{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2026,10,12]],"date-time":"2026-10-12T19:16:48Z","timestamp":1791832608733,"version":"4.3.4"},"reference-count":29,"publisher":"SAGE Publications","issue":"6","license":[{"start":{"date-parts":[[2025,1,29]],"date-time":"2025-01-29T00:00:00Z","timestamp":1738108800000},"content-version":"tdm","delay-in-days":0,"URL":"https:\/\/journals.sagepub.com\/page\/policies\/text-and-data-mining-license"}],"funder":[{"name":"University of Strathclyde Doctoral Program"}],"content-domain":{"domain":["journals.sagepub.com"],"crossmark-restriction":true},"short-container-title":["J Vasc Access"],"published-print":{"date-parts":[[2025,11]]},"abstract":"<jats:sec>\n                    <jats:title>Background:<\/jats:title>\n                    <jats:p>The information and decision support needs required to embed a patient-centred strategy are challenging, as several haemodialysis vascular access strategies are possible with significant differences in short- and long-term outcomes of potential treatment options. We aimed to explore and describe stakeholder perspectives on information needs when making decisions about vascular access (VA) for haemodialysis.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Methods:<\/jats:title>\n                    <jats:p>We performed thematic analysis of seven (six online, one in person) focus group discussions including transcripts, post-it phrases and text responses with 14 patients and 12 vascular access professionals (four nephrologists, three surgeons and five nurses \u2013 Vascular access nurse specialists\/Education and dialysis nurses) who participated in at total of six online and one in person focus group.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Results:<\/jats:title>\n                    <jats:p>All patients had experience of haemodialysis and 50% had experience with at least one other modality of RRT. Ten patients had experience of more than one VA modality and 4\/14 had experience of AVG, 13\/14 had experience of AVF and 8\/14 had experience of TCVC. We identified four semantic themes and two latent themes. The themes and their subthemes reflected information needs of patients when making vascular access decisions: Knowledge, Risks and Benefits of Relevant options, long-term treatment strategy and Personal Impact of VA. The latent themes, identified across all stakeholders, were of the need for consistent and trustworthy information.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Discussion:<\/jats:title>\n                    <jats:p>All recent vascular access guidelines propose a shared decision-making approach to vascular access. The ability to implement this in practice carries an information need for both patients and clinicians. This study describes a framework model which can be applied during co-design and assessment of vascular access educational resources to facilitate a patient centred perspective.<\/jats:p>\n                  <\/jats:sec>","DOI":"10.1177\/11297298251314792","type":"journal-article","created":{"date-parts":[[2025,1,29]],"date-time":"2025-01-29T14:04:28Z","timestamp":1738159468000},"page":"1979-1989","update-policy":"https:\/\/doi.org\/10.1177\/sage-journals-update-policy","source":"Crossref","is-referenced-by-count":3,"title":["Information needs in vascular access decision-making: A qualitative study of patient and clinical stakeholder perspectives"],"prefix":"10.1177","volume":"26","author":[{"ORCID":"https:\/\/orcid.org\/0000-0002-2170-511X","authenticated-orcid":false,"given":"Karen","family":"Stevenson","sequence":"first","affiliation":[{"name":"Glasgow Renal and Transplant Unit, Queen Elizabeth University Hospital, Glasgow, UK"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"ORCID":"https:\/\/orcid.org\/0000-0002-7713-9794","authenticated-orcid":false,"given":"Ramsay","family":"Meiklem","sequence":"additional","affiliation":[{"name":"Department