{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2026,8,3]],"date-time":"2026-08-03T18:45:25Z","timestamp":1785782725373,"version":"3.56.0"},"reference-count":19,"publisher":"SAGE Publications","license":[{"start":{"date-parts":[[2026,8,1]],"date-time":"2026-08-01T00:00:00Z","timestamp":1785542400000},"content-version":"tdm","delay-in-days":0,"URL":"https:\/\/journals.sagepub.com\/page\/policies\/text-and-data-mining-license"}],"funder":[{"name":"Sasagawa Health Science Foundation"},{"DOI":"10.13039\/501100001691","name":"Sasagawa Health Science Foundation","doi-asserted-by":"publisher","award":["20791803"],"award-info":[{"award-number":["20791803"]}],"id":[{"id":"10.13039\/501100001691","id-type":"DOI","asserted-by":"publisher"}]},{"name":"Keio Research Institute at SFC"},{"name":"Keio SFC Academic Society"}],"content-domain":{"domain":["journals.sagepub.com"],"crossmark-restriction":true},"short-container-title":["J Health Psychol"],"abstract":"<jats:p>Advances in respiratory care have enabled people living with amyotrophic lateral sclerosis (PALS) using tracheostomy invasive ventilation (TIV) to live for many years with the disease. However, longitudinal evidence describing their psychosocial trajectories remains limited. This study explored the long-term trajectories of three PALS using TIV through repeated face-to-face assessments over an approximately 18\u2009year period. Psychological state, subjective physical symptoms, and hope followed similar patterns across participants, worsening after illness onset and reaching their lowest levels between diagnosis and TIV initiation before improving and becoming increasingly individual over time. Perceived psychological support and sources of joy peaked after TIV initiation before fluctuating, whereas perceived financial status remained relatively stable. These findings demonstrate a shared pattern of early adaptation followed by increasingly individual long-term trajectories, providing a foundation for trajectory-informed holistic care.<\/jats:p>","DOI":"10.1177\/13591053261474390","type":"journal-article","created":{"date-parts":[[2026,8,1]],"date-time":"2026-08-01T10:46:41Z","timestamp":1785581201000},"update-policy":"https:\/\/doi.org\/10.1177\/sage-journals-update-policy","source":"Crossref","is-referenced-by-count":0,"title":["Long-term trajectories of physical, psychological, and psychosocial experiences among people living with amyotrophic lateral sclerosis using tracheostomy invasive ventilation: An 18-year longitudinal study"],"prefix":"10.1177","author":[{"ORCID":"https:\/\/orcid.org\/0009-0001-3885-2458","authenticated-orcid":false,"given":"Yuko","family":"Hirano","sequence":"first","affiliation":[{"name":"Keio University, Japan"},{"name":"Nippon Medical School, Japan"}],"role":[{"vocabulary":"crossref","role":"author"}]}],"member":"179","published-online":{"date-parts":[[2026,8,1]]},"reference":[{"key":"e_1_3_3_2_1","doi-asserted-by":"crossref","unstructured":"Abate BB Sendekie AK Tadesse AW et al. 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(2024) Coping as a resource to allow for psychosocial adjustment in fatal disease: Results from patients with amyotrophic lateral sclerosis. Frontiers in Psychology 15: 1361767. https:\/\/doi.org\/10.3389\/fpsyg.2024.1361767","DOI":"10.3389\/fpsyg.2024.1361767"},{"key":"e_1_3_3_6_1","doi-asserted-by":"crossref","unstructured":"Herth K (1992) Abbreviated instrument to measure hope: Development and psychometric evaluation. Journal of Advanced Nursing 17(10): 1251\u20131259. https:\/\/doi.org\/10.3389\/fpsyg.2024.1361767","DOI":"10.1111\/j.1365-2648.1992.tb01843.x"},{"key":"e_1_3_3_7_1","doi-asserted-by":"crossref","unstructured":"Hirano Y (2009) Coping resources and their meanings for ventilator-dependent amyotrophic lateral sclerosis patients living at home in Japan: Sources of psychological support happiness and hope. 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