{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2026,5,30]],"date-time":"2026-05-30T14:02:39Z","timestamp":1780149759739,"version":"3.54.0"},"reference-count":46,"publisher":"SAGE Publications","license":[{"start":{"date-parts":[[2026,5,27]],"date-time":"2026-05-27T00:00:00Z","timestamp":1779840000000},"content-version":"vor","delay-in-days":0,"URL":"https:\/\/creativecommons.org\/licenses\/by\/4.0\/"},{"start":{"date-parts":[[2026,5,27]],"date-time":"2026-05-27T00:00:00Z","timestamp":1779840000000},"content-version":"tdm","delay-in-days":0,"URL":"https:\/\/journals.sagepub.com\/page\/policies\/text-and-data-mining-license"}],"funder":[{"name":"Vaillant Fonds","award":["No grant number"],"award-info":[{"award-number":["No grant number"]}]}],"content-domain":{"domain":["journals.sagepub.com"],"crossmark-restriction":true},"short-container-title":["The Cleft Palate Craniofacial Journal"],"abstract":"<jats:sec>\n                    <jats:title>Objective<\/jats:title>\n                    <jats:p>Having a child with a cleft lip with or without palate (CL\u2009\u00b1\u2009P) can greatly impact parents\u2019 lives. Retrospective studies have shown that receiving a CL\u2009\u00b1\u2009P diagnosis is an emotional event, requiring considerable adjustment. However, there has been limited prospective research on how parents experience pregnancy when faced with a prenatal diagnosis of CL\u2009\u00b1\u2009P. This study aims to examine the experiences of parents during pregnancy, focusing on their concerns and perspectives regarding cleft care, pregnancy, childbirth, and upbringing.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Design<\/jats:title>\n                    <jats:p>Participants were interviewed between 24 to 39 weeks of gestational age using semi-structured interviews. Data were analyzed using inductive reflexive thematic analysis.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Setting<\/jats:title>\n                    <jats:p>Interviews took place through a videocall, a phone call or face-to-face, following participants\u2019 preferences. Interviews lasted an average of 33\u2005min.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Participants<\/jats:title>\n                    <jats:p>Eleven expectant mothers and 8 expectant fathers were recruited from the cleft team at a university medical center.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Results<\/jats:title>\n                    <jats:p>Four main themes were identified: \u201cSuspected diagnosis: An emotional rollercoaster,\u201d \u201cAfter diagnosis: So much information and healthcare professionals,\u201d \u201cNo carefree pregnancy,\u201d and \u201cWhat will the future bring?\u201d. Receiving a prenatal CL\u2009\u00b1\u2009P diagnosis was experienced as an emotional rollercoaster, accompanied by numerous uncertainties. Parents reported that the cleft care trajectory did not always optimally support them in emotionally processing the diagnosis.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Conclusions<\/jats:title>\n                    <jats:p>Results highlight a need for specialized cleft care tailored to parental needs and wishes. Specifically, empathetic reactions of healthcare providers are crucial, as well as an additional contact moment for parents before childbirth.<\/jats:p>\n                  <\/jats:sec>","DOI":"10.1177\/10556656261453764","type":"journal-article","created":{"date-parts":[[2026,5,28]],"date-time":"2026-05-28T01:42:31Z","timestamp":1779932551000},"update-policy":"https:\/\/doi.org\/10.1177\/sage-journals-update-policy","source":"Crossref","is-referenced-by-count":0,"title":["Experiences of Parents Expecting a Child with a Cleft: A Qualitative Interview Study into Healthcare Provision and Parental Concerns"],"prefix":"10.1177","author":[{"ORCID":"https:\/\/orcid.org\/0000-0002-0077-1441","authenticated-orcid":false,"given":"Mariska","family":"van Veen \u2013 van der Hoek","sequence":"first","affiliation":[{"name":"Erasmus MC"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"ORCID":"https:\/\/orcid.org\/0009-0000-1732-8406","authenticated-orcid":false,"given":"Rebecca","family":"Meuldijk","sequence":"additional","affiliation":[{"name":"Erasmus MC Sophia Children's Hospital"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"ORCID":"https:\/\/orcid.org\/0000-0002-7644-2548","authenticated-orcid":false,"given":"Jolanda","family":"Okkerse","sequence":"additional","affiliation":[{"name":"Erasmus MC Sophia Children's Hospital"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Attie","family":"Go","sequence":"additional","affiliation":[{"name":"Erasmus MC Sophia Children's Hospital"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Eppo","family":"Wolvius","sequence":"additional","affiliation":[{"name":"Erasmus MC"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"ORCID":"https:\/\/orcid.org\/0000-0001-8361-8604","authenticated-orcid":false,"given":"Marije","family":"Van Dalen","sequence":"additional","affiliation":[{"name":"Erasmus MC Sophia Children's Hospital"}],"role":[{"vocabulary":"crossref","role":"author"}]}],"member":"179","published-online":{"date-parts":[[2026,5,27]]},"reference":[{"key":"e_1_3_2_2_2","unstructured":"Schisis. 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