{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2026,7,21]],"date-time":"2026-07-21T08:03:03Z","timestamp":1784620983040,"version":"3.55.0"},"reference-count":33,"publisher":"SAGE Publications","issue":"7","license":[{"start":{"date-parts":[[2026,3,18]],"date-time":"2026-03-18T00:00:00Z","timestamp":1773792000000},"content-version":"tdm","delay-in-days":0,"URL":"https:\/\/journals.sagepub.com\/page\/policies\/text-and-data-mining-license"}],"funder":[{"name":"Eunice Kennedy Shriver National Institute of Child Health and Human Development","award":["K23HD107232"],"award-info":[{"award-number":["K23HD107232"]}]}],"content-domain":{"domain":["journals.sagepub.com"],"crossmark-restriction":true},"short-container-title":["Journal of Palliative Medicine"],"published-print":{"date-parts":[[2026,7,1]]},"abstract":"<jats:sec>\n                    <jats:title>Background:<\/jats:title>\n                    <jats:p>Children with severe neurological impairment (SNI) and their families face many challenges in the hospital setting, where there is limited time to understand the child\u2019s full quality of life. Photo-narratives use images to share personal perspectives and may facilitate understanding between families of children with SNI and clinicians.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Objective:<\/jats:title>\n                    <jats:p>This study aimed to examine the potential impact of photo-narratives in the inpatient setting.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Design:<\/jats:title>\n                    <jats:p>Semi-structured audio-recorded interviews were completed with parents after their child\u2019s recent hospitalization, as well as with clinicians involved in their child\u2019s care.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Setting\/Subjects:<\/jats:title>\n                    <jats:p>Parents of children with SNI and clinicians at a single U.S. children\u2019s hospital.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Measurements:<\/jats:title>\n                    <jats:p>In the first part of the interviews, parents discussed their child\u2019s hospital care. In the second part, they created a photo-narrative for their child and discussed its potential impact. Photo-narratives were then viewed by the child\u2019s clinicians during similarly structured interviews. Data were analyzed by a multidisciplinary research team using thematic analysis.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Results:<\/jats:title>\n                    <jats:p>A total of 56 participants included 27 parents (23 [85%] mothers and 4 [15%] fathers) and 29 multidisciplinary clinicians. Forty-five percent of parents self-identified as having a minoritized racial\/ethnic background. Clinicians included 12 (41%) attendings, 10 (35%) nurses, 5 (17%) medical trainees, and 2 (7%) respiratory therapists. Before creating the photo-narrative, themes focused on clinicians\u2019 limited perspectives and assumptions. Themes after the photo-narrative focused on its use for medical\/developmental applications, understanding the child\u2019s full life, and catalyzing humanistic care.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Conclusion:<\/jats:title>\n                    <jats:p>Photo-narratives have the potential to promote humanistic care among parents of children with SNI and inpatient clinicians.<\/jats:p>\n                  <\/jats:sec>","DOI":"10.1177\/10966218261433448","type":"journal-article","created":{"date-parts":[[2026,3,18]],"date-time":"2026-03-18T16:48:01Z","timestamp":1773852481000},"page":"861-871","update-policy":"https:\/\/doi.org\/10.1177\/sage-journals-update-policy","source":"Crossref","is-referenced-by-count":0,"title":["The Qualitative Impact of Incorporating Photo-Narratives into the Care of Children with Severe Neurological Impairment: Parent and Clinician Perspectives"],"prefix":"10.1177","volume":"29","author":[{"given":"Ellie","family":"Oslin","sequence":"first","affiliation":[{"name":"Treuman Katz Center for Pediatric Bioethics and Palliative Care, Seattle Children\u2019s Research Institute, Seattle, Washington, USA."}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Nell E.","family":"Baumgarten","sequence":"additional","affiliation":[{"name":"University of Washington School of Medicine, Seattle, Washington, USA."}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Elizabeth","family":"Julian","sequence":"additional","affiliation":[{"name":"Seattle Children\u2019s Hospital, Seattle, Washington, USA."}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Annie","family":"McDermott","sequence":"additional","affiliation":[{"name":"Seattle Children\u2019s Hospital, Seattle, Washington, USA."}],"role":[{"vocabulary":"crossref","role":"author"}]},{"ORCID":"https:\/\/orcid.org\/0000-0002-5488-4505","authenticated-orcid":false,"given":"Jori","family":"Bogetz","sequence":"additional","affiliation":[{"name":"Treuman Katz Center for Pediatric Bioethics and Palliative Care, Seattle Children\u2019s Research Institute, Seattle, Washington, USA."},{"name":"Division of Bioethics and Palliative Care, Department of Pediatrics, University of Washington School of Medicine, Washington, USA."}],"role":[{"vocabulary":"crossref","role":"author"}]}],"member":"179","published-online":{"date-parts":[[2026,3,18]]},"reference":[{"key":"e_1_3_3_2_1","doi-asserted-by":"publisher","DOI":"10.1371\/journal.pmed.1001158"},{"key":"e_1_3_3_3_1","doi-asserted-by":"publisher","DOI":"10.1001\/jamapediatrics.2019.2672"},{"key":"e_1_3_3_4_1","doi-asserted-by":"publisher","DOI":"10.1016\/j.ejpn.2020.09.001"},{"key":"e_1_3_3_5_1","doi-asserted-by":"publisher","DOI":"10.1002\/jhm.13019"},{"key":"e_1_3_3_6_1","doi-asserted-by":"publisher","DOI":"10.1016\/j.jpainsymman.2021.06.011"},{"key":"e_1_3_3_7_1","doi-asserted-by":"publisher","DOI":"10.1111\/dmcn.15870"},{"key":"e_1_3_3_8_1","doi-asserted-by":"publisher","DOI":"10.1097\/01.NAJ.0000919712.93900.29"},{"key":"e_1_3_3_9_1","doi-asserted-by":"publisher","DOI":"10.1111\/dmcn.15987"},{"key":"e_1_3_3_10_1","doi-asserted-by":"publisher","DOI":"10.1542\/peds.2021-056150C"},{"key":"e_1_3_3_11_1","doi-asserted-by":"publisher","DOI":"10.1542\/peds.2023-063424B"},{"key":"e_1_3_3_12_1","doi-asserted-by":"publisher","DOI":"10.1542\/peds.2023-063424F"},{"key":"e_1_3_3_13_1","doi-asserted-by":"publisher","DOI":"10.1089\/jwh.1999.8.185"},{"key":"e_1_3_3_14_1","doi-asserted-by":"publisher","DOI":"10.1089\/jpm.2022.0161"},{"key":"e_1_3_3_15_1","doi-asserted-by":"publisher","DOI":"10.1080\/01639625.2017.1407109"},{"key":"e_1_3_3_16_1","doi-asserted-by":"publisher","DOI":"10.1111\/birt.12499"},{"key":"e_1_3_3_17_1","doi-asserted-by":"publisher","DOI":"10.1177\/15248399211062902"},{"key":"e_1_3_3_18_1","doi-asserted-by":"publisher","DOI":"10.1016\/j.jpainsymman.2024.11.021"},{"key":"e_1_3_3_19_1","doi-asserted-by":"publisher","DOI":"10.1093\/intqhc\/mzm042"},{"key":"e_1_3_3_20_1","doi-asserted-by":"publisher","DOI":"10.1177\/1049732316665344"},{"key":"e_1_3_3_21_1","unstructured":"20.Dedoose. 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