{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2026,7,9]],"date-time":"2026-07-09T18:13:56Z","timestamp":1783620836872,"version":"3.55.0"},"reference-count":41,"publisher":"SAGE Publications","issue":"4","license":[{"start":{"date-parts":[[2025,12,12]],"date-time":"2025-12-12T00:00:00Z","timestamp":1765497600000},"content-version":"vor","delay-in-days":0,"URL":"https:\/\/creativecommons.org\/licenses\/by-nc\/4.0\/"},{"start":{"date-parts":[[2025,12,12]],"date-time":"2025-12-12T00:00:00Z","timestamp":1765497600000},"content-version":"tdm","delay-in-days":0,"URL":"https:\/\/journals.sagepub.com\/page\/policies\/text-and-data-mining-license"}],"funder":[{"DOI":"10.13039\/100000867","name":"Robert Wood Johnson Foundation","doi-asserted-by":"crossref","id":[{"id":"10.13039\/100000867","id-type":"DOI","asserted-by":"crossref"}]},{"DOI":"10.13039\/100000049","name":"National Institute on Aging","doi-asserted-by":"crossref","award":["K23AG066930"],"award-info":[{"award-number":["K23AG066930"]}],"id":[{"id":"10.13039\/100000049","id-type":"DOI","asserted-by":"crossref"}]}],"content-domain":{"domain":["journals.sagepub.com"],"crossmark-restriction":true},"short-container-title":["Journal of Palliative Medicine"],"published-print":{"date-parts":[[2026,4,1]]},"abstract":"<jats:sec>\n                    <jats:title>Background:<\/jats:title>\n                    <jats:p>The Latino community is at high risk for developing dementia. Palliative care can support family caregivers of people living with dementia (PLWD).<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Objectives:<\/jats:title>\n                    <jats:p>To explore the experiences of New York City (NYC) Latino family caregivers of PLWD and identify implications for palliative care.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Design:<\/jats:title>\n                    <jats:p>We conducted qualitative interviews from June to November 2024 with Latino family caregivers of PLWD. Caregivers were recruited from a single NYC health system. We asked open-ended questions exploring caregivers\u2019 experiences with dementia, palliative care, and culture. Interviews were recorded, transcribed, and analyzed using thematic analysis with deductive and inductive coding.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Results:<\/jats:title>\n                    <jats:p>Nineteen Latino family caregivers participated. Four interviews were conducted in Spanish and caregivers represented five countries of origin. We identified four themes related to palliative care for Latino family caregivers of PLWD. Caregivers Have a Limited Awareness of Palliative Care (Theme 1) was the backdrop of all other themes. Caregiving Is a Labor of Love (Theme 2) describes caregiving challenges, and Caregiving Is an Act of Strength and Resilience (Theme 3) describes how caregivers summarized their sources of support and needs. Integrating Cultural Values into Caregiving (Theme 4) provided a lens to better understand Latino caregivers\u2019 unique experiences.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Conclusions:<\/jats:title>\n                    <jats:p>Despite describing unmet needs, caregivers were not familiar with palliative care. In the presence of Latino cultural values, caregivers may underestimate all they do and not seek additional support. Palliative care should be introduced as a supportive service to equip families in taking care of their loved ones as they would want.<\/jats:p>\n                  <\/jats:sec>","DOI":"10.1177\/10966218251405964","type":"journal-article","created":{"date-parts":[[2025,12,23]],"date-time":"2025-12-23T08:57:47Z","timestamp":1766480267000},"page":"464-472","update-policy":"https:\/\/doi.org\/10.1177\/sage-journals-update-policy","source":"Crossref","is-referenced-by-count":0,"title":["Experiences of Latino Family Caregivers in New York City: Implications for Palliative Care"],"prefix":"10.1177","volume":"29","author":[{"ORCID":"https:\/\/orcid.org\/0000-0002-7173-6627","authenticated-orcid":false,"given":"Leah V.","family":"Estrada","sequence":"first","affiliation":[{"name":"Icahn School of Medicine at Mount Sinai, New York, New York, USA."