{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2026,5,7]],"date-time":"2026-05-07T18:06:05Z","timestamp":1778177165995,"version":"3.51.4"},"reference-count":67,"publisher":"SAGE Publications","issue":"3","license":[{"start":{"date-parts":[[2025,12,2]],"date-time":"2025-12-02T00:00:00Z","timestamp":1764633600000},"content-version":"vor","delay-in-days":0,"URL":"https:\/\/creativecommons.org\/licenses\/by\/4.0\/"},{"start":{"date-parts":[[2025,12,2]],"date-time":"2025-12-02T00:00:00Z","timestamp":1764633600000},"content-version":"tdm","delay-in-days":0,"URL":"https:\/\/journals.sagepub.com\/page\/policies\/text-and-data-mining-license"}],"content-domain":{"domain":["journals.sagepub.com"],"crossmark-restriction":true},"short-container-title":["The Cleft Palate Craniofacial Journal"],"published-print":{"date-parts":[[2026,3]]},"abstract":"<jats:sec>\n                    <jats:title>Objective<\/jats:title>\n                    <jats:p>Evidence suggests that cleft lip and\/or palate can have significant psychosocial impacts on adults\u2019 lives beyond the end of the standard treatment pathway. Although some studies indicate gender differences, no research has specifically explored the experiences of women with cleft. This study aimed to explore the stories told by women about their adult experiences of cleft, for discussion informed by intersectionality theory.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Design<\/jats:title>\n                    <jats:p>Participants were interviewed using a narrative, photo elicitation approach. Each participant brought photos they felt represented their story to an unstructured interview, which was recorded and transcribed verbatim. Data were subject to narrative analysis.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Setting<\/jats:title>\n                    <jats:p>Interviews took place on Microsoft Teams video call, with photos shared on-screen throughout, and lasted an average of 94\u2005min.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Participants<\/jats:title>\n                    <jats:p>Fourteen women born with cleft aged 20 to 72 living in the United States or United Kingdom took part.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Results<\/jats:title>\n                    <jats:p>Six overarching discourses were identified and presented alongside 14 individual narrative synopses, depicting converging stories told by each participant throughout their interview. These were (1) enduring, (2) hiding, (3) striving, (4) healing, (5) reclaiming, and (6) reconciling.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Conclusions<\/jats:title>\n                    <jats:p>Viewing cleft through an intersectional lens offers important insights into the lived and living experiences of adults navigating treatment and the ongoing psychosocial impact of cleft. The findings suggest that expectations and pressures placed on women by society are compounded by, rather than exist in parallel with, the ongoing impact of cleft.<\/jats:p>\n                  <\/jats:sec>","DOI":"10.1177\/10556656251398119","type":"journal-article","created":{"date-parts":[[2025,12,2]],"date-time":"2025-12-02T19:32:08Z","timestamp":1764703928000},"page":"438-453","update-policy":"https:\/\/doi.org\/10.1177\/sage-journals-update-policy","source":"Crossref","is-referenced-by-count":1,"title":["\u201cWhat I Want You to Know\u201d: Adult Women's Stories of Cleft Lip and\/or Palate"],"prefix":"10.1177","volume":"63","author":[{"ORCID":"https:\/\/orcid.org\/0000-0002-1766-4175","authenticated-orcid":false,"given":"Danielle","family":"McWilliams","sequence":"first","affiliation":[{"name":"Canterbury Christ Church University"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Alan","family":"Hebben-Wadey","sequence":"additional","affiliation":[{"name":"Canterbury Christ Church University"}],"role":[{"role":"author","vocabulary":"crossref"}]}],"member":"179","published-online":{"date-parts":[[2025,12,2]]},"reference":[{"key":"e_1_3_3_2_2","unstructured":"NHS Commissioning Board. 2013. England Accessed October 12 2024. https:\/\/www.england.nhs.uk\/wp-content\/uploads\/2013\/06\/d07-cleft-lip.pdf."