{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2026,5,1]],"date-time":"2026-05-01T22:10:40Z","timestamp":1777673440808,"version":"3.51.4"},"reference-count":32,"publisher":"SAGE Publications","license":[{"start":{"date-parts":[[2023,1,1]],"date-time":"2023-01-01T00:00:00Z","timestamp":1672531200000},"content-version":"unspecified","delay-in-days":0,"URL":"https:\/\/creativecommons.org\/licenses\/by-nc\/4.0\/"}],"content-domain":{"domain":["journals.sagepub.com"],"crossmark-restriction":true},"short-container-title":["Health\ufffdServ\ufffdInsights"],"published-print":{"date-parts":[[2023,1]]},"abstract":"<jats:sec>\n                    <jats:title>Background:<\/jats:title>\n                    <jats:p>Globally, more than 97% of children needing palliative care reside in low- and middle-income countries, where there is very limited access to palliative care. Several community-based palliative care programs focused on adults, have been described in resource limited settings, suggesting a simple and low-cost approach to providing palliative care. The implementation of community-based palliative care for children has not previously been described.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Context:<\/jats:title>\n                    <jats:p>This community case study describes the implementation of an innovative model of community-based palliative care program in and urban informal settlement, (Korail Slum, Bangladesh). The program is led by a local government hospital, with experience in community-based palliative care, in partnership with the local community.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Problem:<\/jats:title>\n                    <jats:p>Children with serious conditions in an urban unformal settlement do not have access to health services which address their medical, psychosocial and spiritual needs. This gap leads to a significant burden of preventable suffering for them and their families.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Solution:<\/jats:title>\n                    <jats:p>A community-based palliative care program was implemented, which includes home care by trained community health workers, with support and supervision from palliative care nurses and physicians. The program\u2019s objective is to provide effective symptom management, clear communication about the child\u2019s condition with parents, and psychosocial support including support for basic needs. The program was free for families including medications, medical equipment, physiotherapy, and speech therapy. The program was monitored through regular assessments of quality of life using standardized tools (PedsQL Family Impact Module), as well as interviews and focus group discussions.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Conclusion and lessons learned:<\/jats:title>\n                    <jats:p>A model of community-based palliative care for children can be implemented in an urban informal settlement. Program effectiveness is enhanced by community health workers who share language, culture, and life-experiences with the individuals they serve. Partnerships with local health care facilities and community groups strengthen the program\u2019s sustainability. Ensuring financial sustainability remains a challenge.<\/jats:p>\n                  <\/jats:sec>","DOI":"10.1177\/11786329231162996","type":"journal-article","created":{"date-parts":[[2023,3,22]],"date-time":"2023-03-22T05:40:45Z","timestamp":1679463645000},"update-policy":"https:\/\/doi.org\/10.1177\/sage-journals-update-policy","source":"Crossref","is-referenced-by-count":8,"title":["Developing Community-Based Palliative Care for Children: A Community Case Study from an Urban Informal Settlement in Bangladesh"],"prefix":"10.1177","volume":"16","author":[{"given":"Mostofa Kamal","family":"Chowdhury","sequence":"first","affiliation":[{"name":"Department of Palliative Medicine, Bangabandhu Sheikh