{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2026,8,8]],"date-time":"2026-08-08T14:42:22Z","timestamp":1786200142977,"version":"build-2736575974"},"reference-count":21,"publisher":"SAGE Publications","license":[{"start":{"date-parts":[[2026,6,1]],"date-time":"2026-06-01T00:00:00Z","timestamp":1780272000000},"content-version":"vor","delay-in-days":0,"URL":"https:\/\/creativecommons.org\/licenses\/by-nc\/4.0\/"},{"start":{"date-parts":[[2026,6,1]],"date-time":"2026-06-01T00:00:00Z","timestamp":1780272000000},"content-version":"tdm","delay-in-days":0,"URL":"https:\/\/journals.sagepub.com\/page\/policies\/text-and-data-mining-license"}],"content-domain":{"domain":["journals.sagepub.com"],"crossmark-restriction":true},"short-container-title":["Cancer Control"],"published-print":{"date-parts":[[2026,6]]},"abstract":"<jats:sec>\n                    <jats:title>Introduction<\/jats:title>\n                    <jats:p>Cancer registries are essential for surveillance and cancer control, yet many pediatric oncology registries capture limited longitudinal clinical data and are not designed to support care continuity or active follow-up. In low- and middle-income settings, this limits the ability of registries to inform quality improvement, population decision support, and efforts to reduce treatment abandonment.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Methods<\/jats:title>\n                    <jats:p>We used a modified implementation mapping approach to optimize Ethiopia\u2019s pediatric hospital-based cancer registry across five pediatric cancer centers. Clinicians, data clerks, social workers, and implementation scientists jointly refined registry workflows and co-developed the Pediatric Oncology Summary Sheet\u2013Treatment and Follow-up (POSSh-TF), a structured tool designed to capture treatment delivery, modifications, and longitudinal follow-up data beyond minimum WHO\u2013IARC recommendations. Iterative workflow analyses were conducted to align documentation, data entry, and reporting processes with routine clinical care and priorities outlined in Ethiopia\u2019s National Cancer Control Plan.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Results<\/jats:title>\n                    <jats:p>We identified the following key gaps to registry implementation including (1) variability across sites in available resources, (2) workload barriers preventing completion at every patient visit, and (3) variability in proposed workflow options across institutions. In order to mitigate these barriers, we designed concrete implementation strategies including: (1) partnership with the non-profit organization The Aslan Project to support the initiative, (2) standardized pre-defined workflows and SOPs to facilitate longitudinal data capture, and (3) site-embedded registry personnel with targeted training to improve data collection.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Conclusions<\/jats:title>\n                    <jats:p>Collaborative optimization of pediatric oncology registries can extend their function beyond surveillance to support cancer control, quality monitoring, and patient-centered follow-up. The POSSh-TF and associated workflows provide a scalable model for leveraging registry data to strengthen continuity of care and population-level decision support in resource-constrained settings.<\/jats:p>\n                  <\/jats:sec>","DOI":"10.1177\/10732748261476827","type":"journal-article","created":{"date-parts":[[2026,8,5]],"date-time":"2026-08-05T08:11:06Z","timestamp":1785917466000},"update-policy":"https:\/\/doi.org\/10.1177\/sage-journals-update-policy","source":"Crossref","is-referenced-by-count":0,"title":["Development of Implementation Strategies to Facilitate a Novel, Clinically-Relevant Hospital-Based Cancer Registry Network Across Ethiopia"],"prefix":"10.1177","volume":"33","author":[{"ORCID":"https:\/\/orcid.org\/0000-0002-1376-964X","authenticated-orcid":false,"given":"Emily R.","family":"Sajda","sequence":"first","affiliation":[{"name":"University of North Carolina Medical