{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2026,11,8]],"date-time":"2026-11-08T08:25:58Z","timestamp":1794126358161,"version":"4.8.0"},"reference-count":47,"publisher":"SAGE Publications","license":[{"start":{"date-parts":[[2026,5,20]],"date-time":"2026-05-20T00:00:00Z","timestamp":1779235200000},"content-version":"tdm","delay-in-days":0,"URL":"https:\/\/journals.sagepub.com\/page\/policies\/text-and-data-mining-license"}],"content-domain":{"domain":["journals.sagepub.com"],"crossmark-restriction":true},"short-container-title":["J Health Psychol"],"abstract":"<jats:p>This article presents a scoping review of psychosocial interventions designed for caregivers of individuals with neuromuscular diseases, aiming to examine their characteristics and outcomes. A total of 1403 articles were screened across three databases (PubMed, Scopus, and Web of Science), supplemented by reference tracking. Eighteen studies met the inclusion criteria. The interventions were grounded in diverse frameworks, including mindfulness, various psychotherapeutic approaches, and case management. Overall, findings showed mixed but generally beneficial effects on caregiver burden, self-efficacy, and social support, while consistent improvements in quality of life were not observed. Additionally, studies reported that the interventions were feasible and acceptable for participants. In conclusion, these interventions play a critical role for caregivers. Evidence supports their feasibility and applicability, and caregivers consistently value them. The review further underscores the need for future research focusing on caregivers of individuals with specific neuromuscular diagnoses.<\/jats:p>","DOI":"10.1177\/13591053261449653","type":"journal-article","created":{"date-parts":[[2026,5,21]],"date-time":"2026-05-21T05:33:22Z","timestamp":1779341602000},"update-policy":"https:\/\/doi.org\/10.1177\/sage-journals-update-policy","source":"Crossref","is-referenced-by-count":1,"title":["Psychosocial interventions for caregivers of people with neuromuscular diseases: A scoping review"],"prefix":"10.1177","author":[{"ORCID":"https:\/\/orcid.org\/0000-0003-0056-9806","authenticated-orcid":false,"given":"Florencia","family":"Assalone","sequence":"first","affiliation":[{"name":"Pontificia Universidad Cat\u00f3lica Argentina, Buenos Aires, Argentina"},{"name":"Consejo Nacional de Investigaciones Cient\u00edficas y T\u00e9cnicas de Argentina [CONICET], Buenos Aires, Argentina"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"ORCID":"https:\/\/orcid.org\/0000-0002-0740-891X","authenticated-orcid":false,"given":"Javiera","family":"Ortega","sequence":"additional","affiliation":[{"name":"Pontificia Universidad Cat\u00f3lica Argentina, Buenos Aires, Argentina"},{"name":"Consejo Nacional de Investigaciones Cient\u00edficas y T\u00e9cnicas de Argentina [CONICET], Buenos Aires, Argentina"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"ORCID":"https:\/\/orcid.org\/0000-0001-8962-7640","authenticated-orcid":false,"given":"Virginia Corina","family":"Samaniego","sequence":"additional","affiliation":[{"name":"Pontificia Universidad Cat\u00f3lica Argentina, Buenos Aires, Argentina"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"ORCID":"https:\/\/orcid.org\/0000-0002-3250-628X","authenticated-orcid":false,"given":"Imanol","family":"Amayra Caro","sequence":"additional","affiliation":[{"name":"Universidad de Deusto, Bilbao, Espa\u00f1a"}],"role":[{"vocabulary":"crossref","role":"author"}]}],"member":"179","published-online":{"date-parts":[[2026,5,20]]},"reference":[{"key":"e_1_3_2_2_1","volume-title":"Enfermedades Neuromusculares: Base Para La Intervenci\u00f3n","author":"Amayra I","year":"2014","unstructured":"Amayra I, L\u00e1zaro E, L\u00f3pez-Paz J (2014) Enfermedades Neuromusculares: Base Para La Intervenci\u00f3n. Universidad de Deusto."