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An unexpected finding was 24 (77%) described caregiving activities. Descriptive analysis of caregiving statements identified themes of Tasks and Responsibilities, Subjective Burden, Caregiving in Context of Personal Risk for HD, and Decisional Responsibility. Teens took an active part in nearly all aspects of care with the exception of contacting health care providers and attending doctors' appointments. Some described emotional distress, and many provided care knowing they had the potential to develop HD. Teens recognized the need for decisions but lacked the authority to make these decisions. Findings may be relevant for other teens who strive to meet caregiver and student roles and developmental tasks.<\/jats:p>","DOI":"10.1177\/1074840709337126","type":"journal-article","created":{"date-parts":[[2009,5,22]],"date-time":"2009-05-22T21:31:14Z","timestamp":1243027874000},"page":"273-294","source":"Crossref","is-referenced-by-count":48,"title":["Caregiving by Teens for Family Members With Huntington Disease"],"prefix":"10.1177","volume":"15","author":[{"given":"Janet K.","family":"Williams","sequence":"first","affiliation":[{"name":"The University of Iowa,"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Lioness","family":"Ayres","sequence":"additional","affiliation":[{"name":"The University of Iowa"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Janet","family":"Specht","sequence":"additional","affiliation":[{"name":"The University of Iowa"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Kathleen","family":"Sparbel","sequence":"additional","affiliation":[{"name":"The University of Iowa"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Mary Lou","family":"Klimek","sequence":"additional","affiliation":[{"name":"University of Calgary"}],"role":[{"vocabulary":"crossref","role":"author"}]}],"member":"179","published-online":{"date-parts":[[2009,5,22]]},"reference":[{"key":"atypb1","volume-title":"Emerging adulthood: The winding road from the late teens through the twenties","author":"Arnett, J.J.","year":"2004"},{"key":"atypb2","doi-asserted-by":"publisher","DOI":"10.1001\/archneur.1996.00550120105023"},{"issue":"4","key":"atypb3","first-page":"3","volume":"27","author":"Baago, S.","year":"2004","journal-title":"Perspectives"},{"key":"atypb4","doi-asserted-by":"publisher","DOI":"10.1080\/030698802100002281"},{"key":"atypb5","doi-asserted-by":"publisher","DOI":"10.1007\/s00467-005-2064-9"},{"key":"atypb6","first-page":"12","volume":"9","author":"Beach, D.","year":"1994","journal-title":"Journal of Alzheimer's Care Related Disease Research"},{"key":"atypb7","doi-asserted-by":"publisher","DOI":"10.1093\/geront\/37.2.233"},{"key":"atypb8","doi-asserted-by":"publisher","DOI":"10.1177\/1468018107073892"},{"key":"atypb9","doi-asserted-by":"publisher","DOI":"10.1097\/00012272-198701000-00006"},{"key":"atypb10","volume-title":"Young carers in Australia","author":"Carers Australia","year":"2007"},{"key":"atypb11","doi-asserted-by":"publisher","DOI":"10.1212\/WNL.51.1_Suppl_1.S53"},{"key":"atypb12","doi-asserted-by":"publisher","DOI":"10.1111\/j.1399-0004.2006.00702.x"},{"key":"atypb13","doi-asserted-by":"publisher","DOI":"10.1176\/ps.2008.59.3.261"},{"key":"atypb14","volume-title":"Making it Work: Good Practice with Young Carers and their Families","author":"Frank, J.","year":"2002"},{"key":"atypb15","doi-asserted-by":"publisher","DOI":"10.1111\/j.1547-5069.1998.tb01229.x"},{"key":"atypb16","doi-asserted-by":"publisher","DOI":"10.1081\/JA-120034016"},{"key":"atypb17","doi-asserted-by":"publisher","DOI":"10.1111\/j.1365-2214.2008.00810.x"},{"key":"atypb18","volume-title":"Qualitative research in nursing","author":"Holloway, I.","year":"2002","edition":"2"},{"key":"atypb19","doi-asserted-by":"publisher","DOI":"10.2307\/2137221"},{"key":"atypb20","doi-asserted-by":"publisher","DOI":"10.1177\/014572170403000517"},{"key":"atypb21","doi-asserted-by":"publisher","DOI":"10.1093\/geronb\/60.2.S62"},{"key":"atypb22","doi-asserted-by":"publisher","DOI":"10.1037\/0002-9432.78.1.1"},{"key":"atypb23","doi-asserted-by":"publisher","DOI":"10.1207\/s15326888chc2401_5"},{"key":"atypb24","doi-asserted-by":"publisher","DOI":"10.1177\/019394598801000207"},{"key":"atypb25","doi-asserted-by":"publisher","DOI":"10.3928\/0098-9134-20030801-07"},{"key":"atypb26","unstructured":"McDaniel, S.H., Rolland, J.S., Feetham, S.L. & Miller, S.M. 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