{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2026,9,19]],"date-time":"2026-09-19T12:11:58Z","timestamp":1789819918973,"version":"4.0.1"},"reference-count":38,"publisher":"SAGE Publications","issue":"1","license":[{"start":{"date-parts":[[2009,11,13]],"date-time":"2009-11-13T00:00:00Z","timestamp":1258070400000},"content-version":"tdm","delay-in-days":0,"URL":"https:\/\/journals.sagepub.com\/page\/policies\/text-and-data-mining-license"}],"content-domain":{"domain":[],"crossmark-restriction":false},"short-container-title":["Clin Child Psychol Psychiatry"],"published-print":{"date-parts":[[2010,1]]},"abstract":"<jats:p>This qualitative study aimed to gain an in-depth understanding of the adaptation of children and families to childhood chronic illness. Considering ecological theories and child empowerment, we departed from the usual practice of relying solely on parental report by also soliciting children\u2019s views. Eighteen children aged 7\u201414 with cancer, chronic renal failure or type 1 diabetes, and 21 of their parents, participated. The inclusion of several conditions enabled the examination of data from a categorical versus non-categorical perspective. Focus groups supplemented by individual interviews explored participants\u2019 views about challenges and the processes they considered important in enhancing adaptation to a chronic illness. Children, as well as parents, provided rich material. Thematic analysis revealed 11 main themes. Six concerned the impact of the illness on various aspects of life. The other main themes were the meaning of disease, stress-processing, social support, future concerns and psychosocial interventions. There were many similarities and some differences between parent and child reports. Many issues were common across illness groups, consistent with a non-categorical approach, though there were some illness-specific issues, especially for those with cancer. Positive as well as negative material emerged. Implications for clinical services are discussed.<\/jats:p>","DOI":"10.1177\/1359104509338432","type":"journal-article","created":{"date-parts":[[2009,11,13]],"date-time":"2009-11-13T20:34:44Z","timestamp":1258144484000},"page":"39-53","source":"Crossref","is-referenced-by-count":97,"title":["Parental and child perspectives on adaptation to childhood chronic illness: A qualitative study"],"prefix":"10.1177","volume":"15","author":[{"given":"Anne F.","family":"Gannoni","sequence":"first","affiliation":[{"name":"Children, Youth and Women's Health Service, Adelaide,\rSouth Australia,"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Rosalyn H.","family":"Shute","sequence":"additional","affiliation":[{"name":"Flinders University, South Australia"}],"role":[{"vocabulary":"crossref","role":"author"}]}],"member":"179","published-online":{"date-parts":[[2009,11,13]]},"reference":[{"key":"atypb1","volume-title":"Manual for the Child Behavior Checklist\/ 4-18 and 1991 Profile","author":"Achenbach, T.M.","year":"1991"},{"key":"atypb2","volume-title":"Caring for diabetes in children and adolescents: A parent\u2019s manual","author":"Ambler, G.","year":"1998"},{"key":"atypb3","doi-asserted-by":"publisher","DOI":"10.1111\/j.1099-0860.1998.tb00089.x"},{"key":"atypb4","volume-title":"Handbook of qualitative research","author":"Denzin, N.K.","year":"1994"},{"key":"atypb5","volume-title":"Growing up with a chronic disease: The impact on children and their families","author":"Eiser, C.","year":"1993"},{"key":"atypb6","doi-asserted-by":"publisher","DOI":"10.1093\/jpepsy\/22.2.183"},{"key":"atypb7","doi-asserted-by":"publisher","DOI":"10.1093\/jpepsy\/23.2.79"},{"key":"atypb8","doi-asserted-by":"publisher","DOI":"10.1002\/(SICI)1099-1611(200001\/02)9:1<11::AID-PON424>3.0.CO;2-Z"},{"key":"atypb9","doi-asserted-by":"publisher","DOI":"10.1037\/0003-066X.55.6.647"},{"key":"atypb10","volume-title":"Children\u2019s adaptation to a chronic illness","author":"Gannoni, A.F.","year":"2003"},{"key":"atypb11","doi-asserted-by":"publisher","DOI":"10.1080\/0968759032000097825"},{"key":"atypb12","doi-asserted-by":"publisher","DOI":"10.1097\/00004703-199906000-00004"},{"key":"atypb13","doi-asserted-by":"publisher","DOI":"10.1093\/jpepsy\/27.1.47"},{"key":"atypb14","doi-asserted-by":"publisher","DOI":"10.1093\/jpepsy\/23.3.207"},{"key":"atypb15","doi-asserted-by":"publisher","DOI":"10.1093\/jpepsy\/jsm031"},{"key":"atypb16","doi-asserted-by":"publisher","DOI":"10.1111\/j.1545-5300.1999.00176.x"},{"key":"atypb17","doi-asserted-by":"publisher","DOI":"10.1093\/jpepsy\/17.2.133"},{"key":"atypb18","doi-asserted-by":"publisher","DOI":"10.1097\/00004703-199304000-00007"},{"key":"atypb19","volume-title":"Manual for the Semistructured Clinical Interview for Children and Adolescents","author":"McConaughy, S.H.","year":"1994"},{"key":"atypb20","doi-asserted-by":"publisher","DOI":"10.1093\/jpepsy\/jsm049"},{"key":"atypb21","doi-asserted-by":"publisher","DOI":"10.1093\/jpepsy\/jsi014"},{"key":"atypb22","doi-asserted-by":"publisher","DOI":"10.1093\/jpepsy\/jsm060"},{"key":"atypb23","doi-asserted-by":"publisher","DOI":"10.1037\/0022-006X.73.2.272"},{"key":"atypb24","doi-asserted-by":"publisher","DOI":"10.1097\/00012272-198604000-00005"},{"key":"atypb25","doi-asserted-by":"publisher","DOI":"10.1093\/jpepsy\/jsj018"},{"key":"atypb26","doi-asserted-by":"publisher","DOI":"10.1093\/jpepsy\/25.3.161"},{"key":"atypb27","volume-title":"Proceedings of the 40th APS Annual Conference, 28 September-2 October, 2005","author":"Shute, R.H."},{"issue":"4","key":"atypb28","doi-asserted-by":"crossref","first-page":"318","DOI":"10.1080\/01650250143000201","volume":"26","author":"Shute, R.H.","year":"2002","journal-title":"Australian children. 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