{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2026,10,14]],"date-time":"2026-10-14T20:40:31Z","timestamp":1792010431981,"version":"4.4.0"},"reference-count":38,"publisher":"SAGE Publications","license":[{"start":{"date-parts":[[2026,6,1]],"date-time":"2026-06-01T00:00:00Z","timestamp":1780272000000},"content-version":"vor","delay-in-days":0,"URL":"https:\/\/creativecommons.org\/licenses\/by-nc\/4.0\/"},{"start":{"date-parts":[[2026,6,1]],"date-time":"2026-06-01T00:00:00Z","timestamp":1780272000000},"content-version":"tdm","delay-in-days":0,"URL":"https:\/\/journals.sagepub.com\/page\/policies\/text-and-data-mining-license"}],"funder":[{"name":"The Centre of Research Excellence in Targeted Approaches To Improve Cancer Services for Aboriginal and Torres Strait Islander Australians","award":["GNT1153027"],"award-info":[{"award-number":["GNT1153027"]}]},{"DOI":"10.13039\/501100000925","name":"National Health and Medical Research Council","doi-asserted-by":"publisher","award":["GNT2034453"],"award-info":[{"award-number":["GNT2034453"]}],"id":[{"id":"10.13039\/501100000925","id-type":"DOI","asserted-by":"publisher"}]},{"DOI":"10.13039\/501100000923","name":"Australian Research Council","doi-asserted-by":"publisher","award":["IN180100047"],"award-info":[{"award-number":["IN180100047"]}],"id":[{"id":"10.13039\/501100000923","id-type":"DOI","asserted-by":"publisher"}]}],"content-domain":{"domain":["journals.sagepub.com"],"crossmark-restriction":true},"short-container-title":["Cancer Control"],"published-print":{"date-parts":[[2026,6]]},"abstract":"<jats:sec>\n                    <jats:title>Introduction<\/jats:title>\n                    <jats:p>Informal carers provide essential support for people diagnosed with cancer, however, the demands of caregiving can negatively impact their psychological wellbeing. There is a need to examine psychological wellbeing among carers of First Nations cancer patients to understand the impacts of caregiving within cultural contexts. Therefore, this study aims to quantify carer psychological distress, burden, and quality of life (QoL) among carers of First Nations Australian cancer patients - key indicators of carer wellbeing that may have implications for both carers and patients.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Methods<\/jats:title>\n                    <jats:p>This prospective cross-sectional study recruited adult (\u226518 years) carers of First Nations Australians diagnosed with cancer across six Queensland hospitals (July 2021-December 2024). Of 221 eligible carers, 172 (78%) participated in the study. Logistic regression models assessed association between carer characteristics with high psychological distress (Distress Thermometer, score\u22654) and significant carer burden (six-item Zarit Burden Interview, score\u22656); linear models assessed associations with QoL (CarerQoL-7D).<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Results<\/jats:title>\n                    <jats:p>165 (96%) carers approached were included in the analysis, of which 67% (n=111) identified as First Nations. High distress was reported by 43% (95% CI:36%-51%), 44% reported significant carer burden (95%CI:37%-52%), and mean CarerQoL-7D score was 9.7 (95%CI:9.3-10.1). Only prevalence of high distress differed between First Nations and non-Indigenous carers. For all carers as well as First Nations carers, clinical diagnosis of anxiety and\/or depression was associated with high distress, significant carer burden and lower QoL.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Conclusion<\/jats:title>\n                    <jats:p>To our knowledge, this study is the first to quantify the psychological wellbeing of carers of First Nations cancer patients in Australia. We observed no associations typically expected for wellbeing and distress among carers, except for with clinical anxiety\/depression, suggesting that existing measures may not fully capture carer\u2019s experiences in this population. These findings highlight the need for culturally appropriate measures co-designed with Indigenous communities to better assess and support carer wellbeing.<\/jats:p>\n                  <\/jats:sec>","DOI":"10.1177\/10732748261458005","type":"journal-article","created":{"date-parts":[[2026,6,3]],"date-time":"2026-06-03T09:55:48Z","timestamp":1780480548000},"update-policy":"https:\/\/doi.org\/10.1177\/sage-journals-update-policy","source":"Crossref","is-referenced-by-count":1,"title":["Psychological Distress, Caregiver Burden and Quality of Life Among Informal Carers of First Nations Australians Diagnosed With Cancer: A Cross-Sectional Study"],"prefix":"10.1177","volume":"33","author":[{"ORCID":"https:\/\/orcid.org\/0000-0003-0629-1497","authenticated-orcid":false,"given":"Idin","family":"Panahi","sequence":"first","affiliation":[{"name":"The University of Queensland"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"ORCID":"https:\/\/orcid.org\/0000-0002-5801-2077","authenticated-orcid":false,"given":"Helena","family":"Romaniuk","sequence":"additional","affiliation":[{"name":"The University of Queensland"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"ORCID":"https:\/\/orcid.org\/0000-0002-0447-8664","authenticated-orcid":false,"given":"Shafkat","family":"Jahan","sequence":"additional","affiliation":[{"name":"The University of Queensland"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"ORCID":"https:\/\/orcid.org\/0009-0002-1056-4347","authenticated-orcid":false,"given":"Kenneth","family":"Carter","sequence":"additional","affiliation":[{"name":"The University of Queensland"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Jacinta","family":"Elston","sequence":"additional","affiliation":[{"name":"The University of Queensland"},{"name":"Monash University"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"ORCID":"https:\/\/orcid.org\/0000-0001-5065-5716","authenticated-orcid":false,"given":"Gail","family":"Garvey","sequence":"additional","affiliation":[{"name":"The University of Queensland"}],"role":[{"vocabulary":"crossref","role":"author"}]}],"member":"179","published-online":{"date-parts":[[2026,6,3]]},"reference":[{"key":"e_1_3_8_2_2","volume-title":"Informal carers. 2025","author":"Australian Institute of Health and Welfare","unstructured":"Australian Institute of Health and Welfare. Informal carers. 2025. Updated October 30, 2025. Accessed April 7, 2026.https:\/\/www.aihw.gov.au\/reports\/australias-welfare\/informal-carers"},{"key":"e_1_3_8_3_2","doi-asserted-by":"publisher","DOI":"10.1007\/s11864-022-00955-3"},{"key":"e_1_3_8_4_2","doi-asserted-by":"publisher","DOI":"10.1200\/jop.2012.000690"},{"key":"e_1_3_8_5_2","doi-asserted-by":"publisher","DOI":"10.1111\/ecc.13587"},{"key":"e_1_3_8_6_2","doi-asserted-by":"publisher","DOI":"10.1097\/OR9.0000000000000040"},{"key":"e_1_3_8_7_2","doi-asserted-by":"publisher","DOI":"10.1007\/s11136-018-1836-1"},{"key":"e_1_3_8_8_2","doi-asserted-by":"publisher","DOI":"10.1007\/978-3-031-56806-0"},{"key":"e_1_3_8_9_2","volume-title":"Cancer in Australia 2021","author":"Australian Institute of Health and Welfare","year":"2021","unstructured":"Australian Institute of Health and Welfare. Cancer in Australia 2021. 2021. Updated August 18, 2023. https:\/\/www.aihw.gov.au\/reports\/cancer\/cancer-in-australia-2021. 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