Center"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Bethel","family":"Belayneh","sequence":"additional","affiliation":[{"name":"University of North Carolina"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"ORCID":"https:\/\/orcid.org\/0009-0003-8987-4301","authenticated-orcid":false,"given":"Allison","family":"Yang","sequence":"additional","affiliation":[{"name":"University of North Carolina"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"ORCID":"https:\/\/orcid.org\/0000-0001-6065-0695","authenticated-orcid":false,"given":"Atalay Mulu","family":"Fentie","sequence":"additional","affiliation":[{"name":"Addis Ababa University"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Haileyesus","family":"Adam","sequence":"additional","affiliation":[{"name":"Addis Ababa University"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Daniel","family":"Hailu","sequence":"additional","affiliation":[{"name":"Addis Ababa University"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Abdulkadir","family":"Mohamedseid","sequence":"additional","affiliation":[{"name":"Addis Ababa University"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Gashaw","family":"Arega","sequence":"additional","affiliation":[{"name":"Addis Ababa University"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Mulugeta","family":"Yimer","sequence":"additional","affiliation":[{"name":"University of Gondar Comprehensive Specialized Hospital"},{"name":"University of Toronto"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Yalew","family":"Melkamu","sequence":"additional","affiliation":[{"name":"University of Gondar Comprehensive Specialized Hospital"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Dirba","family":"Fufa","sequence":"additional","affiliation":[{"name":"Jimma University Specialized Hospital"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"ORCID":"https:\/\/orcid.org\/0009-0008-6591-9663","authenticated-orcid":false,"given":"Mohammed","family":"Mustefa","sequence":"additional","affiliation":[{"name":"Ayder Medical Center"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"ORCID":"https:\/\/orcid.org\/0009-0006-8404-508X","authenticated-orcid":false,"given":"Tadele","family":"Hailu","sequence":"additional","affiliation":[{"name":"St. Paul\u2019s Hospital"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Mamude Dinikiye","family":"Ali","sequence":"additional","affiliation":[{"name":"St. Paul\u2019s Hospital"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Megan","family":"Roberts","sequence":"additional","affiliation":[{"name":"University of North Carolina"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Adam","family":"Bernstein","sequence":"additional","affiliation":[{"name":"University of North Carolina"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"ORCID":"https:\/\/orcid.org\/0000-0001-7614-1959","authenticated-orcid":false,"given":"Vanessa","family":"Ayer Miller","sequence":"additional","affiliation":[{"name":"Campbell University"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Kaitlyn","family":"Buhlinger","sequence":"additional","affiliation":[{"name":"University of North Carolina Medical Center"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Benyam","family":"Muluneh","sequence":"additional","affiliation":[{"name":"University of North Carolina"},{"name":"UNC"}],"role":[{"vocabulary":"crossref","role":"author"}]}],"member":"179","published-online":{"date-parts":[[2026,8,5]]},"reference":[{"key":"e_1_3_5_2_2","doi-asserted-by":"publisher","DOI":"10.1186\/s12885-023-11765-7"},{"key":"e_1_3_5_3_2","volume-title":"CureAll framework: WHO Global Initiative for Childhood Cancer. Increasing access, advancing quality, saving lives","author":"World Health Organization","year":"2021","unstructured":"World Health Organization. CureAll framework: WHO Global Initiative for Childhood Cancer. Increasing access, advancing quality, saving lives. World Health Organization; 2021. https:\/\/iris.who.int\/handle\/10665\/347370. Accessed 21 July 2026."