{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2026,7,21]],"date-time":"2026-07-21T08:03:17Z","timestamp":1784620997095,"version":"3.55.0"},"reference-count":15,"publisher":"SAGE Publications","issue":"7","license":[{"start":{"date-parts":[[2026,3,25]],"date-time":"2026-03-25T00:00:00Z","timestamp":1774396800000},"content-version":"tdm","delay-in-days":0,"URL":"https:\/\/journals.sagepub.com\/page\/policies\/text-and-data-mining-license"}],"content-domain":{"domain":["journals.sagepub.com"],"crossmark-restriction":true},"short-container-title":["Journal of Palliative Medicine"],"published-print":{"date-parts":[[2026,7,1]]},"abstract":"<jats:sec>\n                    <jats:title>Background:<\/jats:title>\n                    <jats:p>Palliative care interventions for children with serious illness require real-world design expertise to bring research to the bedside in ways that are engaging, effective, and feasible.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Objective:<\/jats:title>\n                    <jats:p>To describe the collaborative process of bringing an evidence-based humanistic care intervention, photo-narratives, through practical user experience (UX) design for future implementation at a children\u2019s hospital.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Methods:<\/jats:title>\n                    <jats:p>The collaborative design process was completed at an academic university. Researchers at the affiliated children\u2019s hospital approached two teams of UX design graduate students to (1) further refine and (2) develop a technology-integrated implementation strategy for the photo-narrative intervention.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Results:<\/jats:title>\n                    <jats:p>The researchers and teams met weekly to follow a project-specific seven-step UX design approach, including (1) framing project timeline and deliverables, (2) regulatory and access considerations, (3) understanding the problem and intervention, (4) data collection, (5) design constraints (information technology considerations, workflow), (6) low-fidelity prototyping, and (7) usability testing and high-fidelity prototyping.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Conclusion:<\/jats:title>\n                    <jats:p>Collaboration between researchers and UX design teams can further the critical intervention design and prototyping that is essential to implementing successful real-world palliative care interventions.<\/jats:p>\n                  <\/jats:sec>","DOI":"10.1177\/10966218261434133","type":"journal-article","created":{"date-parts":[[2026,3,26]],"date-time":"2026-03-26T06:30:33Z","timestamp":1774506633000},"page":"880-886","update-policy":"https:\/\/doi.org\/10.1177\/sage-journals-update-policy","source":"Crossref","is-referenced-by-count":0,"title":["Leveraging User Experience Design Expertise in Palliative Care Intervention Science"],"prefix":"10.1177","volume":"29","author":[{"ORCID":"https:\/\/orcid.org\/0009-0003-9137-5149","authenticated-orcid":false,"given":"Caitlin N.","family":"Hawley","sequence":"first","affiliation":[{"name":"Treuman Katz Center for Pediatric Bioethics and Palliative Care, Seattle Children\u2019s Research Institute, Seattle, Washington, USA."}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Natasha","family":"Alcantra","sequence":"additional","affiliation":[{"name":"Human Centered Design &amp; Engineering, University of Washington, Seattle, Washington, USA."}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Carolyn","family":"Chen","sequence":"additional","affiliation":[{"name":"Human Centered Design &amp; Engineering, University of Washington, Seattle, Washington, USA."}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Yanlin","family":"Feng","sequence":"additional","affiliation":[{"name":"Human Centered Design &amp; Engineering, University of Washington, Seattle, Washington, USA."}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Karlton","family":"Lattimore","sequence":"additional","affiliation":[{"name":"Human Centered Design &amp; Engineering, University of Washington, Seattle, Washington, USA."}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Sua","family":"Oh","sequence":"additional","affiliation":[{"name":"Human Centered Design &amp; Engineering, University of Washington, Seattle, Washington, USA."}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Bhoomika","family":"Rajeeva","sequence":"additional","affiliation":[{"name":"Human Centered Design &amp; Engineering, University of Washington, Seattle, Washington, USA."}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Flynn Ian","family":"Robinson","sequence":"additional","affiliation":[{"name":"Human Centered Design &amp; Engineering, University of Washington, Seattle, Washington, USA."}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Motolani","family":"Shenbanjo","sequence":"additional","affiliation":[{"name":"Human Centered Design &amp; Engineering, University of Washington, Seattle, Washington, USA."}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Ellie","family":"Oslin","sequence":"additional","affiliation":[{"name":"Department of Clinical Psychology, University of Wisconsin-Milwaukee, Milwaukee, Wisconsin, USA."}],"role":[{"vocabulary":"crossref","role":"author"}]},{"ORCID":"https:\/\/orcid.org\/0000-0002-5488-4505","authenticated-orcid":false,"given":"Jori","family":"Bogetz","sequence":"additional","affiliation":[{"name":"Treuman Katz Center for Pediatric Bioethics and Palliative Care, Seattle Children\u2019s Research Institute, Seattle, Washington, USA."},{"name":"Department of Pediatrics, Division of Bioethics and Palliative Care, University of Washington School of Medicine, Seattle, Washington, USA."}],"role":[{"vocabulary":"crossref","role":"author"}]}],"member":"179","published-online":{"date-parts":[[2026,3,25]]},"reference":[{"key":"e_1_3_3_2_1","volume-title":"Engineering a Learning Healthcare System: A Look at the Future: Workshop Summary","author":"Institute of Medicine (US) and National Academy of Engineering (US) Roundtable on Value & Science-Driven Health Care","year":"2011","unstructured":"1.Institute of Medicine (US) and National Academy of Engineering (US) Roundtable on Value & Science-Driven Health Care. 3. Healthcare System Complexities, Impediments, and Failures. In: Engineering a Learning Healthcare System: A Look at the Future: Workshop Summary. National Academies Press: Washington, DC; 2011. 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