},{"name":"Center for Nursing Research and Innovation, The Mount Sinai Hospital, New York, New York, USA."}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Sasha","family":"Perez-Greenemeier","sequence":"additional","affiliation":[{"name":"Icahn School of Medicine at Mount Sinai, New York, New York, USA."},{"name":"College of Nursing, University of Utah, Salt Lake City, Utah, USA."}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Yadira","family":"Montoya","sequence":"additional","affiliation":[{"name":"National Alliance for Caregiving, Washington, District of Columbia, USA."}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Nathan E.","family":"Goldstein","sequence":"additional","affiliation":[{"name":"Department of Medicine, Geisel School of Medicine, Hanover, New Hampshire, USA."},{"name":"Dartmouth Health, Lebanon, New Hampshire, USA."}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Albert L.","family":"Siu","sequence":"additional","affiliation":[{"name":"Icahn School of Medicine at Mount Sinai, New York, New York, USA."},{"name":"James J. Peters VA, Bronx, New York, USA."}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Jennifer M.","family":"Reckrey","sequence":"additional","affiliation":[{"name":"Department of Medicine, NYU Grossman School of Medicine, New York, New York, USA."}],"role":[{"vocabulary":"crossref","role":"author"}]}],"member":"179","published-online":{"date-parts":[[2025,12,12]]},"reference":[{"key":"e_1_3_3_2_2","unstructured":"World Health Organization. Dementia. Available from: https:\/\/www.who.int\/news-room\/fact-sheets\/detail\/dementia#:\u223c:text=Key%20facts nearly%2010%20million%20new%20cases [Last accessed: February11 2025]."},{"key":"e_1_3_3_3_2","doi-asserted-by":"publisher","DOI":"10.1056\/NEJMc1509349"},{"key":"e_1_3_3_4_2","doi-asserted-by":"publisher","DOI":"10.1186\/s13584-019-0304-x"},{"key":"e_1_3_3_5_2","doi-asserted-by":"publisher","DOI":"10.1111\/jgs.15528"},{"key":"e_1_3_3_6_2","doi-asserted-by":"publisher","DOI":"10.1136\/bmjopen-2017-021147"},{"key":"e_1_3_3_7_2","doi-asserted-by":"publisher","DOI":"10.1002\/alz.13809"},{"key":"e_1_3_3_8_2","doi-asserted-by":"publisher","DOI":"10.1186\/s12877-024-05323-4"},{"key":"e_1_3_3_9_2","doi-asserted-by":"publisher","DOI":"10.1177\/07334648221084998"},{"key":"e_1_3_3_10_2","doi-asserted-by":"publisher","DOI":"10.1016\/j.socscimed.2020.113026"},{"key":"e_1_3_3_11_2","doi-asserted-by":"publisher","DOI":"10.1093\/geront\/gnad011"},{"key":"e_1_3_3_12_2","doi-asserted-by":"publisher","DOI":"10.1111\/jgs.70138"},{"key":"e_1_3_3_13_2","doi-asserted-by":"publisher","DOI":"10.1097\/AJN.0000000000000104"},{"key":"e_1_3_3_14_2","doi-asserted-by":"publisher","DOI":"10.1177\/2332649217708798"},{"key":"e_1_3_3_15_2","doi-asserted-by":"publisher","DOI":"10.1016\/j.socscimed.2011.12.037"},{"key":"e_1_3_3_16_2","doi-asserted-by":"publisher","DOI":"10.1136\/bmjgh-2019-001938"},{"key":"e_1_3_3_17_2","doi-asserted-by":"publisher","DOI":"10.1001\/jamanetworkopen.2024.9312"},{"key":"e_1_3_3_18_2","doi-asserted-by":"publisher","DOI":"10.1007\/s10823-021-09432-0"},{"key":"e_1_3_3_19_2","doi-asserted-by":"publisher","DOI":"10.1177\/1043659604273547"},{"key":"e_1_3_3_20_2","doi-asserted-by":"publisher","DOI":"10.1089\/jpm.2021.0416"},{"key":"e_1_3_3_21_2","doi-asserted-by":"publisher","DOI":"10.1089\/jpm.2013.9468"},{"key":"e_1_3_3_22_2","doi-asserted-by":"publisher","DOI":"10.1002\/trc2.12389"},{"key":"e_1_3_3_23_2","unstructured":"Office of the New York State Comptroller. Older adults in New York City: Demographic and Service Trends. 2025. Available from: https:\/\/www.osc.ny.gov\/files\/press\/pdf\/report-22-2025.pdf [Last accessed: October28 2025]."},{"key":"e_1_3_3_24_2","unstructured":"United States Census Bureau. QuickFacts Bronx County NY. Available from: https:\/\/www.census.gov\/quickfacts\/fact\/table\/bronxcountynewyork\/PST045223 [Last accessed: July10 2025]."