{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2026,8,23]],"date-time":"2026-08-23T18:45:25Z","timestamp":1787510725745,"version":"build-2736575974"},"reference-count":42,"publisher":"SAGE Publications","issue":"2","license":[{"start":{"date-parts":[[2025,7,29]],"date-time":"2025-07-29T00:00:00Z","timestamp":1753747200000},"content-version":"vor","delay-in-days":0,"URL":"https:\/\/creativecommons.org\/licenses\/by-nc\/4.0\/"},{"start":{"date-parts":[[2025,7,29]],"date-time":"2025-07-29T00:00:00Z","timestamp":1753747200000},"content-version":"tdm","delay-in-days":0,"URL":"https:\/\/journals.sagepub.com\/page\/policies\/text-and-data-mining-license"}],"funder":[{"DOI":"10.13039\/501100000155","name":"Social Sciences and Humanities Research Council of Canada","doi-asserted-by":"publisher","award":["N\/A"],"award-info":[{"award-number":["N\/A"]}],"id":[{"id":"10.13039\/501100000155","id-type":"DOI","asserted-by":"publisher"}]}],"content-domain":{"domain":["journals.sagepub.com"],"crossmark-restriction":true},"short-container-title":["J Health Psychol"],"published-print":{"date-parts":[[2026,2]]},"abstract":"<jats:p>Women who complain of bladder pain and urinary urgency and frequency wait years to receive the label of interstitial cystitis (IC), an \u201corphan disease\u201d which has no known cause or cure. The current research used phenomenological research methods to understand the experiences of women who have IC as they affect their sexualities. Ten women with IC participated in individual, semi-structured interviews. Nine themes emerged from the interviews. Findings indicated that women who have IC experienced severely limited sexual relationships, negative physician-patient interactions, the necessity for self-management of symptoms and diminished quality of life. Their accounts underscore the profound impact IC has on sexuality, revealing how sexual experiences are deeply intertwined with the emotional, physical and medical challenges of the condition. These findings contribute to a deepened understanding of the experiences of women who have IC and help to increase physicians\u2019 understanding and awareness of the sexual effects that accompany IC.<\/jats:p>","DOI":"10.1177\/13591053251354906","type":"journal-article","created":{"date-parts":[[2025,7,29]],"date-time":"2025-07-29T09:43:17Z","timestamp":1753782197000},"page":"507-521","update-policy":"https:\/\/doi.org\/10.1177\/sage-journals-update-policy","source":"Crossref","is-referenced-by-count":2,"title":["\u201cI can\u2019t enjoy my full sex life\u201d: Understanding the sexual experiences of women with interstitial cystitis"],"prefix":"10.1177","volume":"31","author":[{"ORCID":"https:\/\/orcid.org\/0009-0005-7357-1861","authenticated-orcid":false,"given":"Hannah M","family":"Richardson","sequence":"first","affiliation":[{"name":"University of Ottawa, Canada"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"ORCID":"https:\/\/orcid.org\/0000-0003-0886-4869","authenticated-orcid":false,"given":"Peggy J","family":"Kleinplatz","sequence":"additional","affiliation":[{"name":"University of Ottawa, Canada"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"ORCID":"https:\/\/orcid.org\/0000-0003-1727-7340","authenticated-orcid":false,"given":"Maxime","family":"Charest","sequence":"additional","affiliation":[{"name":"University of Ottawa, Canada"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"ORCID":"https:\/\/orcid.org\/0009-0008-5876-8932","authenticated-orcid":false,"given":"Emily E","family":"Rice","sequence":"additional","affiliation":[{"name":"University of Ottawa, Canada"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"ORCID":"https:\/\/orcid.org\/0009-0002-0487-5675","authenticated-orcid":false,"given":"Hailey","family":"DiCaita","sequence":"additional","affiliation":[{"name":"University of Ottawa, Canada"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"ORCID":"https:\/\/orcid.org\/0009-0006-1323-2910","authenticated-orcid":false,"given":"Klehr","family":"D\u2019souza","sequence":"additional","affiliation":[{"name":"University