{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2026,6,4]],"date-time":"2026-06-04T08:11:07Z","timestamp":1780560667641,"version":"3.54.1"},"reference-count":27,"publisher":"SAGE Publications","license":[{"start":{"date-parts":[[2026,6,1]],"date-time":"2026-06-01T00:00:00Z","timestamp":1780272000000},"content-version":"tdm","delay-in-days":0,"URL":"https:\/\/journals.sagepub.com\/page\/policies\/text-and-data-mining-license"}],"content-domain":{"domain":["journals.sagepub.com"],"crossmark-restriction":true},"short-container-title":["The Cleft Palate Craniofacial Journal"],"abstract":"<jats:sec>\n                    <jats:title>Objective<\/jats:title>\n                    <jats:p>To explore patient-reported outcomes using CLEFT-Q at a pilot adult cleft lip and palate (CLP) audit clinic.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Design<\/jats:title>\n                    <jats:p>Cross-sectional study completed at two Dental Hospitals (Glasgow Dental Hospital and School and Dundee Dental Hospital and Research School) and coinciding with a National Cleft Surgical Service's pilot CLP audit clinic.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Participants<\/jats:title>\n                    <jats:p>Adults who had primary surgery for orofacial cleft (OFC) performed in National Health Service Greater Glasgow and Clyde Health Board between 1990 and 2005.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Main Outcome Measure<\/jats:title>\n                    <jats:p>Participants completed the validated CLEFT-Q scored 0\u2013100, with higher scores reflecting better outcomes. Cleft lip (CL) and CLP scores were compared with Mann-Whitney U tests.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Results<\/jats:title>\n                    <jats:p>The response rate was 33% with 21 participants (14 female, 7 male) and a mean age of 21.9\u2009\u00b1\u20093.2 years (range 17\u201331 years). The sample included adults born with unilateral cleft lip (CL; n\u202f=\u202f6), cleft palate (CP; n\u202f=\u202f2), unilateral cleft lip and palate (UCLP; n\u202f=\u202f8), and bilateral cleft lip and palate (BCLP; n\u202f=\u202f5). Across cleft types, CLEFT-Q scores ranged from 36.0\u202f\u00b1\u202f23.3 (Lips) to 93.0\u202f\u00b1\u202f22.6 (Speech Distress) for adults with CL; from 28.5\u202f\u00b1\u202f22.4 (Nostrils) to 75.4\u202f\u00b1\u202f21.0 (Speech Distress) for adults with UCLP; and from 31.8\u202f\u00b1\u202f26.5 (Nostrils) to 76.4\u202f\u00b1\u202f18.7 (School) for adults with BCLP. There were no significant differences between adults with CL and those with CLP across the 12 CLEFT-Q scales.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Conclusion<\/jats:title>\n                    <jats:p>In this limited sample, scales of CLEFT-Q demonstrated a range of outcomes. The results provide baseline data for future research. Further work is needed to address residual concerns for adults with OFC.<\/jats:p>\n                  <\/jats:sec>","DOI":"10.1177\/10556656261455716","type":"journal-article","created":{"date-parts":[[2026,6,1]],"date-time":"2026-06-01T09:03:41Z","timestamp":1780304621000},"update-policy":"https:\/\/doi.org\/10.1177\/sage-journals-update-policy","source":"Crossref","is-referenced-by-count":0,"title":["Patient-Reported Outcomes Using the CLEFT-Q: Results from a Pilot Study of an Adult Cleft Lip and Palate Clinic"],"prefix":"10.1177","author":[{"ORCID":"https:\/\/orcid.org\/0000-0001-9756-8863","authenticated-orcid":false,"given":"Jill Anne","family":"O'Driscoll","sequence":"first","affiliation":[{"name":"Dundee Dental Hospital and Research School"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"ORCID":"https:\/\/orcid.org\/0000-0002-7224-4739","authenticated-orcid":false,"given":"Grant","family":"Mcintyre","sequence":"additional","affiliation":[{"name":"Dundee Dental Hospital and Research School"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Peter","family":"Mossey","sequence":"additional","affiliation":[{"name":"Dundee Dental Hospital and Research School"}],"role":[{"vocabulary":"crossref","role":"author"}]}],"member":"179","published-online":{"date-parts":[[2026,6,1]]},"reference":[{"key":"e_1_3_3_2_2","doi-asserted-by":"publisher","DOI":"10.1097\/PRS.0000000000008334"},{"key":"e_1_3_3_3_2","unstructured":"National Health Service. Treatment\u2014cleft lip and palate. 2023. Accessed July 23 2023. https:\/\/www.nhs.uk\/conditions\/cleft-lip-and-palate\/treatment\/."},{"key":"e_1_3_3_4_2","doi-asserted-by":"publisher","DOI":"10.1038\/s41415-026-9768-6"},{"key":"e_1_3_3_5_2","doi-asserted-by":"publisher","DOI":"10.1097\/SCS.0000000000009591"},{"key":"e_1_3_3_6_2","doi-asserted-by":"publisher","DOI":"10.3389\/fped.2025.1502877"},{"key":"e_1_3_3_7_2","doi-asserted-by":"publisher","DOI":"10.1038\/nrg2933"},{"key":"e_1_3_3_8_2","doi-asserted-by":"publisher","DOI":"10.1136\/bmj.38106.559120.7C"},{"key":"e_1_3_3_9_2","doi-asserted-by":"publisher","DOI":"10.1177\/1055665618766613"},{"key":"e_1_3_3_10_2","doi-asserted-by":"publisher","DOI":"10.1080\/08870446.2016.1143944"},{"key":"e_1_3_3_11_2","doi-asserted-by":"publisher","DOI":"10.1597\/14-242"},{"key":"e_1_3_3_12_2","doi-asserted-by":"publisher","DOI":"10.1080\/028443102753478327"},{"key":"e_1_3_3_13_2","doi-asserted-by":"publisher","DOI":"10.1597\/14-178"},{"key":"e_1_3_3_14_2","unstructured":"McMaster University. CLEFT-Q\u00a9 A user\u2019s guide for researchers and clinicians. 2021. Accessed June 11 2023. https:\/\/qportfolio.org\/wp-content\/uploads\/2022\/11\/CLEFT-Q-USERS-GUIDE.pdf."},{"key":"e_1_3_3_15_2","doi-asserted-by":"publisher","DOI":"10.1503\/cmaj.170289"},{"key":"e_1_3_3_16_2","unstructured":"IBM. IBM SPSS software. 2023. 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