{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2026,8,28]],"date-time":"2026-08-28T22:26:46Z","timestamp":1787956006906,"version":"build-2784847793"},"reference-count":32,"publisher":"SAGE Publications","issue":"4","license":[{"start":{"date-parts":[[2023,11,1]],"date-time":"2023-11-01T00:00:00Z","timestamp":1698796800000},"content-version":"tdm","delay-in-days":0,"URL":"http:\/\/journals.sagepub.com\/page\/policies\/text-and-data-mining-license"}],"funder":[{"name":"University of Alabama at Birmingham Gregory Fleming James Cystic Fibrosis Research Center","award":["P30DK072482"],"award-info":[{"award-number":["P30DK072482"]}]}],"content-domain":{"domain":["journals.sagepub.com"],"crossmark-restriction":true},"short-container-title":["Creative Nursing"],"published-print":{"date-parts":[[2023,11]]},"abstract":"<jats:p>Background: Cystic fibrosis (CF) is a rare genetic disease affecting approximately 30,000 people in the United States (US). African American persons with CF are even rarer, comprising approximately 5% of this population. Purpose: The purpose of this study was to explore the lived experiences of African American persons with CF to identify potential disparities in health care. Methods: Descriptive phenomenology was used to explore lived experiences of African American persons with CF over age 18 recruited from CF Foundation-accredited Centers in the US, CF-specific social media, and via snowball sampling. Study data was obtained through telephone interviews that were audio-recorded, transcribed verbatim, and analyzed using Colaizzi's method of thematic analysis. Results: Six men and six women (ages 23\u201345) completed the study. Interviews revealed three themes: (1) Accepting a Diagnosis of CF; (2) Desiring a Normal Life while Living with an Invisible Disease; and 3) A Slippery Slope of Subtle Racism. Each theme had 2\u20133 subthemes. Conclusions: It is critical to explore the unique challenges faced by African American persons with CF in order to develop interventions that improve their daily lives and create better futures. Implications for Practice: Findings highlight the unique challenges faced by underrepresented groups with CF and the need to address health inequities to improve care delivery.<\/jats:p>","DOI":"10.1177\/10784535231216461","type":"journal-article","created":{"date-parts":[[2023,11,22]],"date-time":"2023-11-22T02:41:04Z","timestamp":1700620864000},"page":"374-382","update-policy":"https:\/\/doi.org\/10.1177\/sage-journals-update-policy","source":"Crossref","is-referenced-by-count":9,"title":["The Lived Experience of African American Persons with Cystic Fibrosis"],"prefix":"10.1177","volume":"29","author":[{"given":"Sigrid","family":"Ladores","sequence":"first","affiliation":[{"name":"School of Nursing, University of Alabama, Birmingham, AL, USA"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"ORCID":"https:\/\/orcid.org\/0000-0002-3720-1514","authenticated-orcid":false,"given":"Brittany M","family":"Woods","sequence":"additional","affiliation":[{"name":"School of Nursing, University of Alabama, Birmingham, AL, USA"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"ORCID":"https:\/\/orcid.org\/0000-0002-4894-3855","authenticated-orcid":false,"given":"Leslie N","family":"Pitts","sequence":"additional","affiliation":[{"name":"School of Nursing, University of Alabama, Birmingham, AL, USA"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Deyana","family":"Belay","sequence":"additional","affiliation":[{"name":"School of Nursing, University of Alabama, Birmingham, AL, USA"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Lauren","family":"Washington","sequence":"additional","affiliation":[{"name":"Dallas, TX, USA"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Leigh Ann","family":"Bray","sequence":"additional","affiliation":[{"name":"Capstone College of Nursing, The University of Alabama, Tuscaloosa, AL, USA"}],"role":[{"vocabulary":"crossref","role":"author"}]}],"member":"179","published-online":{"date-parts":[[2023,11,21]]},"reference":[{"key":"bibr1-10784535231216461","first-page":"6","volume-title":"Existential-phenomenological alternatives for psychology","author":"Colaizzi P. 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