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Interpretative Phenomenological Analysis (IPA) was used to examine participants\u2019 narratives, from which five themes were identified: Constructing blame: Misunderstandings surrounding the condition; Navigating beauty standards: Perceived impacts on self-esteem and romantic relationships; Behind the mask: the fear of being exposed; In a cycle of hope and despair; and Mindful beauty: Embracing the self beyond \u2018traditional\u2019 beauty standards. Participants\u2019 accounts revealed significant psychosocial impacts, including challenges in social interactions, romantic relationships, psychological well-being, and self-esteem. 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