Mujib Medical University, Dhaka, Bangladesh"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Maryam","family":"Bezzahou","sequence":"additional","affiliation":[{"name":"Faculty of Medicine, University of Ottawa, Ottawa, ON, Canada"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Marufa","family":"Khanom","sequence":"additional","affiliation":[{"name":"Department of Palliative Medicine, Bangabandhu Sheikh Mujib Medical University, Dhaka, Bangladesh"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"ORCID":"https:\/\/orcid.org\/0000-0003-3905-2169","authenticated-orcid":false,"given":"Megan","family":"Doherty","sequence":"additional","affiliation":[{"name":"Faculty of Medicine, University of Ottawa, Ottawa, ON, Canada"},{"name":"Children\u2019s Hospital of Eastern Ontario, Ottawa, ON, Canada"}],"role":[{"role":"author","vocabulary":"crossref"}]}],"member":"179","published-online":{"date-parts":[[2023,3,22]]},"reference":[{"key":"bibr1-11786329231162996","doi-asserted-by":"publisher","DOI":"10.3390\/children5020027"},{"key":"bibr2-11786329231162996","doi-asserted-by":"publisher","DOI":"10.1016\/j.jpainsymman.2016.08.020"},{"key":"bibr3-11786329231162996","unstructured":"Worldwide Palliative Care Alliance. Global Atlas of Palliative Care at the End of Life. London: Worldwide Palliative Care Alliance; 2014 [cited 2019 Dec 29] p. 111. Available from: http:\/\/www.who.int\/nmh\/Global_Atlas_of_Palliative_Care.pdf"},{"key":"bibr4-11786329231162996","unstructured":"Worldwide Hospice Palliative Care Alliance. Global Atlas of Palliative Care [Internet]. London: Worldwide Hospice Palliative Care Alliance; 2020 [cited 2021 Jun 28] p. 120. Available from: http:\/\/www.thewhpca.org\/resources\/global-atlas-on-end-of-life-care"},{"key":"bibr5-11786329231162996","doi-asserted-by":"publisher","DOI":"10.1016\/j.jpainsymman.2019.11.009"},{"key":"bibr6-11786329231162996","doi-asserted-by":"publisher","DOI":"10.1080\/09581590802191906"},{"key":"bibr7-11786329231162996","doi-asserted-by":"publisher","DOI":"10.4103\/0973-1075.16637"},{"key":"bibr8-11786329231162996","doi-asserted-by":"publisher","DOI":"10.1016\/j.jpainsymman.2007.02.005"},{"key":"bibr9-11786329231162996","unstructured":"Kumar DS. Building palliative care programme in developing countries and role of home based care. Satlzburg Global Seminar, p.14."},{"key":"bibr10-11786329231162996","first-page":"1","volume":"15","author":"Chowdhury MK","year":"2021","journal-title":"Palliat Care Soc Pract"},{"key":"bibr11-11786329231162996","doi-asserted-by":"publisher","DOI":"10.1136\/archdischild-2011-301621"},{"key":"bibr12-11786329231162996","doi-asserted-by":"publisher","DOI":"10.1111\/j.1365-3156.2004.01381.x"},{"key":"bibr13-11786329231162996","first-page":"156","volume":"24","author":"Zaman S","year":"2017","journal-title":"Eur J Palliat Care"},{"key":"bibr14-11786329231162996","unstructured":"World Bank. World Bank Open Data [Internet]. World Bank Open Data. [cited 2019 Aug 27]. Available from: https:\/\/data.worldbank.org\/"},{"key":"bibr15-11786329231162996","first-page":"426","volume":"14","author":"Sinthia SA","year":"2020","journal-title":"Int J Urban Civ Eng"},{"key":"bibr16-11786329231162996","first-page":"701","volume":"7","author":"Sinthia SA","year":"2013","journal-title":"Int J Econ Manag Eng"},{"key":"bibr17-11786329231162996","doi-asserted-by":"publisher","DOI":"10.1016\/j.healthpol.2010.09.004"},{"key":"bibr18-11786329231162996","doi-asserted-by":"publisher","DOI":"10.4103\/2278-330X.110516"},{"key":"bibr19-11786329231162996","doi-asserted-by":"publisher","DOI":"10.1111\/dmcn.14013"},{"key":"bibr20-11786329231162996","volume-title":"Bangladesh Health System Review","author":"World Health Organization: Regional Office for the Western Pacific","year":"2015"},{"key":"bibr21-11786329231162996","unstructured":"IOM. Adding life to their days. IOM Storyteller; 2021. 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