{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2026,4,30]],"date-time":"2026-04-30T02:24:53Z","timestamp":1777515893623,"version":"3.51.4"},"reference-count":20,"publisher":"SAGE Publications","issue":"4","license":[{"start":{"date-parts":[[2025,7,29]],"date-time":"2025-07-29T00:00:00Z","timestamp":1753747200000},"content-version":"tdm","delay-in-days":0,"URL":"https:\/\/journals.sagepub.com\/page\/policies\/text-and-data-mining-license"}],"content-domain":{"domain":["journals.sagepub.com"],"crossmark-restriction":true},"short-container-title":["Creative Nursing"],"published-print":{"date-parts":[[2025,11]]},"abstract":"<jats:p>Some 29 million people in the United States have the neurological voice disorder spasmodic dysphonia (SD), a type of what is now more accurately called laryngeal dystonia (LD), characterized by an altered voice, the result of involuntary and intermittent contractions of the laryngeal muscles. This personal account details key facts about LD, as its etiology and treatment are still in research. It attests to how LD compromises communication and can threaten people's self-esteem, even their lives, and provides implications for nursing practice.<\/jats:p>","DOI":"10.1177\/10784535251362893","type":"journal-article","created":{"date-parts":[[2025,7,29]],"date-time":"2025-07-29T08:58:12Z","timestamp":1753779492000},"page":"417-421","update-policy":"https:\/\/doi.org\/10.1177\/sage-journals-update-policy","source":"Crossref","is-referenced-by-count":1,"title":["Listening to the Voice of Laryngeal Dystonia: Advocating from the Inside Out"],"prefix":"10.1177","volume":"31","author":[{"ORCID":"https:\/\/orcid.org\/0000-0002-5207-7953","authenticated-orcid":false,"given":"Lorraine","family":"Steefel","sequence":"first","affiliation":[{"name":"LTS Writing and Editorial Consulting Services"}],"role":[{"role":"author","vocabulary":"crossref"}]}],"member":"179","published-online":{"date-parts":[[2025,7,29]]},"reference":[{"key":"e_1_3_2_2_1","unstructured":"Americans with Disabilities Act National Network. (n.d.). What is the definition of a disability under the ADA? https:\/\/adata.org\/faq\/what-definition-disability-under-ada"},{"issue":"1","key":"e_1_3_2_3_1","article-title":"Phenomenology, genetics and CNS network abnormalities in laryngeal dystonia: A 30-year experience","volume":"128","author":"Blitzer A.","year":"2018","unstructured":"Blitzer A., Brin M. F., Simonyan K., Ozelius L. J., Frucht S. J. (2018). Phenomenology, genetics and CNS network abnormalities in laryngeal dystonia: A 30-year experience. Laryngoscope, 128(Suppl. 1), S1\u2013S9. https:\/\/doi.org\/10.1002\/lary.27003","journal-title":"Laryngoscope"},{"key":"e_1_3_2_4_1","unstructured":"Duke Health. (2023). Spasmodic dysphonia and essential vocal tremor: Tests. https:\/\/www.dukehealth.org\/treatments\/voice-disorders\/spasmodic-dysphonia#:\u223c:text=The%20voice%20of%20someone%20with tongue%2C%20jaw%2C%20and%20palate"},{"key":"e_1_3_2_5_1","unstructured":"Dysphonia International. (n.d.a). Botulinum neurotoxin injections. https:\/\/dysphonia.org\/about-sd\/treatment-for-sd\/botulinum-toxin-injections"},{"key":"e_1_3_2_6_1","unstructured":"Dysphonia International. (n.d.b). Building sensitivity. https:\/\/dysphonia.org\/your-journey\/educating-the-public\/building-sensitivity"},{"key":"e_1_3_2_7_1","unstructured":"Dysphonia International. (n.d.c). Is SD a disability? https:\/\/dysphonia.org\/sd-disability\/#:\u223c:text=SD%20can%20be%20considered%20a off%20to%20pursue%20medical%20treatment"},{"issue":"12","key":"e_1_3_2_8_1","first-page":"3253","article-title":"The large-scale structural