of Ottawa, Canada"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"ORCID":"https:\/\/orcid.org\/0000-0003-1974-9305","authenticated-orcid":false,"given":"Lianne A","family":"Rosen","sequence":"additional","affiliation":[{"name":"University of Ottawa, Canada"}],"role":[{"vocabulary":"crossref","role":"author"}]}],"member":"179","published-online":{"date-parts":[[2025,7,29]]},"reference":[{"key":"e_1_3_3_2_1","doi-asserted-by":"publisher","DOI":"10.4103\/iju.IJU_145_20"},{"key":"e_1_3_3_3_1","first-page":"177","volume-title":"Groups, Leadership and Men; Research in Human Relations","author":"Asch S","year":"1951","unstructured":"Asch S (1951) Effects of group pressure upon the modification and distortion of judgments. In: Guetzkow H (ed.) Groups, Leadership and Men; Research in Human Relations. Pittsburgh, PA: Carnegie Press, pp.177\u2013190."},{"key":"e_1_3_3_4_1","doi-asserted-by":"publisher","DOI":"10.1016\/j.juro.2009.12.103"},{"issue":"5","key":"e_1_3_3_5_1","article-title":"Gender disparities in cardiovascular disease and their management: A review","volume":"16","author":"Betai D","year":"2024","unstructured":"Betai D, Ahmed AS, Saxena P, et al. (2024) Gender disparities in cardiovascular disease and their management: A review. Cureus 16(5): e59663.","journal-title":"Cureus"},{"key":"e_1_3_3_6_1","doi-asserted-by":"publisher","DOI":"10.1097\/01.ajp.0000159582.37750.39"},{"key":"e_1_3_3_7_1","doi-asserted-by":"publisher","DOI":"10.1007\/s00192-023-05677-0"},{"key":"e_1_3_3_8_1","doi-asserted-by":"publisher","DOI":"10.1111\/jan.15754"},{"key":"e_1_3_3_9_1","doi-asserted-by":"publisher","DOI":"10.1093\/pm\/pnac117"},{"key":"e_1_3_3_10_1","doi-asserted-by":"publisher","DOI":"10.1111\/j.1743-6109.2011.02251.x"},{"key":"e_1_3_3_11_1","doi-asserted-by":"publisher","DOI":"10.1097\/JU.0000000000002955"},{"key":"e_1_3_3_12_1","doi-asserted-by":"publisher","DOI":"10.1177\/13591053241239109"},{"key":"e_1_3_3_13_1","doi-asserted-by":"publisher","DOI":"10.1016\/j.juro.2015.01.086"},{"key":"e_1_3_3_14_1","doi-asserted-by":"publisher","DOI":"10.1177\/1359105309338973"},{"key":"e_1_3_3_15_1","doi-asserted-by":"publisher","DOI":"10.1037\/0022-0167.52.2.196"},{"key":"e_1_3_3_16_1","volume-title":"The Crisis of European Sciences and Transcendental Phenomenology","author":"Husserl E","year":"1970","unstructured":"Husserl E (1970) The Crisis of European Sciences and Transcendental Phenomenology. (trans. Carr D) Evanston, IL: Northwestern University Press."},{"key":"e_1_3_3_17_1","doi-asserted-by":"publisher","DOI":"10.1007\/s00192-016-3109-2"},{"key":"e_1_3_3_18_1","doi-asserted-by":"publisher","DOI":"10.52053\/jpap.v5i1.249"},{"key":"e_1_3_3_19_1","doi-asserted-by":"publisher","DOI":"10.1177\/1359105314522084"},{"key":"e_1_3_3_20_1","doi-asserted-by":"publisher","DOI":"10.1177\/0193945921990730"},{"issue":"1","key":"e_1_3_3_21_1","first-page":"1","article-title":"The components of optimal sexuality: A portrait of \u201cgreat sex","volume":"18","author":"Kleinplatz PJ","year":"2009","unstructured":"Kleinplatz PJ, M\u00e9nard AD, Paquet MP, et al. (2009) The components of optimal sexuality: A portrait of \u201cgreat sex. Canadian Journal of Human Sexuality 18(1-2): 1\u201313.","journal-title":"Canadian Journal of Human Sexuality"},{"key":"e_1_3_3_22_1","first-page":"443","volume-title":"Routledge International Handbook of Women\u2019s Sexual and Reproductive Health","author":"Kleinplatz PJ","year":"2020","unstructured":"Kleinplatz PJ, Rosen L, Charest M, et al. (2020) Sexuality and sexual dysfunctions. In: Ussher JM, Chrisler JC, Perz J (eds) Routledge International Handbook of Women\u2019s Sexual and Reproductive Health. London: Routledge, pp.443\u2013454."