},{"key":"e_1_3_2_3_1","unstructured":"American Psychological Association (2020) Annual American psychological association convention 6 August 2020. Available at: https:\/\/www.ncfr.org\/events\/2020-annual-american-psychologicalassociation-apa-convention (accessed 4 July 2024)."},{"key":"e_1_3_2_4_1","doi-asserted-by":"publisher","DOI":"10.1089\/jpm.2014.0213"},{"key":"e_1_3_2_5_1","doi-asserted-by":"publisher","DOI":"10.1080\/1364557032000119616"},{"key":"e_1_3_2_6_1","doi-asserted-by":"publisher","DOI":"10.3390\/muscles4040059"},{"key":"e_1_3_2_7_1","doi-asserted-by":"publisher","DOI":"10.1016\/j.nmd.2025.105317"},{"key":"e_1_3_2_8_1","doi-asserted-by":"publisher","DOI":"10.3390\/bs13120956"},{"key":"e_1_3_2_9_1","doi-asserted-by":"publisher","DOI":"10.1371\/journal.pone.0288875"},{"key":"e_1_3_2_10_1","doi-asserted-by":"crossref","unstructured":"Bilenchi VA Banfi PI Pagnini F et al. (2021) Psycho-educational groups for people with amyotrophic lateral sclerosis and their caregiver: A qualitative study. Research Square. https:\/\/doi.org\/10.21203\/rs.3.rs-318649\/v1","DOI":"10.21203\/rs.3.rs-318649\/v1"},{"key":"e_1_3_2_11_1","doi-asserted-by":"publisher","DOI":"10.1111\/hsc.12558"},{"key":"e_1_3_2_12_1","doi-asserted-by":"publisher","DOI":"10.1212\/01.wnl.0000438227.48470.62"},{"key":"e_1_3_2_13_1","doi-asserted-by":"publisher","DOI":"10.1186\/s13023-020-01430-8"},{"key":"e_1_3_2_14_1","doi-asserted-by":"publisher","DOI":"10.1080\/21678421.2020.1757114"},{"key":"e_1_3_2_15_1","doi-asserted-by":"publisher","DOI":"10.1186\/s40359-019-0308-x"},{"issue":"1","key":"e_1_3_2_16_1","first-page":"30","article-title":"Telemedicine applied to neuromuscular disorders: Focus on the COVID-19 pandemic era","volume":"41","author":"Giannotta M","year":"2022","unstructured":"Giannotta M, Petrelli C, Pini A (2022) Telemedicine applied to neuromuscular disorders: Focus on the COVID-19 pandemic era. Acta Myologica 41(1):30\u201336.","journal-title":"Acta Myologica"},{"key":"e_1_3_2_17_1","doi-asserted-by":"publisher","DOI":"10.1016\/j.sedeng.2020.09.002"},{"key":"e_1_3_2_18_1","doi-asserted-by":"publisher","DOI":"10.3109\/21678421.2015.1062515"},{"key":"e_1_3_2_19_1","doi-asserted-by":"publisher","DOI":"10.2217\/nmt-2023-0008"},{"key":"e_1_3_2_20_1","doi-asserted-by":"publisher","DOI":"10.3390\/healthcare12121171"},{"key":"e_1_3_2_21_1","doi-asserted-by":"publisher","DOI":"10.1007\/s00415-016-8080-9"},{"key":"e_1_3_2_22_1","doi-asserted-by":"publisher","DOI":"10.1007\/s00415-018-8878-8"},{"key":"e_1_3_2_23_1","doi-asserted-by":"publisher","DOI":"10.1080\/13548506.2015.1115110"},{"key":"e_1_3_2_24_1","doi-asserted-by":"publisher","DOI":"10.1097\/JNN.0b013e3182477a62"},{"key":"e_1_3_2_25_1","doi-asserted-by":"publisher","DOI":"10.1016\/j.otsr.2017.04.019"},{"key":"e_1_3_2_26_1","doi-asserted-by":"publisher","DOI":"10.2196\/72141"},{"key":"e_1_3_2_27_1","doi-asserted-by":"publisher