connectome of task-specific focal dystonia","volume":"41","author":"Hanekamp S.","year":"2020","unstructured":"Hanekamp S., Simonyan K. (2020). The large-scale structural connectome of task-specific focal dystonia. NIH National Library of Medicine, 41(12), 3253\u20133265. https:\/\/doi.org\/10.1002\/hbm.25012","journal-title":"NIH National Library of Medicine"},{"key":"e_1_3_2_9_1","doi-asserted-by":"publisher","DOI":"10.1044\/2024_AJSLP-23-00407"},{"key":"e_1_3_2_10_1","unstructured":"Job Accommodation Network. (2025). https:\/\/askJan.org"},{"key":"e_1_3_2_11_1","doi-asserted-by":"publisher","DOI":"10.1002\/hbm.70000"},{"issue":"3","key":"e_1_3_2_12_1","first-page":"4","article-title":"Nurses with disability: Transforming healthcare for all","volume":"27","author":"Marks B.","year":"2020","unstructured":"Marks B., Sisirak J. (2020). Nurses with disability: Transforming healthcare for all. OJIN: The Online Journal of Issues in Nursing, 27(3), 4. https:\/\/doi.org\/https:\/\/www.https:\/\/doi.org\/10.3912\/OJIN.Vol27No03Man04","journal-title":"OJIN: The Online Journal of Issues in Nursing"},{"key":"e_1_3_2_13_1","doi-asserted-by":"publisher","DOI":"10.1016\/j.jvoice.2014.02.010"},{"key":"e_1_3_2_14_1","doi-asserted-by":"publisher","DOI":"10.1002\/lary.26655"},{"key":"e_1_3_2_15_1","unstructured":"National Institute on Deafness and other Communication Disorders. (2020). Spasmodic dysphonia. U.S. Department of Health and Human Services National Institutes of Health. https:\/\/www.nidcd.nih.gov\/health\/spasmodic-dysphonia#:\u223c:text=In%20some%20cases%2C%20spasmodic%20dysphonia been%20associated%20with%20spasmodic%20dysphonia"},{"key":"e_1_3_2_16_1","unstructured":"Pitman M. J. (2023). Spasmodic dysphonia treatment & management. Medscape. https:\/\/emedicine.medscape.com\/article\/864079-treatment"},{"key":"e_1_3_2_17_1","doi-asserted-by":"publisher","DOI":"10.1002\/lary.26381"},{"key":"e_1_3_2_18_1","unstructured":"Sean Parker Institute for the Voice. (n.d.). Tremor. Weill Cornell Medicine. https:\/\/voice.weill.cornell.edu\/voice-disorders\/tremor"},{"key":"e_1_3_2_19_1","doi-asserted-by":"publisher","DOI":"10.1212\/WNL.0000000000011922"},{"key":"e_1_3_2_20_1","doi-asserted-by":"publisher","DOI":"10.1093\/cercor\/bhr120"},{"key":"e_1_3_2_21_1","doi-asserted-by":"publisher","DOI":"10.1037\/rep0000317"}],"container-title":["Creative Nursing"],"original-title":[],"language":"en","link":[{"URL":"https:\/\/journals.sagepub.com\/doi\/pdf\/10.1177\/10784535251362893","content-type":"application\/pdf","content-version":"vor","intended-application":"text-mining"},{"URL":"https:\/\/journals.sagepub.com\/doi\/full-xml\/10.1177\/10784535251362893","content-type":"application\/xml","content-version":"vor","intended-application":"text-mining"},{"URL":"https:\/\/journals.sagepub.com\/doi\/pdf\/10.1177\/10784535251362893","content-type":"unspecified","content-version":"vor","intended-application":"similarity-checking"}],"deposited":{"date-parts":[[2026,4,28]],"date-time":"2026-04-28T15:56:35Z","timestamp":1777391795000},"score":1,"resource":{"primary":{"URL":"https:\/\/journals.sagepub.com\/doi\/10.1177\/10784535251362893"}},"subtitle":[],"short-title":[],"issued":{"date-parts":[[2025,7,29]]},"references-count":20,"journal-issue":{"issue":"4","published-print":{"date-parts":[[2025,11]]}},"alternative-id":["10.1177\/10784535251362893"],"URL":"https:\/\/doi.org\/10.1177\/10784535251362893","relation":{},"ISSN":["1078-4535","1946-1895"],"issn-type":[{"value":"1078-4535","type":"print"},{"value":"1946-1895","type":"electronic"}],"subject":[],"published":{"date-parts":[[2025,7,29]]}}}