{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2026,8,19]],"date-time":"2026-08-19T15:26:15Z","timestamp":1787153175779,"version":"build-2736575974"},"reference-count":35,"publisher":"SAGE Publications","issue":"9","license":[{"start":{"date-parts":[[2026,5,12]],"date-time":"2026-05-12T00:00:00Z","timestamp":1778544000000},"content-version":"tdm","delay-in-days":0,"URL":"https:\/\/journals.sagepub.com\/page\/policies\/text-and-data-mining-license"}],"funder":[{"name":"University of Washington Housestaff Quality and Safety Committee Funding","award":["N\/A"],"award-info":[{"award-number":["N\/A"]}]}],"content-domain":{"domain":["journals.sagepub.com"],"crossmark-restriction":true},"short-container-title":["Journal of Palliative Medicine"],"published-print":{"date-parts":[[2026,9,1]]},"abstract":"<jats:sec>\n                    <jats:title>Background:<\/jats:title>\n                    <jats:p>Residents lack confidence caring for children with severe neurological impairment (SNI). The novel personal history tool, SHINE (Self, Happy, Ill, Names, and Extra), was codeveloped by families and residents to strengthen residents\u2019 confidence in connecting with children with SNI and their families.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Objectives:<\/jats:title>\n                    <jats:p>To describe SHINE\u2019s use among residents and its impact on residents\u2019 burnout, meaningful work, and confidence in caring for children with SNI.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Methods:<\/jats:title>\n                    <jats:p>Residents at an academic children\u2019s hospital in the United States received small-group teaching on the use of SHINE. Participants completed baseline, one-, and three-month post-intervention surveys, which included resident demographics; self-reported tool use; and resident burnout, meaningful work, and confidence in caring for children with SNI. Data were analyzed descriptively and using Pearson\u2019s chi-square tests.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Results:<\/jats:title>\n                    <jats:p>\n                      Briefly, 88% (\n                      <jats:italic toggle=\"yes\">n<\/jats:italic>\n                      = 37\/42) of eligible residents participated (25 interns [67%], 12 senior residents [32%]). After one month, respondents reported they found the tool helpful\/very helpful (\n                      <jats:italic toggle=\"yes\">n<\/jats:italic>\n                      = 11, 92%), were likely\/very likely to continue using it (\n                      <jats:italic toggle=\"yes\">n<\/jats:italic>\n                      = 11, 92%), and recommended it to future residents (\n                      <jats:italic toggle=\"yes\">n<\/jats:italic>\n                      = 16, 100%). At baseline, residents reported low confidence caring for children with SNI (mean = 2.08, standard deviation (SD) : 0.84 on a 1 = low to 4 = high Likert scale). After one month, respondents reported improvements in (1) understanding the nonmedical needs of patients (mean increase: 0.71, SD: 0.85,\n                      <jats:italic toggle=\"yes\">p<\/jats:italic>\n                      value = 0.006) and (2) understanding life outside the hospital (mean increase: 0.94, SD: 0.87,\n                      <jats:italic toggle=\"yes\">p<\/jats:italic>\n                      value = 0.003). Respondents reporting higher use of the tool experienced larger gains. No significant differences were seen in burnout or meaningful work.\n                    <\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Conclusion:<\/jats:title>\n                    <jats:p>SHINE may improve resident self-reported confidence in caring for children with SNI.