{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2026,10,12]],"date-time":"2026-10-12T16:02:34Z","timestamp":1791820954739,"version":"4.3.4"},"reference-count":4,"publisher":"SAGE Publications","issue":"10","license":[{"start":{"date-parts":[[2020,7,14]],"date-time":"2020-07-14T00:00:00Z","timestamp":1594684800000},"content-version":"unspecified","delay-in-days":0,"URL":"https:\/\/creativecommons.org\/licenses\/by-nc\/4.0\/"}],"funder":[{"DOI":"10.13039\/501100007459","name":"multiple sclerosis international federation","doi-asserted-by":"publisher","id":[{"id":"10.13039\/501100007459","id-type":"DOI","asserted-by":"publisher"}]},{"name":"Multiple Sclerosis Data Alliance"},{"name":"European Charcot Foundation"}],"content-domain":{"domain":["journals.sagepub.com"],"crossmark-restriction":true},"short-container-title":["Mult Scler"],"published-print":{"date-parts":[[2020,9]]},"abstract":"<jats:sec>\n                    <jats:title>Background:<\/jats:title>\n                    <jats:p>We need high-quality data to assess the determinants for COVID-19 severity in people with MS (PwMS). Several studies have recently emerged but there is great benefit in aligning data collection efforts at a global scale.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Objectives:<\/jats:title>\n                    <jats:p>Our mission is to scale-up COVID-19 data collection efforts and provide the MS community with data-driven insights as soon as possible.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Methods:<\/jats:title>\n                    <jats:p>Numerous stakeholders were brought together. Small dedicated interdisciplinary task forces were created to speed-up the formulation of the study design and work plan. First step was to agree upon a COVID-19 MS core data set. Second, we worked on providing a user-friendly and rapid pipeline to share COVID-19 data at a global scale.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Results:<\/jats:title>\n                    <jats:p>The COVID-19 MS core data set was agreed within 48\u2009hours. To date, 23 data collection partners are involved and the first data imports have been performed successfully. Data processing and analysis is an on-going process.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Conclusions:<\/jats:title>\n                    <jats:p>We reached a consensus on a core data set and established data sharing processes with multiple partners to address an urgent need for information to guide clinical practice. First results show that partners are motivated to share data to attain the ultimate joint goal: better understand the effect of COVID-19 in PwMS.<\/jats:p>\n                  <\/jats:sec>","DOI":"10.1177\/1352458520941485","type":"journal-article","created":{"date-parts":[[2020,7,14]],"date-time":"2020-07-14T11:29:40Z","timestamp":1594726180000},"page":"1157-1162","update-policy":"https:\/\/doi.org\/10.1177\/sage-journals-update-policy","source":"Crossref","is-referenced-by-count":58,"title":["COVID-19 in people with multiple sclerosis: A global data sharing initiative"],"prefix":"10.1177","volume":"26","author":[{"ORCID":"https:\/\/orcid.org\/0000-0002-6066-3899","authenticated-orcid":false,"given":"Liesbet M","family":"Peeters","sequence":"first","affiliation":[{"name":"Biomedical Research Institute and Data Science Institute, Hasselt University, Diepenbeek, Belgium"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Tina","family":"Parciak","sequence":"additional","affiliation":[{"name":"Department of Medical Informatics, University Medical Center G\u00f6ttingen, G\u00f6ttingen, Germany"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Clare","family":"Walton","sequence":"additional","affiliation":[{"name":"MS International Federation, London, UK"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Lotte","family":"Geys","sequence":"additional","affiliation":[{"name":"Biomedical Research Institute and Data Science Institute, Hasselt University, Diepenbeek, Belgium"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Yves","family":"Moreau","sequence":"additional","affiliation":[{"name":"ESAT-STADIUS, KU Leuven, Leuven, Belgium"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Edward","family":"De Brouwer","sequence":"additional","affiliation":[{"name":"ESAT-STADIUS, KU Leuven, Leuven, Belgium"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Daniele","family":"Raimondi","sequence":"additional","affiliation":[{"name":"ESAT-STADIUS, KU Leuven, Leuven, Belgium"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"ORCID":"https:\/\/orcid.org\/0000-0003-4549-1002","authenticated-orcid":false,"given":"Ashkan","family":"Pirmani","sequence":"additional","affiliation":[{"name":"Biomedical Research Institute and Data Science Institute, Hasselt University, Diepenbeek, Belgium\/ESAT-STADIUS, KU Leuven, Leuven, Belgium"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Tomas","family":"Kalincik","sequence":"additional","affiliation":[{"name":"Clinical Outcomes Research (CORe) Unit, The University of Melbourne, Melbourne, VIC, Australia\/Melbourne MS Centre, Department of Neurology, Royal Melbourne Hospital, Melbourne, VIC, Australia"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Gilles","family":"Edan","sequence":"additional","affiliation":[{"name":"Department of Neurology, CHU Pontchaillou, Rennes, France"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"ORCID":"https:\/\/orcid.org\/0000-0001-6521-3056","authenticated-orcid":false,"given":"Steve","family":"Simpson-Yap","sequence":"additional","affiliation":[{"name":"Neuroepidemiology Unit, Melbourne School of Population & Global Health, The University of Melbourne, Melbourne, VIC, Australia\/Menzies Institute for Medical Research, University of Tasmania, Hobart, TAS, Australia"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Luc","family":"De Raedt","sequence":"additional","affiliation":[{"name":"Department of Computer Science and Leuven.AI, KU Leuven, Leuven, Belgium"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Yann","family":"Dauxais","sequence":"additional","affiliation":[{"name":"Department of Computer Science and Leuven.AI, KU Leuven, Leuven, Belgium"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"ORCID":"https:\/\/orcid.org\/0000-0001-8486-9616","authenticated-orcid":false,"given":"Cl\u00e9ment","family":"Gautrais","sequence":"additional","affiliation":[{"name":"Department of Computer Science and Leuven.AI, KU Leuven, Leuven, Belgium"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Paulo R","family":"Rodrigues","sequence":"additional","affiliation":[{"name":"QMENTA, Barcelona, Spain"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Landon","family":"McKenna","sequence":"additional","affiliation":[{"name":"QMENTA, Barcelona, Spain"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Nikola","family":"Lazovski","sequence":"additional","affiliation":[{"name":"QMENTA, Barcelona, Spain"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Jan","family":"Hillert","sequence":"additional","affiliation":[{"name":"Department of Clinical Neuroscience, Swedish MS Registry, Stockholm, Sweden"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Lars","family":"Forsberg","sequence":"additional","affiliation":[{"name":"Department of Clinical Neuroscience, Swedish MS Registry, Stockholm, Sweden"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"ORCID":"https:\/\/orcid.org\/0000-0001-9204-3216","authenticated-orcid":false,"given":"Tim","family":"Spelman","sequence":"additional","affiliation":[{"name":"Department of Clinical Neuroscience, Swedish MS Registry, Stockholm, Sweden"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Robert","family":"McBurney","sequence":"additional","affiliation":[{"name":"iConquerMS People-Powered Research Network, Accelerated Cure Project for MS, Waltham, MA, 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