{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2026,10,24]],"date-time":"2026-10-24T10:33:02Z","timestamp":1792837982409,"version":"4.5.0"},"reference-count":67,"publisher":"SAGE Publications","issue":"1","license":[{"start":{"date-parts":[[2022,6,7]],"date-time":"2022-06-07T00:00:00Z","timestamp":1654560000000},"content-version":"tdm","delay-in-days":0,"URL":"https:\/\/journals.sagepub.com\/page\/policies\/text-and-data-mining-license"}],"funder":[{"DOI":"10.13039\/100014367","name":"National Palliative Care Research Center","doi-asserted-by":"publisher","award":["Pilot Project Support Grant"],"award-info":[{"award-number":["Pilot Project Support Grant"]}],"id":[{"id":"10.13039\/100014367","id-type":"DOI","asserted-by":"publisher"}]}],"content-domain":{"domain":["journals.sagepub.com"],"crossmark-restriction":true},"short-container-title":["J Fam Nurs"],"published-print":{"date-parts":[[2023,2]]},"abstract":"<jats:p>Self- and family management (SFM) refers to patients\u2019 and family caregivers\u2019 activities to co-manage illness. Two barriers to SFM are low palliative care literacy and lack of goals of care communication, which potentially result in SFM activities that are unsupportive of patients\u2019 goals. Managing Cancer Care: A Caregiver\u2019s Guide (MCC-CG) aims to improve palliative care literacy and communication within a SFM training program. In this pilot randomized trial, we enrolled breast cancer family caregivers and collected data at 0, 1, and 3 months on palliative care literacy, SFM engagement, communication, transitions management, uncertainty, caregiver burden, and caregiver competence\/personal gain. Participants ( n = 35) had a mean age of 54 (range: 18\u201381) and were 66% white and 34% racial\/ethnic minorities. Intervention participants improved their palliative care literacy and SFM engagement, reduced uncertainty and caregiver burden, increased competence\/personal gain, and had more goals of care conversations over time. MCC-CG has preliminary efficacy, warranting further study.<\/jats:p>","DOI":"10.1177\/10748407221099541","type":"journal-article","created":{"date-parts":[[2022,6,7]],"date-time":"2022-06-07T04:28:54Z","timestamp":1654576134000},"page":"99-114","update-policy":"https:\/\/doi.org\/10.1177\/sage-journals-update-policy","source":"Crossref","is-referenced-by-count":6,"title":["Improving Breast Cancer Family Caregivers\u2019 Palliative Care Literacy: A Pilot Randomized Trial"],"prefix":"10.1177","volume":"29","author":[{"ORCID":"https:\/\/orcid.org\/0000-0003-2259-3284","authenticated-orcid":false,"given":"Dena","family":"Schulman-Green","sequence":"first","affiliation":[{"name":"New York University Rory Meyers College of Nursing, New York City, USA"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Sarah","family":"Linsky","sequence":"additional","affiliation":[{"name":"Yale School of Nursing, West Haven, CT, USA"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Leslie","family":"Blatt","sequence":"additional","affiliation":[{"name":"Yale New Haven Hospital, CT, USA"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Jane","family":"Jeuland","sequence":"additional","affiliation":[{"name":"Yale New Haven Hospital, CT, USA"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Jennifer","family":"Kapo","sequence":"additional","affiliation":[{"name":"Yale New Haven Hospital, CT, USA"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Sangchoon","family":"Jeon","sequence":"additional","affiliation":[{"name":"Yale School of Nursing, West Haven, CT, USA"}],"role":[{"vocabulary":"crossref","role":"author"}]}],"member":"179","published-online":{"date-parts":[[2022,6,7]]},"reference":[{"key":"bibr1-10748407221099541","doi-asserted-by":"publisher","DOI":"10.1016\/j.pec.2020.03.012"},{"key":"bibr2-10748407221099541","doi-asserted-by":"publisher","DOI":"10.1200\/JCO.19.00018"},{"key":"bibr3-10748407221099541","unstructured":"American Cancer Society. (2021). Cancer facts & figures 