},{"key":"e_1_3_3_25_2","doi-asserted-by":"publisher","DOI":"10.1002\/alz.13081"},{"key":"e_1_3_3_26_2","doi-asserted-by":"publisher","DOI":"10.1017\/S147895151300028X"},{"key":"e_1_3_3_27_2","doi-asserted-by":"publisher","DOI":"10.1177\/1609406917733847"},{"key":"e_1_3_3_28_2","volume-title":"Dedoose Version 9.2.22, Cloud Application for Managing, Analyzing, and Presenting Qualitative and Mixed Method Research Data","author":"SocioCultural Research Consultants L","year":"2025","unstructured":"SocioCultural Research Consultants L. Dedoose Version 9.2.22, Cloud Application for Managing, Analyzing, and Presenting Qualitative and Mixed Method Research Data. SocioCultural Research Consultants L: Los Angeles, CA; 2025."},{"key":"e_1_3_3_29_2","doi-asserted-by":"publisher","DOI":"10.3928\/00989134-20151124-03"},{"key":"e_1_3_3_30_2","doi-asserted-by":"publisher","DOI":"10.1016\/j.jamda.2022.04.010"},{"key":"e_1_3_3_31_2","doi-asserted-by":"publisher","DOI":"10.1093\/geronb\/gbu114"},{"key":"e_1_3_3_32_2","doi-asserted-by":"publisher","DOI":"10.1177\/0164027512469213"},{"key":"e_1_3_3_33_2","doi-asserted-by":"publisher","DOI":"10.1080\/07399330903141252"},{"key":"e_1_3_3_34_2","doi-asserted-by":"publisher","DOI":"10.1007\/s11606-020-05730-4"},{"key":"e_1_3_3_35_2","doi-asserted-by":"publisher","DOI":"10.5152\/fnjn.2024.23058"},{"key":"e_1_3_3_36_2","doi-asserted-by":"publisher","DOI":"10.1186\/s12904-024-01480-w"},{"key":"e_1_3_3_37_2","volume-title":"Caregiving in the United States 2020","author":"AARP and National Alliance for Caregiving","year":"2020","unstructured":"AARP and National Alliance for Caregiving. Caregiving in the United States 2020. AARP: Washington, DC; 2020."},{"key":"e_1_3_3_38_2","unstructured":"National Alliance for Caregiving Alzheimer\u2019s Association. Dementia Caregiving in the U.S.: Research Recommendations. National Alliance for Caregiving; 2017. Available from: https:\/\/aspe.hhs.gov\/sites\/default\/files\/migrated_legacy_files\/\/178426\/DementiaCaregivingPreSummit.pdf [Last accessed: April1 2025]."},{"key":"e_1_3_3_39_2","doi-asserted-by":"publisher","DOI":"10.1177\/07334648231163430"},{"key":"e_1_3_3_40_2","unstructured":"Administration for Community Living. 2024 Report to Congress: Progress Report: Federal Implementation of the 2022 National Strategy to Support Family Caregivers. U.S. Department of Health and Human Services; 2024. Available from: https:\/\/acl.gov\/sites\/default\/files\/2024ProgressReport_StrategyToSupportCaregivers.pdf [Last accessed: April1 2025]."},{"key":"e_1_3_3_41_2","unstructured":"National Alliance for Caregiving. Policy Brief: How the 2024 Medicare Physician Fee Schedule Advances Supports for Family Caregivers. 2023. Available from: https:\/\/www.actonraise.org\/wp-content\/uploads\/2023\/12\/NAC_Physician-Fee-Rule-Briefing_120723.pdf [Last accessed: April1 2025]."},{"key":"e_1_3_3_42_2","unstructured":"Centers for Medicare & Medicaid Services. Guiding an Improved Dementia Experience (GUIDE) Model. Available from: https:\/\/www.cms.gov\/priorities\/innovation\/innovation-models\/guide [Last accessed: April1 2025]."}],"container-title":["Journal of Palliative Medicine"],"original-title":[],"language":"en","link":[{"URL":"https:\/\/journals.sagepub.com\/doi\/full-xml\/10.1177\/10966218251405964","content-type":"application\/xml","content-version":"vor","intended-application":"text-mining"},{"URL":"https:\/\/journals.sagepub.com\/doi\/pdf\/10.1177\/10966218251405964","content-type":"application\/pdf","content-version":"vor","intended-application":"text-mining"},{"URL":"https:\/\/journals.sagepub.com\/doi\/pdf\/10.1177\/10966218251405964","content-type":"unspecified","content-version":"vor","intended-application":"similarity-checking"}],"deposited":{"date-parts":[[2026,7,9]],"date-time":"2026-07-09T17:26:55Z","timestamp":1783618015000},"score":1,"resource":{"primary":{"URL":"https:\/\/journals.sagepub.com\/doi\/10.1177\/10966218251405964"}},"subtitle":[],"short-title":[],"issued":{"date-parts":[[2025,12,12]]},"references-count":41,"journal-issue":{"issue":"4","published-print":{"date-parts":[[2026,4,1]]}},"alternative-id":["10.1177\/10966218251405964"],"URL":"https:\/\/doi.org\/10.1177\/10966218251405964","relation":{},"ISSN":["1096-6218","1557-7740"],"issn-type":[{"value":"1096-6218","type":"print"},{"value":"1557-7740","type":"electronic"}],"subject":[],"published":{"date-parts":[[2025,12,12]]}}}