{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2026,8,18]],"date-time":"2026-08-18T02:12:34Z","timestamp":1787019154236,"version":"build-2736575974"},"reference-count":40,"publisher":"SAGE Publications","issue":"10","license":[{"start":{"date-parts":[[2024,11,25]],"date-time":"2024-11-25T00:00:00Z","timestamp":1732492800000},"content-version":"vor","delay-in-days":0,"URL":"https:\/\/creativecommons.org\/licenses\/by\/4.0\/"},{"start":{"date-parts":[[2024,11,25]],"date-time":"2024-11-25T00:00:00Z","timestamp":1732492800000},"content-version":"tdm","delay-in-days":0,"URL":"https:\/\/journals.sagepub.com\/page\/policies\/text-and-data-mining-license"}],"funder":[{"name":"university doctoral"}],"content-domain":{"domain":["journals.sagepub.com"],"crossmark-restriction":true},"short-container-title":["J Health Psychol"],"published-print":{"date-parts":[[2025,9]]},"abstract":"<jats:p>Peritoneal mesothelioma is a rare life-limiting cancer that is likely to have an extremely negative impact on mental health; however, no studies to date have explored the impact and needs of those living with the condition. Ten individuals diagnosed with peritoneal mesothelioma (eight women, two men) participated in interviews and could share and discuss photographs to convey their illness experiences. Data analysis was informed by Interpretative Phenomenological Analysis. Two themes are presented: \u2018Experiences of Care\u2019 and \u2018Psychological Distress\u2019. Individuals experienced a lengthy diagnostic journey with little follow-up support. Women also reported negative impacts on body image due to abdominal swelling and scaring, diminished sexual ability and loss of fertility. Individuals recalled vivid feelings of anxiety and post-traumatic stress, and tried to cope by compartmentalising their fears and modifying diets. These findings demonstrate the need to further signpost services, help individuals manage gendered issues, and alleviate feelings of anxiety.<\/jats:p>","DOI":"10.1177\/13591053241298932","type":"journal-article","created":{"date-parts":[[2024,11,25]],"date-time":"2024-11-25T07:03:17Z","timestamp":1732518197000},"page":"2781-2797","update-policy":"https:\/\/doi.org\/10.1177\/sage-journals-update-policy","source":"Crossref","is-referenced-by-count":2,"title":["The psychological impact of living with peritoneal mesothelioma: An Interpretative Phenomenological Analysis"],"prefix":"10.1177","volume":"30","author":[{"ORCID":"https:\/\/orcid.org\/0000-0001-9906-0350","authenticated-orcid":false,"given":"Benjamin","family":"Lond","sequence":"first","affiliation":[{"name":"De Montfort University, UK"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Lindsay","family":"Apps","sequence":"additional","affiliation":[{"name":"De Montfort University, UK"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Kerry","family":"Quincey","sequence":"additional","affiliation":[{"name":"De Montfort University, UK"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Iain","family":"Williamson","sequence":"additional","affiliation":[{"name":"De Montfort University, UK"}],"role":[{"vocabulary":"crossref","role":"author"}]}],"member":"179","published-online":{"date-parts":[[2024,11,25]]},"reference":[{"issue":"1","key":"e_1_3_4_2_1","first-page":"79","article-title":"Diagnosis and management of patients with malignant peritoneal mesothelioma","volume":"7","author":"Alexander HR","year":"2016","unstructured":"Alexander HR, Burk AP (2016) Diagnosis and management of patients with malignant peritoneal mesothelioma. Journal of Gastrointestinal Oncology 7(1): 79\u201386.","journal-title":"Journal of Gastrointestinal Oncology"},{"key":"e_1_3_4_3_1","doi-asserted-by":"publisher","DOI":"10.1245\/s10434-019-07425-5"},{"key":"e_1_3_4_4_1","doi-asserted-by":"publisher","DOI":"10.1002\/pon.3162"},{"key":"e_1_3_4_5_1","unstructured":"British Psychological Society (2021a) BPS code of human research ethics. Available at: https:\/\/www.bps.org.uk\/guideline\/bps-code-human-research-ethics (accessed 15 May 2024)."