},{"key":"e_1_3_3_3_2","doi-asserted-by":"publisher","DOI":"10.1177\/1055665619896681"},{"key":"e_1_3_3_4_2","doi-asserted-by":"publisher","DOI":"10.1177\/1055665620922096"},{"key":"e_1_3_3_5_2","doi-asserted-by":"publisher","DOI":"10.1177\/1055665620968342"},{"key":"e_1_3_3_6_2","doi-asserted-by":"publisher","DOI":"10.1177\/10556656241236006"},{"key":"e_1_3_3_7_2","doi-asserted-by":"publisher","DOI":"10.1177\/1055665620987109"},{"key":"e_1_3_3_8_2","doi-asserted-by":"publisher","DOI":"10.1177\/1055665618770184"},{"key":"e_1_3_3_9_2","doi-asserted-by":"publisher","DOI":"10.1597\/14-178"},{"key":"e_1_3_3_10_2","doi-asserted-by":"publisher","DOI":"10.1597\/1545-1569_2001_038_0379_qoliaw_2.0.co_2"},{"key":"e_1_3_3_11_2","doi-asserted-by":"publisher","DOI":"10.1016\/j.ijom.2011.03.002"},{"key":"e_1_3_3_12_2","doi-asserted-by":"publisher","DOI":"10.1177\/10556656211028494"},{"key":"e_1_3_3_13_2","doi-asserted-by":"publisher","DOI":"10.1016\/j.bodyim.2018.08.002"},{"key":"e_1_3_3_14_2","doi-asserted-by":"publisher","DOI":"10.1111\/j.2044-8341.1997.tb01893.x"},{"key":"e_1_3_3_15_2","doi-asserted-by":"publisher","DOI":"10.1111\/j.1527-2001.2003.tb00820.x"},{"key":"e_1_3_3_16_2","doi-asserted-by":"publisher","DOI":"10.1597\/13-308"},{"key":"e_1_3_3_17_2","doi-asserted-by":"publisher","DOI":"10.1080\/13548506.2020.1800055"},{"key":"e_1_3_3_18_2","doi-asserted-by":"publisher","DOI":"10.1177\/10556656221121037"},{"issue":"1","key":"e_1_3_3_19_2","first-page":"139","article-title":"Demarginalizing the intersection of race and sex: a black feminist critique of antidiscrimination doctrine, feminist theory and antiracist politics","volume":"1989","author":"Crenshaw K","year":"1989","unstructured":"Crenshaw K. Demarginalizing the intersection of race and sex: a black feminist critique of antidiscrimination doctrine, feminist theory and antiracist politics. Univ Chic Legal Forum. 1989;1989(1):139-167. https:\/\/chicagounbound.uchicago.edu\/uclf\/vol1989\/iss1\/8","journal-title":"Univ Chic Legal Forum"},{"key":"e_1_3_3_20_2","doi-asserted-by":"publisher","DOI":"10.3389\/fresc.2023.1200386"},{"key":"e_1_3_3_21_2","doi-asserted-by":"publisher","DOI":"10.1080\/09518390802581927"},{"key":"e_1_3_3_22_2","doi-asserted-by":"publisher","DOI":"10.1111\/j.1467-9566.1997.tb00423.x"},{"key":"e_1_3_3_23_2","doi-asserted-by":"publisher","DOI":"10.1177\/10556656211025196"},{"key":"e_1_3_3_24_2","doi-asserted-by":"publisher","DOI":"10.1597\/03-142.1"},{"key":"e_1_3_3_25_2","doi-asserted-by":"publisher","DOI":"10.1080\/2000656x.2017.1348951"},{"key":"e_1_3_3_26_2","doi-asserted-by":"publisher","DOI":"10.19070\/2379-156x-1900029"},{"key":"e_1_3_3_27_2","doi-asserted-by":"publisher","DOI":"10.4135\/9781526402271"},{"key":"e_1_3_3_28_2","doi-asserted-by":"publisher","DOI":"10.1093\/ejo\/cjab039"},{"key":"e_1_3_3_29_2","doi-asserted-by":"publisher","DOI":"10.1177\/1609406917748215"},{"key":"e_1_3_3_30_2","doi-asserted-by":"publisher","DOI":"10.1080\/14780887.2017.1359352"},{"key":"e_1_3_3_31_2","doi-asserted-by":"publisher","DOI":"10.14507\/epaa.v23.2051"},{"key":"e_1_3_3_32_2","doi-asserted-by":"publisher","DOI":"10.1177\/160940691000900203"},{"key":"e_1_3_3_33_2","doi-asserted-by":"publisher","DOI":"10.1177\/27325016241229734"},{"key":"e_1_3_3_34_2","doi-asserted-by":"publisher","DOI":"10.1080\/01405110500038837"},{"key":"e_1_3_3_35_2","doi-asserted-by":"publisher","DOI":"10.1177\/0361684313483111"},{"key":"e_1_3_3_36_2","doi-asserted-by":"publisher","DOI":"10.5195\/jffp.1995.375"},{"key":"e_1_3_3_37_2","doi-asserted-by":"publisher","DOI":"10.1186\/s12961-018-0282-4"},{"key":"e_1_3_3_38_2","doi-asserted-by":"publisher","DOI":"10.1177\/10556656241283195"},{"key":"e_1_3_3_39_2","unstructured":"CLAPA. Cleft lip and palate association UK. CLAPA. Published 2025. Accessed August 9 2025. https:\/\/www.clapa.com\/"},{"key":"e_1_3_3_40_2","unstructured":"Face Equality International. Face equality international. Published 2018. Accessed August 9 2025. https:\/\/faceequalityinternational.org\/"},{"key":"e_1_3_3_41_2","doi-asserted-by":"publisher","DOI":"10.4135\/9781849209731.n4"},{"key":"e_1_3_3_42_2","volume-title":"Narrative Analysis","author":"Riessman CK.","year":"1993","unstructured":"Riessman CK. Narrative Analysis. Vol 30. CA: Sage Publications; 1993."