of Computing Science, University of Strathclyde, Glasgow, UK"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Matt-Mouley","family":"Bouamrane","sequence":"additional","affiliation":[{"name":"Division of Computing Science and Mathematics, University of Stirling, Stirling, UK"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"ORCID":"https:\/\/orcid.org\/0000-0003-4761-2648","authenticated-orcid":false,"given":"Peter","family":"Thomson","sequence":"additional","affiliation":[{"name":"Glasgow Renal and Transplant Unit, Queen Elizabeth University Hospital, Glasgow, UK"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Mark","family":"Dunlop","sequence":"additional","affiliation":[{"name":"Department of Computing Science, University of Strathclyde, Glasgow, UK"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Laura","family":"Martin","sequence":"additional","affiliation":[{"name":"Glasgow Renal and Transplant Unit, Queen Elizabeth University Hospital, Glasgow, UK"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Catrin","family":"Jones","sequence":"additional","affiliation":[{"name":"Glasgow Renal and Transplant Unit, Queen Elizabeth University Hospital, Glasgow, UK"},{"name":"School of Health and Wellbeing, University of Glasgow, Glasgow, UK"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"David","family":"Kingsmore","sequence":"additional","affiliation":[{"name":"Glasgow Renal and Transplant Unit, Queen Elizabeth University Hospital, Glasgow, UK"}],"role":[{"vocabulary":"crossref","role":"author"}]}],"member":"179","published-online":{"date-parts":[[2025,1,29]]},"reference":[{"key":"e_1_3_3_2_2","unstructured":"UK Kidney Registry 24th Annual Report. 2022 (accessed 16 February 2025). https:\/\/www.ukkidney.org\/audit-research\/annual-report\/24th-annual-report-data-31122020."},{"key":"e_1_3_3_3_2","unstructured":"Care NK. Chronic kidney disease in England: The Human and Financial cost. 2012 (accessed 16 January 2025). https:\/\/www.england.nhs.uk\/improvement-hub\/wp-content\/uploads\/sites\/44\/2017\/11\/Chronic-Kidney-Disease-in-England-The-Human-and-Financial-Cost.pdf."},{"key":"e_1_3_3_4_2","doi-asserted-by":"publisher","DOI":"10.1186\/1471-2288-13-10"},{"key":"e_1_3_3_5_2","doi-asserted-by":"publisher","DOI":"10.1371\/journal.pone.0260914"},{"key":"e_1_3_3_6_2","doi-asserted-by":"publisher","DOI":"10.1093\/ndt\/gfx380"},{"key":"e_1_3_3_7_2","doi-asserted-by":"publisher","DOI":"10.2215\/CJN.04580908"},{"key":"e_1_3_3_8_2","doi-asserted-by":"publisher","DOI":"10.1053\/j.ajkd.2019.12.001"},{"key":"e_1_3_3_9_2","unstructured":"UK Kidney Association. Clinical practice guideline vascular access for haemodialysis. 2023 (accessed 16 January 2025). https:\/\/www.ukkidney.org\/sites\/default\/files\/FINAL%20FORMATTED%20Vascular%20access%20for%20haemodialysis%20April%202023.pdf."},{"key":"e_1_3_3_10_2","doi-asserted-by":"publisher","DOI":"10.1053\/j.ajkd.2017.12.003"},{"key":"e_1_3_3_11_2","doi-asserted-by":"publisher","DOI":"10.1053\/j.ajkd.2014.06.024"},{"key":"e_1_3_3_12_2","doi-asserted-by":"publisher","DOI":"10.1016\/j.jvs.2018.10.063"},{"key":"e_1_3_3_13_2","doi-asserted-by":"publisher","DOI":"10.1177\/11297298211046746"},{"key":"e_1_3_3_14_2","doi-asserted-by":"publisher","DOI":"10.5301\/jva.5000651"},{"key":"e_1_3_3_15_2","first-page":"100187","article-title":"\u2018It\u2019s about what I\u2019m able to do\u2019: using the capabilities approach to understand the relationship between quality of life and vascular access in patients with end-stage kidney failure","volume":"2","author":"Greenwood SK","year":"2022","unstructured":"Greenwood SK, Richarz D, Thomson S, et al \u2018It\u2019s about what I\u2019m able to do\u2019: using the capabilities approach to understand the relationship between quality of life and vascular access in patients with end-stage kidney failure. 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