},{"key":"e_1_3_4_6_1","unstructured":"British Psychological Society (2021b) Code of ethics and conduct. Available at: https:\/\/www.bps.org.uk\/guideline\/code-ethics-and-conduct (accessed 15 May 2024)."},{"key":"e_1_3_4_7_1","unstructured":"British Psychological Society (2021c) Ethics guidelines for internet-mediated research. Available at: https:\/\/www.bps.org.uk\/guideline\/ethics-guidelines-internet-mediated-research (accessed 15 May 2024)."},{"key":"e_1_3_4_8_1","doi-asserted-by":"publisher","DOI":"10.3390\/cancers15010229"},{"key":"e_1_3_4_9_1","doi-asserted-by":"publisher","DOI":"10.1016\/j.hoc.2005.09.003"},{"key":"e_1_3_4_10_1","doi-asserted-by":"publisher","DOI":"10.3390\/cancers15051381"},{"key":"e_1_3_4_11_1","doi-asserted-by":"publisher","DOI":"10.1016\/j.lungcan.2024.107625"},{"key":"e_1_3_4_12_1","doi-asserted-by":"publisher","DOI":"10.2147\/CMAR.S170300"},{"key":"e_1_3_4_13_1","doi-asserted-by":"publisher","DOI":"10.3109\/13697137.2015.1020484"},{"key":"e_1_3_4_14_1","doi-asserted-by":"publisher","DOI":"10.21037\/jgo.2017.08.01"},{"issue":"1","key":"e_1_3_4_15_1","article-title":"Peritoneal mesothelioma","volume":"9","author":"Greenbaum A","year":"2020","unstructured":"Greenbaum A, Alexander HR (2020) Peritoneal mesothelioma. Translational Lung Cancer Research 9(1): S120\u2013S132.","journal-title":"Translational Lung Cancer Research"},{"key":"e_1_3_4_16_1","doi-asserted-by":"publisher","DOI":"10.1245\/s10434-014-3978-x"},{"key":"e_1_3_4_17_1","doi-asserted-by":"publisher","DOI":"10.1007\/s00520-012-1569-6"},{"key":"e_1_3_4_18_1","doi-asserted-by":"publisher","DOI":"10.14789\/jmj.2018.64.JMJ17-OA09"},{"key":"e_1_3_4_19_1","doi-asserted-by":"publisher","DOI":"10.21037\/atm.2017.03.96"},{"key":"e_1_3_4_20_1","doi-asserted-by":"crossref","unstructured":"King N Horrocks C Brooks J (2019) Interviews in Qualitative Research 2nd edn. London: Sage Publications. Available at: https:\/\/us.sagepub.com\/en-us\/nam\/interviews-in-qualitative-research\/book241444 (accessed 15 May 2024).","DOI":"10.4135\/9781036234881"},{"issue":"3","key":"e_1_3_4_21_1","first-page":"1183","article-title":"A very public death: Dying of mesothelioma and asbestos related lung cancer (M\/ARLC) in the Latrobe Valley, Victoria, Australia","volume":"9","author":"Lee SF","year":"2009","unstructured":"Lee SF, O\u2019Connor MM, Chapman Y, et al. (2009) A very public death: Dying of mesothelioma and asbestos related lung cancer (M\/ARLC) in the Latrobe Valley, Victoria, Australia. Rural and Remote Health 9(3): 1183.","journal-title":"Rural and Remote Health"},{"key":"e_1_3_4_22_1","doi-asserted-by":"publisher","DOI":"10.1111\/jocn.15922"},{"key":"e_1_3_4_23_1","doi-asserted-by":"publisher","DOI":"10.1037\/hea0001166"},{"key":"e_1_3_4_24_1","unstructured":"Mesothelioma UK (2024) Peritoneal mesothelioma. Available at: https:\/\/www.mesothelioma.uk.com\/peritoneal-mesothelioma\/ (accessed 15 May 2024)."},{"key":"e_1_3_4_25_1","doi-asserted-by":"publisher","DOI":"10.1089\/jwh.2020.8682"},{"key":"e_1_3_4_26_1","doi-asserted-by":"publisher","DOI":"10.1016\/S1470-2045(13)70244-4"},{"key":"e_1_3_4_27_1","doi-asserted-by":"publisher","DOI":"10.1007\/s10552-009-9328-9"},{"key":"e_1_3_4_28_1","doi-asserted-by":"publisher","DOI":"10.1186\/s12885-018-4293-x"},{"key":"e_1_3_4_29_1","unstructured":"NHS (2022) Mesothelioma. Available at: https:\/\/www.nhs.uk\/conditions\/mesothelioma\/ (accessed 14 September 2024)."