<\/jats:p>\n                  <\/jats:sec>","DOI":"10.1177\/10966218261449882","type":"journal-article","created":{"date-parts":[[2026,5,13]],"date-time":"2026-05-13T04:18:18Z","timestamp":1778645898000},"page":"1228-1239","update-policy":"https:\/\/doi.org\/10.1177\/sage-journals-update-policy","source":"Crossref","is-referenced-by-count":0,"title":["Connecting Residents and Children with Severe Neurological Impairment Using a Novel Personal History Tool"],"prefix":"10.1177","volume":"29","author":[{"ORCID":"https:\/\/orcid.org\/0000-0003-0908-9171","authenticated-orcid":false,"given":"P. Anne","family":"Weisner","sequence":"first","affiliation":[{"name":"Mary Bridge Children\u2019s Hospital, Tacoma, Washington, USA."}],"role":[{"vocabulary":"crossref","role":"author"}]},{"ORCID":"https:\/\/orcid.org\/0000-0001-9190-0263","authenticated-orcid":false,"given":"Amy","family":"Xia","sequence":"additional","affiliation":[{"name":"Division of Comfort and Palliative Care, Department of Anesthesia Critical Care Medicine, Children\u2019s Hospital Los Angeles, Los Angeles, California, USA."}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Dilara","family":"Onur","sequence":"additional","affiliation":[{"name":"Department of Pediatric Nephrology, University of Washington School of Medicine, Seattle, Washington, USA."}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Isabella","family":"Dahlgren","sequence":"additional","affiliation":[{"name":"Division of Complex and Palliative Care, Department of Pediatrics, UT Health San Antonio, San Antonio, Texas, USA."}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Kirsten","family":"Wilhelm","sequence":"additional","affiliation":[{"name":"Department of Pediatric Neurology, Corewell Health; Michigan State University, Grand Rapids, Michigan, USA."}],"role":[{"vocabulary":"crossref","role":"author"}]},{"ORCID":"https:\/\/orcid.org\/0000-0002-5488-4505","authenticated-orcid":false,"given":"Jori F.","family":"Bogetz","sequence":"additional","affiliation":[{"name":"Division of Bioethics and Palliative Care, Department of Pediatrics, University of Washington School of Medicine, Seattle Washington, USA."},{"name":"Treuman Katz Center, Seattle Children\u2019s Hospital and Research Institute, Seattle, Washington, USA."}],"role":[{"vocabulary":"crossref","role":"author"}]}],"member":"179","published-online":{"date-parts":[[2026,5,12]]},"reference":[{"key":"e_1_3_3_2_1","doi-asserted-by":"publisher","DOI":"10.1016\/j.jpainsymman.2021.06.011"},{"key":"e_1_3_3_3_1","doi-asserted-by":"publisher","DOI":"10.1186\/s12913-021-06304-8"},{"key":"e_1_3_3_4_1","doi-asserted-by":"publisher","DOI":"10.1177\/08830738251340268"},{"key":"e_1_3_3_5_1","doi-asserted-by":"publisher","DOI":"10.1016\/j.ejpn.2020.09.001"},{"key":"e_1_3_3_6_1","doi-asserted-by":"publisher","DOI":"10.1111\/dmcn.14294"},{"key":"e_1_3_3_7_1","doi-asserted-by":"publisher","DOI":"10.1179\/1743291X12Y.0000000032"},{"key":"e_1_3_3_8_1","doi-asserted-by":"publisher","DOI":"10.1542\/peds.2017-1002"},{"key":"e_1_3_3_9_1","doi-asserted-by":"publisher","DOI":"10.1089\/jpm.2021.0344"},{"key":"e_1_3_3_10_1","doi-asserted-by":"publisher","DOI":"10.1016\/j.dhjo.2024.101691"},{"key":"e_1_3_3_11_1","doi-asserted-by":"publisher","DOI":"10.1542\/peds.2022-060975"},{"key":"e_1_3_3_12_1","doi-asserted-by":"publisher","DOI":"10.1111\/dmcn.15870"},{"key":"e_1_3_3_13_1","doi-asserted-by":"publisher","DOI":"10.1089\/jpm.2023.0683"},{"key":"e_1_3_3_14_1","doi-asserted-by":"publisher","DOI":"10.1016\/j.acap.2015.08.004"},{"key":"e_1_3_3_15_1","doi-asserted-by":"publisher","DOI":"10.1097\/PHM.0b013e3181ec9936"},{"key":"e_1_3_3_16_1","doi-asserted-by":"publisher","DOI":"10.1542\/hpeds.2021-006316"},{"key":"e_1_3_3_17_1","doi-asserted-by":"publisher","DOI":"10.1177\/0009922814564050"},{"key":"e_1_3_3_18_1","doi-asserted-by":"publisher","DOI":"10.1016\/j.acap.2014.02.012"},{"key":"e_1_3_3_19_1","doi-asserted-by":"publisher","DOI":"10.1016\/j.acap.2014.06.004"},{"key":"e_1_3_3_20_1","doi-asserted-by":"publisher","DOI":"10.1001\/jamanetworkopen.2020.10337"},{"key":"e_1_3_3_21_1","doi-asserted-by":"publisher","DOI":"10.1089\/jpm.2020.0633"},{"key":"e_1_3_3_22_1","doi-asserted-by":"publisher","DOI":"10.1542\/peds.2011-2623"},{"key":"e_1_3_3_23_1","unstructured":"22.REDCap. 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