},{"key":"e_1_3_3_43_2","doi-asserted-by":"publisher","DOI":"10.7748\/nr.2018.e1578"},{"key":"e_1_3_3_44_2","doi-asserted-by":"publisher","DOI":"10.4135\/9781526402271.n2"},{"key":"e_1_3_3_45_2","doi-asserted-by":"publisher","DOI":"10.1177\/1055665619843410"},{"key":"e_1_3_3_46_2","doi-asserted-by":"publisher","DOI":"10.1080\/08870446.2016.1143944"},{"key":"e_1_3_3_47_2","volume-title":"Identity and the Life Cycle","author":"Erikson EH","year":"1959","unstructured":"Erikson EH. Identity and the Life Cycle. New York: Norton; 1959."},{"key":"e_1_3_3_48_2","doi-asserted-by":"publisher","DOI":"10.1037\/0021-9010.81.1.11"},{"key":"e_1_3_3_49_2","doi-asserted-by":"publisher","DOI":"10.2307\/2091961"},{"key":"e_1_3_3_50_2","doi-asserted-by":"publisher","DOI":"10.1037\/h0021188"},{"key":"e_1_3_3_51_2","doi-asserted-by":"publisher","DOI":"10.1002\/j.2164-4918.1979.tb05406.x"},{"key":"e_1_3_3_52_2","doi-asserted-by":"publisher","DOI":"10.1177\/0265407584013007"},{"key":"e_1_3_3_53_2","doi-asserted-by":"publisher","DOI":"10.1521\/soco.2006.24.2.187"},{"key":"e_1_3_3_54_2","doi-asserted-by":"publisher","DOI":"10.3389\/fpsyg.2015.01124"},{"key":"e_1_3_3_55_2","doi-asserted-by":"publisher","DOI":"10.1017\/iop.2023.87"},{"key":"e_1_3_3_56_2","doi-asserted-by":"publisher","DOI":"10.1023\/a:1024570814293"},{"key":"e_1_3_3_57_2","doi-asserted-by":"publisher","DOI":"10.1371\/journal.pone.0025897"},{"key":"e_1_3_3_58_2","unstructured":"Face Equality International. About FEI\u2014Face equality international. Face Equality International. Published January 21 2025. Accessed August 9 2025. https:\/\/faceequalityinternational.org\/about-fei\/"},{"key":"e_1_3_3_59_2","doi-asserted-by":"publisher","DOI":"10.1080\/09687599.2013.818773"},{"key":"e_1_3_3_60_2","doi-asserted-by":"publisher","DOI":"10.4135\/9781849209489.n3"},{"key":"e_1_3_3_61_2","doi-asserted-by":"publisher","DOI":"10.4135\/9781526402271.n3"},{"key":"e_1_3_3_62_2","doi-asserted-by":"publisher","DOI":"10.1177\/10556656251315659"},{"key":"e_1_3_3_63_2","doi-asserted-by":"publisher","DOI":"10.1177\/0022167818793289"},{"key":"e_1_3_3_64_2","doi-asserted-by":"publisher","DOI":"10.1017\/bec.2018.16"},{"key":"e_1_3_3_65_2","unstructured":"Demir S. An interpretative phenomenological analysis of shame in adult women and self-compassion focused group intervention with schema therapy techniques [dissertation]. [Middle East Technical University]; 2014. https:\/\/www.proquest.com\/openview\/5cbe053acabc4ef57f04ba99b6eb3c2d\/1"},{"key":"e_1_3_3_66_2","doi-asserted-by":"publisher","DOI":"10.1038\/s41415-023-5952-0"},{"key":"e_1_3_3_67_2","doi-asserted-by":"publisher","DOI":"10.1155\/2018\/6358624"},{"key":"e_1_3_3_68_2","doi-asserted-by":"publisher","DOI":"10.1177\/1357034(08093572"}],"container-title":["The Cleft Palate Craniofacial Journal"],"original-title":[],"language":"en","link":[{"URL":"https:\/\/journals.sagepub.com\/doi\/pdf\/10.1177\/10556656251398119","content-type":"application\/pdf","content-version":"vor","intended-application":"text-mining"},{"URL":"https:\/\/journals.sagepub.com\/doi\/full-xml\/10.1177\/10556656251398119","content-type":"application\/xml","content-version":"vor","intended-application":"text-mining"},{"URL":"https:\/\/journals.sagepub.com\/doi\/pdf\/10.1177\/10556656251398119","content-type":"unspecified","content-version":"vor","intended-application":"similarity-checking"}],"deposited":{"date-parts":[[2026,4,28]],"date-time":"2026-04-28T16:22:10Z","timestamp":1777393330000},"score":1,"resource":{"primary":{"URL":"https:\/\/journals.sagepub.com\/doi\/10.1177\/10556656251398119"}},"subtitle":[],"short-title":[],"issued":{"date-parts":[[2025,12,2]]},"references-count":67,"journal-issue":{"issue":"3","published-print":{"date-parts":[[2026,3]]}},"alternative-id":["10.1177\/10556656251398119"],"URL":"https:\/\/doi.org\/10.1177\/10556656251398119","relation":{},"ISSN":["1055-6656","1545-1569"],"issn-type":[{"value":"1055-6656","type":"print"},{"value":"1545-1569","type":"electronic"}],"subject":[],"published":{"date-parts":[[2025,12,2]]}}}