},{"key":"e_1_3_4_30_1","doi-asserted-by":"publisher","DOI":"10.1200\/JCO.2004.09.147"},{"issue":"12","key":"e_1_3_4_31_1","article-title":"Malignant peritoneal mesothelioma-a diagnostic challenge","volume":"2022","author":"Razzak SA","year":"2022","unstructured":"Razzak SA, Awan F, Ahmed S (2022) Malignant peritoneal mesothelioma-a diagnostic challenge. Journal of Surgical Case Reports 2022(12): rjac555.","journal-title":"Journal of Surgical Case Reports"},{"key":"e_1_3_4_32_1","doi-asserted-by":"publisher","DOI":"10.1177\/1468794115577011"},{"key":"e_1_3_4_33_1","doi-asserted-by":"publisher","DOI":"10.1136\/bmjopen-2023-075071"},{"key":"e_1_3_4_34_1","unstructured":"Smith JA Flowers P Larkin M (2022) Interpretative Phenomenological Analysis: Theory Method and Research 2nd edn. London: Sage Publications. Available at: https:\/\/us.sagepub.com\/en-us\/nam\/interpretative-phenomenological-analysis\/book250130 (accessed 15 May 2024)."},{"key":"e_1_3_4_35_1","doi-asserted-by":"publisher","DOI":"10.1177\/2049463714541642"},{"key":"e_1_3_4_36_1","doi-asserted-by":"publisher","DOI":"10.1136\/bmjresp-2019-000413"},{"key":"e_1_3_4_37_1","doi-asserted-by":"publisher","DOI":"10.3390\/cancers14040942"},{"issue":"8","key":"e_1_3_4_38_1","article-title":"Malignant peritoneal mesothelioma: A challenging case for palliative care","volume":"14","author":"Vidal C","year":"2022","unstructured":"Vidal C, Romero I, Neto I (2022) Malignant peritoneal mesothelioma: A challenging case for palliative care. Cureus 14(8): e27580.","journal-title":"Cureus"},{"key":"e_1_3_4_39_1","doi-asserted-by":"publisher","DOI":"10.1097\/NCC.0000000000000770"},{"key":"e_1_3_4_40_1","doi-asserted-by":"publisher","DOI":"10.1002\/cncr.34218"},{"key":"e_1_3_4_41_1","doi-asserted-by":"crossref","unstructured":"Williamson IR Papaloukas P Shaw N et al. (2024) How can incorporating participant-generated photographs with interviews enhance interpretative phenomenological accounts about living with chronic illness? In: Tseliou E Demuth C Georgaca E et al. (eds) The Routledge International Handbook of Innovative Qualitative Psychological Research. Oxon: Routledge pp.157\u2013172. Available at: https:\/\/www.routledge.com\/The-Routledge-International-Handbook-of-Innovative-Qualitative-Psychological-Research\/Tseliou-Demuth-Georgaca-Gough\/p\/book\/9780367654733 (accessed 15 May 2024).","DOI":"10.4324\/9781003132721-16"}],"container-title":["Journal of Health Psychology"],"original-title":[],"language":"en","link":[{"URL":"https:\/\/journals.sagepub.com\/doi\/pdf\/10.1177\/13591053241298932","content-type":"application\/pdf","content-version":"vor","intended-application":"text-mining"},{"URL":"https:\/\/journals.sagepub.com\/doi\/full-xml\/10.1177\/13591053241298932","content-type":"application\/xml","content-version":"vor","intended-application":"text-mining"},{"URL":"https:\/\/journals.sagepub.com\/doi\/pdf\/10.1177\/13591053241298932","content-type":"unspecified","content-version":"vor","intended-application":"similarity-checking"}],"deposited":{"date-parts":[[2026,4,29]],"date-time":"2026-04-29T08:31:37Z","timestamp":1777451497000},"score":1,"resource":{"primary":{"URL":"https:\/\/journals.sagepub.com\/doi\/10.1177\/13591053241298932"}},"subtitle":[],"short-title":[],"issued":{"date-parts":[[2024,11,25]]},"references-count":40,"journal-issue":{"issue":"10","published-print":{"date-parts":[[2025,9]]}},"alternative-id":["10.1177\/13591053241298932"],"URL":"https:\/\/doi.org\/10.1177\/13591053241298932","relation":{},"ISSN":["1359-1053","1461-7277"],"issn-type":[{"value":"1359-1053","type":"print"},{"value":"1461-7277","type":"electronic"}],"subject":[],"published":{"date-parts":[[2024,11,25]]}}}