2021. https:\/\/www.cancer.org\/content\/dam\/cancer-org\/research\/cancer-facts-and-statistics\/annual-cancer-facts-and-figures\/2021\/cancer-facts-and-figures-2021.pdf"},{"key":"bibr4-10748407221099541","doi-asserted-by":"publisher","DOI":"10.1002\/pon.4581"},{"key":"bibr5-10748407221099541","doi-asserted-by":"publisher","DOI":"10.1089\/109662104773709530"},{"key":"bibr6-10748407221099541","doi-asserted-by":"publisher","DOI":"10.1016\/S0738-3991(02)00032-0"},{"key":"bibr7-10748407221099541","doi-asserted-by":"publisher","DOI":"10.1093\/geront\/41.5.652"},{"key":"bibr8-10748407221099541","doi-asserted-by":"publisher","DOI":"10.1001\/jamainternmed.2014.5271"},{"key":"bibr9-10748407221099541","doi-asserted-by":"publisher","DOI":"10.1136\/postgradmedj-2015-133368"},{"key":"bibr10-10748407221099541","doi-asserted-by":"publisher","DOI":"10.1136\/bmjspcare-2018-001529"},{"key":"bibr11-10748407221099541","doi-asserted-by":"publisher","DOI":"10.1207\/s15327027hc1003_5"},{"key":"bibr12-10748407221099541","doi-asserted-by":"publisher","DOI":"10.1136\/bmjspcare-2019-002120"},{"key":"bibr13-10748407221099541","doi-asserted-by":"publisher","DOI":"10.1177\/1049909115593938"},{"key":"bibr14-10748407221099541","doi-asserted-by":"publisher","DOI":"10.1007\/s10995-018-2467-4"},{"key":"bibr15-10748407221099541","volume-title":"Statistical power analysis for the behavioral sciences","author":"Cohen J.","year":"1988","edition":"2"},{"key":"bibr16-10748407221099541","doi-asserted-by":"publisher","DOI":"10.1016\/j.ejon.2020.101841"},{"key":"bibr17-10748407221099541","doi-asserted-by":"publisher","DOI":"10.1002\/pon.5215"},{"key":"bibr18-10748407221099541","doi-asserted-by":"publisher","DOI":"10.1136\/bmjspcare-2013-000610"},{"key":"bibr19-10748407221099541","doi-asserted-by":"publisher","DOI":"10.1017\/S1478951519000154"},{"key":"bibr20-10748407221099541","doi-asserted-by":"publisher","DOI":"10.1111\/j.1365-2648.2007.04569.x"},{"key":"bibr21-10748407221099541","unstructured":"Ercolano E., Schulman-Green D. (n.d.). Development of the Engagement in Cancer Self-Management Activities Scale (ECSMAS) [Unpublished manuscript]."},{"key":"bibr22-10748407221099541","doi-asserted-by":"publisher","DOI":"10.3322\/caac.21396"},{"key":"bibr23-10748407221099541","doi-asserted-by":"publisher","DOI":"10.1177\/0193945916650675"},{"key":"bibr24-10748407221099541","doi-asserted-by":"publisher","DOI":"10.1016\/j.outlook.2014.10.003"},{"key":"bibr25-10748407221099541","doi-asserted-by":"publisher","DOI":"10.1089\/jpm.2015.0133"},{"key":"bibr26-10748407221099541","doi-asserted-by":"publisher","DOI":"10.1037\/hea0000489"},{"key":"bibr27-10748407221099541","doi-asserted-by":"publisher","DOI":"10.1177\/1049732305276687"},{"key":"bibr28-10748407221099541","doi-asserted-by":"publisher","DOI":"10.1089\/pmr.2020.0004"},{"key":"bibr29-10748407221099541","doi-asserted-by":"publisher","DOI":"10.1016\/j.jpainsymman.2019.03.014"},{"key":"bibr30-10748407221099541","doi-asserted-by":"publisher","DOI":"10.2147\/BCTT.S240928"},{"key":"bibr31-10748407221099541","doi-asserted-by":"publisher","DOI":"10.1097\/NCC.0000000000000493"},{"key":"bibr32-10748407221099541","doi-asserted-by":"publisher","DOI":"10.1007\/s00520-020-05489-8"},{"key":"bibr33-10748407221099541","doi-asserted-by":"publisher","DOI":"10.1177\/1460458220950853"},{"key":"bibr34-10748407221099541","doi-asserted-by":"publisher","DOI":"10.1007\/s12160-015-9743-y"},{"key":"bibr35-10748407221099541","doi-asserted-by":"publisher","DOI":"10.1188\/17.ONF.719-728"},{"key":"bibr36-10748407221099541","doi-asserted-by":"publisher","DOI":"10.1016\/j.pec.2016.12.022"},{"key":"bibr37-10748407221099541","doi-asserted-by":"publisher","DOI":"10.1186\/s13643-020-01408-4"},{"key":"bibr38-10748407221099541","doi-asserted-by":"publisher","DOI":"10.1016\/j.ijnurstu.2016.01.002"},{"key":"bibr39-10748407221099541","doi-asserted-by":"publisher","DOI":"10.1111\/inr.12000"},{"key":"bibr40-10748407221099541","doi-asserted-by":"publisher","DOI":"10.1513\/AnnalsATS.202012-1494OC"},{"key":"bibr41-10748407221099541","doi-asserted-by":"publisher","DOI":"10.1097\/NCC.0b013e318231daf0"},{"key":"bibr42-10748407221099541","volume-title":"Medication