},{"key":"e_1_3_3_23_1","doi-asserted-by":"publisher","DOI":"10.1016\/j.juro.2011.10.040"},{"issue":"1","key":"e_1_3_3_24_1","first-page":"79","article-title":"Sexuality in women with endometriosis: A critical narrative review","volume":"111","author":"La Rosa VL","year":"2020","unstructured":"La Rosa VL, De Franciscis P, Barra F, et al. (2020) Sexuality in women with endometriosis: A critical narrative review. Minerva Medica 111(1): 79\u201389.","journal-title":"Minerva Medica"},{"key":"e_1_3_3_25_1","doi-asserted-by":"publisher","DOI":"10.1177\/160940690300200303"},{"key":"e_1_3_3_26_1","doi-asserted-by":"publisher","DOI":"10.1016\/j.urols.2015.07.004"},{"key":"e_1_3_3_27_1","doi-asserted-by":"publisher","DOI":"10.1016\/0147-1767(85)90062-8"},{"key":"e_1_3_3_28_1","unstructured":"Linton SM (2007) The lived experience of women with interstitial cystitis. Unpublished MSN Thesis Marian College of Fond du Lac USA"},{"key":"e_1_3_3_29_1","doi-asserted-by":"publisher","DOI":"10.1177\/1049732304263638"},{"key":"e_1_3_3_30_1","doi-asserted-by":"publisher","DOI":"10.1111\/ajag.12741"},{"key":"e_1_3_3_31_1","doi-asserted-by":"publisher","DOI":"10.1080\/14681994.2014.931689"},{"key":"e_1_3_3_32_1","doi-asserted-by":"publisher","DOI":"10.4135\/9781412995658"},{"key":"e_1_3_3_33_1","doi-asserted-by":"publisher","DOI":"10.1016\/j.juro.2007.01.124"},{"key":"e_1_3_3_34_1","doi-asserted-by":"publisher","DOI":"10.1007\/978-1-4615-6989-3_3"},{"key":"e_1_3_3_35_1","doi-asserted-by":"publisher","DOI":"10.1080\/08873267.1992.9986792"},{"key":"e_1_3_3_36_1","doi-asserted-by":"publisher","DOI":"10.1111\/j.1447-0349.2010.00705.x"},{"key":"e_1_3_3_37_1","doi-asserted-by":"publisher","DOI":"10.1080\/0092623X.2025.2495959"},{"key":"e_1_3_3_38_1","doi-asserted-by":"publisher","DOI":"10.1188\/09.CJON.213-217"},{"key":"e_1_3_3_39_1","doi-asserted-by":"publisher","DOI":"10.1159\/000447186"},{"key":"e_1_3_3_40_1","doi-asserted-by":"publisher","DOI":"10.1111\/inm.12633"},{"key":"e_1_3_3_41_1","volume-title":"Existential Foundations of Psychology","author":"Van Kaam A","year":"1966","unstructured":"Van Kaam A (1966) Existential Foundations of Psychology. Pittsburgh, PA: Duquense University Press."},{"issue":"3","key":"e_1_3_3_42_1","first-page":"954","article-title":"Gender differences in the experience of interstitial cystitis\/bladder pain syndrome","volume":"3","author":"Windgassen SS","year":"2022","unstructured":"Windgassen SS, Sutherland S, Finn MT, et al. (2022) Gender differences in the experience of interstitial cystitis\/bladder pain syndrome. Frontiers in Pain Research 3(3): 954\u2013967.","journal-title":"Frontiers in Pain Research"},{"key":"e_1_3_3_43_1","unstructured":"World Health Organization (2017) Sexual health and its linkages to reproductive health: An operational approach. Available at: https:\/\/www.who.int\/teams\/sexual-and-reproductive-health-and-research\/key-areas-of-work\/sexual-health\/defining-sexual-health (accessed 10 September 2021)"}],"container-title":["Journal of Health Psychology"],"original-title":[],"language":"en","link":[{"URL":"https:\/\/journals.sagepub.com\/doi\/pdf\/10.1177\/13591053251354906","content-type":"application\/pdf","content-version":"vor","intended-application":"text-mining"},{"URL":"https:\/\/journals.sagepub.com\/doi\/full-xml\/10.1177\/13591053251354906","content-type":"application\/xml","content-version":"vor","intended-application":"text-mining"},{"URL":"https:\/\/journals.sagepub.com\/doi\/pdf\/10.1177\/13591053251354906","content-type":"unspecified","content-version":"vor","intended-application":"similarity-checking"}],"deposited":{"date-parts":[[2026,4,29]],"date-time":"2026-04-29T08:32:44Z","timestamp":1777451564000},"score":1,"resource":{"primary":{"URL":"https:\/\/journals.sagepub.com\/doi\/10.1177\/13591053251354906"}},"subtitle":[],"short-title":[],"issued":{"date-parts":[[2025,7,29]]},"references-count":42,"journal-issue":{"issue":"2","published-print":{"date-parts":[[2026,2]]}},"alternative-id":["10.1177\/13591053251354906"],"URL":"https:\/\/doi.org\/10.1177\/13591053251354906","relation":{},"ISSN":["1359-1053","1461-7277"],"issn-type":[{"value":"1359-1053","type":"print"},{"value":"1461-7277","type":"electronic"}],"subject":[],"published":{"date-parts":[[2025,7,29]]}}}