},{"key":"e_1_3_5_4_2","doi-asserted-by":"publisher","DOI":"10.1002\/pbc.30657"},{"key":"e_1_3_5_5_2","volume-title":"Cancer Registration: Principles and Methods","author":"Jensen OM","year":"1991","unstructured":"Jensen OM, Parkin DM, MacLennan R, Muir CS, Skeet RG, eds. Cancer Registration: Principles and Methods. IARC Scientific Publications No. 95. International Agency for Research on Cancer; 1991."},{"key":"e_1_3_5_6_2","doi-asserted-by":"publisher","DOI":"10.1016\/j.ejca.2008.11.032"},{"key":"e_1_3_5_7_2","doi-asserted-by":"publisher","DOI":"10.1371\/journal.pgph.0005418"},{"key":"e_1_3_5_8_2","doi-asserted-by":"publisher","DOI":"10.1177\/1078155220980051"},{"key":"e_1_3_5_9_2","doi-asserted-by":"publisher","DOI":"10.1371\/journal.pone.0076833"},{"key":"e_1_3_5_10_2","volume-title":"The Aslan Project","author":"The Aslan Project","unstructured":"The Aslan Project. The Aslan Project. https:\/\/www.aslanproject.org\/. Accessed 21 July 2026."},{"key":"e_1_3_5_11_2","unstructured":"Federal Ministry of Health Ethiopia. National Cancer Control Plan of Ethiopia 2016-2020. 2015. https:\/\/www.iccp-portal.org\/sites\/default\/files\/plans\/NCCP_Ethiopia_Final___Submitted__PDF_1.pdf. Accessed 15 October 2025. Published."},{"key":"e_1_3_5_12_2","doi-asserted-by":"publisher","DOI":"10.1136\/archdischild-2021-322485"},{"key":"e_1_3_5_13_2","volume-title":"Planning and Developing Population-Based Cancer Registration in Low- or Middle-Income Settings","author":"Bray F","year":"2014","unstructured":"Bray F, Znaor A, Cueva P, et al. Planning and Developing Population-Based Cancer Registration in Low- or Middle-Income Settings. International Agency for Research on Cancer; 2014."},{"key":"e_1_3_5_14_2","doi-asserted-by":"publisher","DOI":"10.1200\/JCO.2014.56.2124"},{"key":"e_1_3_5_15_2","doi-asserted-by":"publisher","DOI":"10.1002\/cncr.30905"},{"key":"e_1_3_5_16_2","doi-asserted-by":"publisher","DOI":"10.21149\/spm.v58i2.7802"},{"key":"e_1_3_5_17_2","doi-asserted-by":"publisher","DOI":"10.1002\/cncr.32355"},{"key":"e_1_3_5_18_2","doi-asserted-by":"publisher","DOI":"10.1007\/s10552-008-9288-5"},{"key":"e_1_3_5_19_2","doi-asserted-by":"publisher","DOI":"10.3332\/ecancer.2014.413"},{"key":"e_1_3_5_20_2","doi-asserted-by":"publisher","DOI":"10.1186\/s12913-022-08188-8"},{"issue":"4","key":"e_1_3_5_21_2","first-page":"161","article-title":"Identifying Factors Associated with Loss to Follow-up Among Patients Reported to the New York State Cancer Registry","volume":"49","author":"Qiao B","year":"2022","unstructured":"Qiao B, Austin AA, Schymura MJ, Zhang X, Sherman CG. Identifying Factors Associated with Loss to Follow-up Among Patients Reported to the New York State Cancer Registry. J Registry Manag. 2022;49(4):161-169.","journal-title":"J Registry Manag"},{"key":"e_1_3_5_22_2","doi-asserted-by":"publisher","DOI":"10.1080\/07347332.2018.1427174"}],"container-title":["Cancer Control"],"original-title":[],"language":"en","link":[{"URL":"https:\/\/journals.sagepub.com\/doi\/pdf\/10.1177\/10732748261476827","content-type":"application\/pdf","content-version":"vor","intended-application":"text-mining"},{"URL":"https:\/\/journals.sagepub.com\/doi\/full-xml\/10.1177\/10732748261476827","content-type":"application\/xml","content-version":"vor","intended-application":"text-mining"},{"URL":"https:\/\/journals.sagepub.com\/doi\/pdf\/10.1177\/10732748261476827","content-type":"unspecified","content-version":"vor","intended-application":"similarity-checking"}],"deposited":{"date-parts":[[2026,8,8]],"date-time":"2026-08-08T13:47:28Z","timestamp":1786196848000},"score":1,"resource":{"primary":{"URL":"https:\/\/journals.sagepub.com\/doi\/10.1177\/10732748261476827"}},"subtitle":[],"short-title":[],"issued":{"date-parts":[[2026,6]]},"references-count":21,"alternative-id":["10.1177\/10732748261476827"],"URL":"https:\/\/doi.org\/10.1177\/10732748261476827","relation":{},"ISSN":["1073-2748","1526-2359"],"issn-type":[{"value":"1073-2748","type":"print"},{"value":"1526-2359","type":"electronic"}],"subject":[],"published":{"date-parts":[[2026,6]]},"article-number":"10732748261476827"}}