","DOI":"10.1016\/j.pedn.2020.11.001"},{"key":"e_1_3_2_28_1","doi-asserted-by":"publisher","DOI":"10.1111\/jep.13808"},{"key":"e_1_3_2_29_1","doi-asserted-by":"publisher","DOI":"10.1186\/s12913-022-07986-4"},{"key":"e_1_3_2_30_1","doi-asserted-by":"publisher","DOI":"10.1080\/02739615.2021.1961581"},{"key":"e_1_3_2_31_1","doi-asserted-by":"publisher","DOI":"10.1097\/DBP.0000000000001421"},{"key":"e_1_3_2_32_1","doi-asserted-by":"publisher","DOI":"10.1016\/j.recesp.2021.06.016"},{"key":"e_1_3_2_33_1","doi-asserted-by":"publisher","DOI":"10.1080\/21678421.2021.1928707"},{"key":"e_1_3_2_34_1","doi-asserted-by":"publisher","DOI":"10.3390\/bs13100822"},{"key":"e_1_3_2_35_1","doi-asserted-by":"publisher","DOI":"10.1097\/MD.0000000000011039"},{"key":"e_1_3_2_36_1","doi-asserted-by":"publisher","DOI":"10.3389\/fneur.2024.1349501"},{"key":"e_1_3_2_37_1","doi-asserted-by":"publisher","DOI":"10.3390\/ijerph18062991"},{"key":"e_1_3_2_38_1","doi-asserted-by":"crossref","unstructured":"Ruddy R House A (2005) Psychosocial interventions for conversion disorder. Cochrane Database of Systematic Reviews (4): CD005331. Epub ahead of print 19 October 2005. https:\/\/doi.org\/10.1002\/14651858.CD005331.pub2","DOI":"10.1002\/14651858.CD005331.pub2"},{"key":"e_1_3_2_39_1","doi-asserted-by":"publisher","DOI":"10.3389\/fpsyt.2022.904841"},{"key":"e_1_3_2_40_1","doi-asserted-by":"publisher","DOI":"10.1017\/S1478951515001248"},{"key":"e_1_3_2_41_1","doi-asserted-by":"publisher","DOI":"10.1177\/0269216317743434"},{"key":"e_1_3_2_42_1","doi-asserted-by":"publisher","DOI":"10.3109\/21678421.2015.1038276"},{"key":"e_1_3_2_43_1","doi-asserted-by":"publisher","DOI":"10.1186\/s13023-017-0671-8"},{"key":"e_1_3_2_44_1","doi-asserted-by":"publisher","DOI":"10.1186\/s13023-022-02525-0"},{"key":"e_1_3_2_45_1","doi-asserted-by":"publisher","DOI":"10.3233\/JND-160155"},{"key":"e_1_3_2_46_1","doi-asserted-by":"publisher","DOI":"10.1080\/21678421.2019.1621344"},{"key":"e_1_3_2_47_1","doi-asserted-by":"publisher","DOI":"10.3389\/fped.2023.1212012"},{"key":"e_1_3_2_48_1","doi-asserted-by":"publisher","DOI":"10.1212\/WNL.0000000000207474"}],"container-title":["Journal of Health Psychology"],"original-title":[],"language":"en","link":[{"URL":"https:\/\/journals.sagepub.com\/doi\/pdf\/10.1177\/13591053261449653","content-type":"application\/pdf","content-version":"vor","intended-application":"text-mining"},{"URL":"https:\/\/journals.sagepub.com\/doi\/full-xml\/10.1177\/13591053261449653","content-type":"application\/xml","content-version":"vor","intended-application":"text-mining"},{"URL":"https:\/\/journals.sagepub.com\/doi\/pdf\/10.1177\/13591053261449653","content-type":"unspecified","content-version":"vor","intended-application":"similarity-checking"}],"deposited":{"date-parts":[[2026,5,23]],"date-time":"2026-05-23T08:17:29Z","timestamp":1779524249000},"score":1,"resource":{"primary":{"URL":"https:\/\/journals.sagepub.com\/doi\/10.1177\/13591053261449653"}},"subtitle":[],"short-title":[],"issued":{"date-parts":[[2026,5,20]]},"references-count":47,"alternative-id":["10.1177\/13591053261449653"],"URL":"https:\/\/doi.org\/10.1177\/13591053261449653","relation":{},"ISSN":["1359-1053","1461-7277"],"issn-type":[{"value":"1359-1053","type":"print"},{"value":"1461-7277","type":"electronic"}],"subject":[],"published":{"date-parts":[[2026,5,20]]},"article-number":"13591053261449653"}}