{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2026,6,8]],"date-time":"2026-06-08T16:35:18Z","timestamp":1780936518958,"version":"3.54.1"},"reference-count":36,"publisher":"SAGE Publications","issue":"2","license":[{"start":{"date-parts":[[2021,3,9]],"date-time":"2021-03-09T00:00:00Z","timestamp":1615248000000},"content-version":"tdm","delay-in-days":0,"URL":"https:\/\/journals.sagepub.com\/page\/policies\/text-and-data-mining-license"}],"content-domain":{"domain":["journals.sagepub.com"],"crossmark-restriction":true},"short-container-title":["J Oncol Pharm Pract"],"published-print":{"date-parts":[[2022,3]]},"abstract":"<jats:sec>\n                    <jats:title>Objective<\/jats:title>\n                    <jats:p>Outcomes in multiple myeloma (MM) have significantly improved necessitating focus on survivorship.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Methods<\/jats:title>\n                    <jats:p>We undertook a web-based survey in collaboration with International Myeloma Foundation (IMF) to explore patient awareness and psycho-physical impacts of MM. The survey was viewed on the IMF website by 1,324 individuals from 32 countries.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Results<\/jats:title>\n                    <jats:p>The survey responses were available from 959 individuals, with 62% who completed the survey. Treating doctors were the most frequent source of MM-related information. Only 56% patients admitted full compliance with treatment. Treatment side effects bothered 86% responders, including &gt;50% admitting to pain, peripheral neuropathy and asthenia. Majority (57%) reported some degree of depression, 82% had discontent with their quality of life and only 35% reported being satisfied with their coping mechanisms. Patients \u226565\u2009years of age reported more peripheral neuropathy (p\u2009=\u20090.007) and difficulty with ability to work (p\u2009=\u20090.015).<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Conclusions<\/jats:title>\n                    <jats:p>We report the prevalence of psychologic, social and physical domains as well as patient-physician relationship dynamics. This knowledge can help improve MM survivorship.Introduction<\/jats:p>\n                  <\/jats:sec>","DOI":"10.1177\/10781552211001928","type":"journal-article","created":{"date-parts":[[2021,3,10]],"date-time":"2021-03-10T01:10:21Z","timestamp":1615338621000},"page":"425-433","update-policy":"https:\/\/doi.org\/10.1177\/sage-journals-update-policy","source":"Crossref","is-referenced-by-count":2,"title":["Awareness of myeloma care and the global impact of treatment: An international internet-based prospective study"],"prefix":"10.1177","volume":"28","author":[{"ORCID":"https:\/\/orcid.org\/0000-0002-8377-8111","authenticated-orcid":false,"given":"Sikander","family":"Ailawadhi","sequence":"first","affiliation":[{"name":"Division of Hematology-Oncology, Mayo Clinic, Jacksonville, FL, USA"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Abhisek","family":"Swaika","sequence":"additional","affiliation":[{"name":"Division of Hematology-Oncology, Mayo Clinic, Jacksonville, FL, USA"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Pooja","family":"Advani","sequence":"additional","affiliation":[{"name":"Division of Hematology-Oncology, Mayo Clinic, Jacksonville, FL, USA"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"David","family":"Hodge","sequence":"additional","affiliation":[{"name":"Department of Health Sciences and Research, Mayo Clinic, Jacksonville, FL, USA"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Aneel","family":"Paulus","sequence":"additional","affiliation":[{"name":"Division of Hematology-Oncology, Mayo Clinic, Jacksonville, FL, USA"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Nandita","family":"Khera","sequence":"additional","affiliation":[{"name":"Division of Hematology-Oncology, Mayo Clinic, Scottsdale, AZ, USA"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Shahrukh K","family":"Hashmi","sequence":"additional","affiliation":[{"name":"Division of Hematology, Mayo Clinic, Rochester, MN, USA"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Victoria R","family":"Alegria","sequence":"additional","affiliation":[{"name":"Division of Hematology-Oncology, Mayo Clinic, Jacksonville, FL, USA"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Mays","family":"Abdulazeez","sequence":"additional","affiliation":[{"name":"Division of Hematology-Oncology, Mayo Clinic, Jacksonville, FL, USA"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Srilekha","family":"Bodepudi","sequence":"additional","affiliation":[{"name":"Division of Hematology-Oncology, Mayo Clinic, Jacksonville, FL, USA"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Khushi","family":"Jamwal","sequence":"additional","affiliation":[{"name":"Allen D. Nease High School, Ponte Vedra Beach, FL, USA"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Vivek","family":"Roy","sequence":"additional","affiliation":[{"name":"Division of Hematology-Oncology, Mayo Clinic, Jacksonville, FL, USA"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Taimur","family":"Sher","sequence":"additional","affiliation":[{"name":"Division of Hematology-Oncology, Mayo Clinic, Jacksonville, FL, USA"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Asher","family":"Chanan-Khan","sequence":"additional","affiliation":[{"name":"Division of Hematology-Oncology, Mayo Clinic, Jacksonville, FL, USA"},{"name":"St. Vincent\u2019s Medical Center, Jacksonville, FL, USA"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Meghna","family":"Ailawadhi","sequence":"additional","affiliation":[{"name":"Division of Hematology-Oncology, Mayo Clinic, Jacksonville, FL, USA"}],"role":[{"vocabulary":"crossref","role":"author"}]}],"member":"179","published-online":{"date-parts":[[2021,3,9]]},"reference":[{"key":"bibr1-10781552211001928","unstructured":"Surveillance, Epidemiology, and End Results (SEER) Program Research Data (1973-2015), in Institute NC (ed): DCCPS, Surveillance Research Program (ed April 2018, based on the November 2017 submission), 2018."},{"key":"bibr2-10781552211001928","doi-asserted-by":"publisher","DOI":"10.1002\/cncr.31237"},{"key":"bibr3-10781552211001928","doi-asserted-by":"publisher","DOI":"10.3322\/caac.21590"},{"key":"bibr4-10781552211001928","doi-asserted-by":"publisher","DOI":"10.1016\/j.juro.2007.09.029"},{"key":"bibr5-10781552211001928","doi-asserted-by":"publisher","DOI":"10.1200\/JOP.2014.001403"},{"key":"bibr6-10781552211001928","doi-asserted-by":"publisher","DOI":"10.1016\/j.amepre.2015.08.011"},{"key":"bibr7-10781552211001928","doi-asserted-by":"publisher","DOI":"10.1016\/j.amepre.2015.08.023"},{"key":"bibr8-10781552211001928","doi-asserted-by":"publisher","DOI":"10.1634\/theoncologist.2011-0054"},{"key":"bibr9-10781552211001928","doi-asserted-by":"publisher","DOI":"10.17226\/11468"},{"key":"bibr10-10781552211001928","unstructured":"Commission on Cancer. 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