{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2026,11,11]],"date-time":"2026-11-11T21:23:47Z","timestamp":1794432227454,"version":"4.9.1"},"reference-count":48,"publisher":"SAGE Publications","issue":"11","license":[{"start":{"date-parts":[[2026,4,15]],"date-time":"2026-04-15T00:00:00Z","timestamp":1776211200000},"content-version":"vor","delay-in-days":0,"URL":"https:\/\/creativecommons.org\/licenses\/by\/4.0\/"},{"start":{"date-parts":[[2026,4,15]],"date-time":"2026-04-15T00:00:00Z","timestamp":1776211200000},"content-version":"tdm","delay-in-days":0,"URL":"https:\/\/journals.sagepub.com\/page\/policies\/text-and-data-mining-license"}],"funder":[{"name":"Child Well-being Research Institute","award":["420SG242KA"],"award-info":[{"award-number":["420SG242KA"]}]}],"content-domain":{"domain":["journals.sagepub.com"],"crossmark-restriction":true},"short-container-title":["The Cleft Palate Craniofacial Journal"],"published-print":{"date-parts":[[2026,11]]},"abstract":"<jats:sec>\n                    <jats:title>Objective<\/jats:title>\n                    <jats:p>Standardized patient-reported outcome measures (PROMs) are rarely used in cleft lip and palate (CL\/P) care within New Zealand (NZ). This pilot study sought to obtain a baseline of patient-reported outcomes in NZ and evaluate clinicians\u2019 experiences of implementing PROMs into CL\/P services.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Design<\/jats:title>\n                    <jats:p>\n                      A mixed methods cross-sectional design using CLEFT-Q scales. Data were compared to published CL\/P CLEFT-Q norms using\n                      <jats:italic toggle=\"yes\">t<\/jats:italic>\n                      -tests, and within-group differences were investigated. Qualitative interviews were analyzed using codebook thematic analysis.\n                    <\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Setting<\/jats:title>\n                    <jats:p>Five CL\/P teams in Aotearoa New Zealand.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Participants<\/jats:title>\n                    <jats:p>\n                      Patients aged 12+ years (\n                      <jats:italic toggle=\"yes\">n<\/jats:italic>\n                      \u2009=\u2009101) were recruited through the five Health NZ CL\/P teams between April 2023-March 2024. Five CL\/P team members responsible for recruitment participated in an interview at the conclusion of the trial.\n                    <\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Results<\/jats:title>\n                    <jats:p>Compared with normative data, patients reported more favorable outcomes on speech distress and school function, and poorer psychological function. Speech and social function scores were aligned with CL\/P norms. Patients aged 18+ reported the lowest psychological functioning and females reported the lowest social functioning. Clinicians recognized the value of PROMs, yet highlighted concerns about insufficient resourcing to administer, review, and provide follow-up.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Conclusions<\/jats:title>\n                    <jats:p>Psychological function is indicated as an area of concern, particularly for adults with CL\/P. Routine use of PROMs would evaluate change in measures of function over time and enhance patient-centered holistic care. Greater personnel and IT resourcing would facilitate routine implementation of PROMs in CL\/P teams.<\/jats:p>\n                  <\/jats:sec>","DOI":"10.1177\/10556656261431254","type":"journal-article","created":{"date-parts":[[2026,4,15]],"date-time":"2026-04-15T14:04:51Z","timestamp":1776261891000},"page":"3805-3816","update-policy":"https:\/\/doi.org\/10.1177\/sage-journals-update-policy","source":"Crossref","is-referenced-by-count":1,"title":["Piloting Patient Reported Outcome Measures in Cleft Lip and Palate Services in Aotearoa New Zealand"],"prefix":"10.1177","volume":"63","author":[{"ORCID":"https:\/\/orcid.org\/0000-0002-8105-3926","authenticated-orcid":false,"given":"Kenny","family":"Ardouin","sequence":"first","affiliation":[{"name":"University of Canterbury"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"ORCID":"https:\/\/orcid.org\/0000-0002-1285-691X","authenticated-orcid":false,"given":"Nicola","family":"Stock","sequence":"additional","affiliation":[{"name":"Centre for Appearance Research, University of the West of England, Bristol, UK"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"ORCID":"https:\/\/orcid.org\/0000-0002-7335-5465","authenticated-orcid":false,"given":"Tika","family":"Ormond","sequence":"additional","affiliation":[{"name":"University of Canterbury"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Phoebe","family":"Macrae","sequence":"additional","affiliation":[{"name":"University of Canterbury"}],"role":[{"vocabulary":"crossref","role":"author"}]}],"member":"179","published-online":{"date-parts":[[2026,4,15]]},"reference":[{"key":"e_1_3_3_2_2","unstructured":"Niehaus K. 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