":"build-2736575974"},"reference-count":26,"publisher":"SAGE Publications","issue":"6","license":[{"start":{"date-parts":[[2025,5,7]],"date-time":"2025-05-07T00:00:00Z","timestamp":1746576000000},"content-version":"vor","delay-in-days":0,"URL":"https:\/\/creativecommons.org\/licenses\/by-nc\/4.0\/"},{"start":{"date-parts":[[2025,5,7]],"date-time":"2025-05-07T00:00:00Z","timestamp":1746576000000},"content-version":"tdm","delay-in-days":0,"URL":"https:\/\/journals.sagepub.com\/page\/policies\/text-and-data-mining-license"}],"funder":[{"name":"Craniofacial Australia"}],"content-domain":{"domain":["journals.sagepub.com"],"crossmark-restriction":true},"short-container-title":["The Cleft Palate Craniofacial Journal"],"published-print":{"date-parts":[[2026,6]]},"abstract":"<jats:sec>\n                    <jats:title>Objective<\/jats:title>\n                    <jats:p>Families impacted by a craniofacial condition have reported mixed experiences of psychosocial support; however, the experience of Australian parents is not yet known. The current study therefore explores the psychosocial experiences, and needs, of Australian parents whose child has been diagnosed with craniosynostosis.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Design<\/jats:title>\n                    <jats:p>Qualitative data were obtained from 21 online narrative interviews with parents of children with non-syndromic and syndromic craniosynostosis. Interviews were transcribed and reflexive thematic analysis was used to generate themes.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Results<\/jats:title>\n                    <jats:p>Four themes were developed: (1) communication and trust in clinical care; (2) challenges in health system processes and communication; (3) challenges and strengths of family support networks; and (4) absence of psychological support in the clinical journey.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Conclusions<\/jats:title>\n                    <jats:p>There is a lack of psychosocial support provided to families living with craniosynostosis in Australia. Parents have requested that psychological assistance and related supports be readily provided as an aspect of standard, family-centered care.<\/jats:p>\n                  <\/jats:sec>","DOI":"10.1177\/10556656251337824","type":"journal-article","created":{"date-parts":[[2025,5,7]],"date-time":"2025-05-07T03:26:13Z","timestamp":1746588373000},"page":"1421-1430","update-policy":"https:\/\/doi.org\/10.1177\/sage-journals-update-policy","source":"Crossref","is-referenced-by-count":1,"title":["Psychosocial Support for Australian Families Impacted by Craniosynostosis: A Qualitative Study"],"prefix":"10.1177","volume":"63","author":[{"ORCID":"https:\/\/orcid.org\/0000-0002-9720-7117","authenticated-orcid":false,"given":"Amanda J.","family":"Osborn","sequence":"first","affiliation":[{"name":"University of Adelaide"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"ORCID":"https:\/\/orcid.org\/0000-0002-9547-9995","authenticated-orcid":false,"given":"Rachel M.","family":"Roberts","sequence":"additional","affiliation":[{"name":"University of Adelaide"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"ORCID":"https:\/\/orcid.org\/0000-0002-7799-8177","authenticated-orcid":false,"given":"Diana S.","family":"Dorstyn","sequence":"additional","affiliation":[{"name":"University of Adelaide"}],"role":[{"vocabulary":"crossref","role":"author"}]}],"member":"179","published-online":{"date-parts":[[2025,5,7]]},"reference":[{"key":"e_1_3_3_2_2","doi-asserted-by":"publisher","DOI":"10.3171\/2019.7.PEDS18585"},{"key":"e_1_3_3_3_2","doi-asserted-by":"publisher","DOI":"10.1097\/SCS.0000000000002016"},{"issue":"4","key":"e_1_3_3_4_2","article-title":"The clinical manifestations, molecular mechanisms and treatment of craniosynostosis","volume":"15","author":"Stanton E","year":"2022","unstructured":"Stanton E, Urata M, Chen JF, Chai Y. The clinical manifestations, molecular mechanisms and treatment of craniosynostosis. DMM Dis Mod Mech. 2022;15(4).","journal-title":"DMM Dis Mod Mech"},{"issue":"5","key":"e_1_3_3_5_2","article-title":"Gaining closure: Do cranial sutures fuse at reported age ranges?","volume":"11","author":"Soliman L","year":"2023","unstructured":"Soliman L, Ahn S, Hunt V, Sobti N, Woo AS. Gaining closure: Do cranial sutures fuse at reported age ranges? 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Parameters of Care for Evaluation and Treatment of Individuals with Cleft Lip\/Palate and\/or Other Craniofacial Differences. Cleft Palate-Craniofacial J: Off Public Am Cleft Palate-Craniofacial Assoc. 2024."},{"key":"e_1_3_3_19_2","doi-asserted-by":"publisher","DOI":"10.1093\/jpepsy\/jst049"},{"key":"e_1_3_3_20_2","doi-asserted-by":"publisher","DOI":"10.1037\/0012-1649.22.6.723"},{"key":"e_1_3_3_21_2","article-title":"Information needs of Australian families living with craniosynostosis: a qualitative study","author":"Osborn AJ","unstructured":"Osborn AJ, Roberts RM, Dorstyn DS. Information needs of Australian families living with craniosynostosis: a qualitative study. 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