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Sixteen focus groups were conducted ( n = 6 groups with symptomatic HD individuals; n = 5 with individuals who are at-risk or prodromal for HD; n = 3 non-clinical HD caregivers; n = 2 groups with HD clinicians). Qualitative analysis indicated that 28% of focus group comments were related to emotional health, 27% to social participation, 26% to physical health, 10% to cognitive health, and 9% to end of life issues. Findings highlight the importance of developing HD-targeted items to ensure sensitive assessment of HRQOL in HD research and clinical practice.<\/jats:p>","DOI":"10.1177\/1359105312438109","type":"journal-article","created":{"date-parts":[[2012,3,16]],"date-time":"2012-03-16T22:47:13Z","timestamp":1331938033000},"page":"212-225","update-policy":"https:\/\/doi.org\/10.1177\/sage-journals-update-policy","source":"Crossref","is-referenced-by-count":72,"title":["Identification of health-related quality of life (HRQOL) issues relevant to individuals with Huntington disease"],"prefix":"10.1177","volume":"18","author":[{"given":"Noelle E","family":"Carlozzi","sequence":"first","affiliation":[{"name":"University of Michigan, USA"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"David S","family":"Tulsky","sequence":"additional","affiliation":[{"name":"University of Michigan, 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