Management and Symptom Management Toolkit","author":"Michigan State University","year":"2013"},{"key":"bibr43-10748407221099541","doi-asserted-by":"publisher","DOI":"10.1097\/00006199-198109000-00002"},{"key":"bibr44-10748407221099541","doi-asserted-by":"publisher","DOI":"10.1111\/j.1547-5069.1990.tb00225.x"},{"key":"bibr45-10748407221099541","doi-asserted-by":"publisher","DOI":"10.1186\/s12955-020-01591-x"},{"key":"bibr46-10748407221099541","doi-asserted-by":"publisher","DOI":"10.1002\/cncr.30875"},{"key":"bibr47-10748407221099541","doi-asserted-by":"publisher","DOI":"10.1017\/S1478951520001200"},{"key":"bibr48-10748407221099541","doi-asserted-by":"publisher","DOI":"10.1200\/JCO.2002.02.054"},{"key":"bibr49-10748407221099541","doi-asserted-by":"publisher","DOI":"10.1002\/cncr.31733"},{"key":"bibr50-10748407221099541","doi-asserted-by":"publisher","DOI":"10.1093\/geront\/30.5.583"},{"key":"bibr51-10748407221099541","doi-asserted-by":"publisher","DOI":"10.1111\/j.1547-5069.2011.01404.x"},{"key":"bibr52-10748407221099541","doi-asserted-by":"publisher","DOI":"10.1016\/j.jpainsymman.2010.12.007"},{"key":"bibr53-10748407221099541","doi-asserted-by":"publisher","DOI":"10.1097\/SPC.0000000000000373"},{"key":"bibr54-10748407221099541","doi-asserted-by":"publisher","DOI":"10.1089\/jpm.2011.0514"},{"key":"bibr55-10748407221099541","doi-asserted-by":"publisher","DOI":"10.1177\/1074840720977180"},{"key":"bibr56-10748407221099541","doi-asserted-by":"publisher","DOI":"10.1111\/j.1547-5069.2012.01444.x"},{"key":"bibr57-10748407221099541","doi-asserted-by":"publisher","DOI":"10.1007\/s00520-013-1864-x"},{"key":"bibr58-10748407221099541","doi-asserted-by":"publisher","DOI":"10.1002\/pon.4013"},{"key":"bibr59-10748407221099541","doi-asserted-by":"publisher","DOI":"10.1891\/1061-3749.25.1.103"},{"key":"bibr60-10748407221099541","doi-asserted-by":"publisher","DOI":"10.1177\/0825859718777361"},{"key":"bibr61-10748407221099541","doi-asserted-by":"publisher","DOI":"10.1111\/jocn.14115"},{"key":"bibr62-10748407221099541","doi-asserted-by":"publisher","DOI":"10.2196\/15509"},{"key":"bibr63-10748407221099541","doi-asserted-by":"publisher","DOI":"10.1016\/j.ejon.2021.101933"},{"key":"bibr64-10748407221099541","doi-asserted-by":"publisher","DOI":"10.1007\/s00520-020-05565-z"},{"key":"bibr65-10748407221099541","doi-asserted-by":"publisher","DOI":"10.1016\/j.jpainsymman.2011.04.017"},{"key":"bibr66-10748407221099541","doi-asserted-by":"publisher","DOI":"10.1186\/s12904-018-0346-9"},{"key":"bibr67-10748407221099541","volume-title":"The hidden victims of Alzheimer\u2019s disease: Families under stress","author":"Zarit S. H.","year":"1985"}],"container-title":["Journal of Family Nursing"],"original-title":[],"language":"en","link":[{"URL":"https:\/\/journals.sagepub.com\/doi\/pdf\/10.1177\/10748407221099541","content-type":"application\/pdf","content-version":"vor","intended-application":"text-mining"},{"URL":"https:\/\/journals.sagepub.com\/doi\/full-xml\/10.1177\/10748407221099541","content-type":"application\/xml","content-version":"vor","intended-application":"text-mining"},{"URL":"https:\/\/journals.sagepub.com\/doi\/pdf\/10.1177\/10748407221099541","content-type":"unspecified","content-version":"vor","intended-application":"similarity-checking"}],"deposited":{"date-parts":[[2026,4,29]],"date-time":"2026-04-29T22:14:47Z","timestamp":1777500887000},"score":1,"resource":{"primary":{"URL":"https:\/\/journals.sagepub.com\/doi\/10.1177\/10748407221099541"}},"subtitle":[],"short-title":[],"issued":{"date-parts":[[2022,6,7]]},"references-count":67,"journal-issue":{"issue":"1","published-print":{"date-parts":[[2023,2]]}},"alternative-id":["10.1177\/10748407221099541"],"URL":"https:\/\/doi.org\/10.1177\/10748407221099541","relation":{},"ISSN":["1074-8407","1552-549X"],"issn-type":[{"value":"1074-8407","type":"print"},{"value":"1552-549X","type":"electronic"}],"subject":[],"published":{"date-parts":[[2022,6,7]]}}}