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The children and adolescents of age\u2009\u2a7d18\u2009years, who met the Fourth Edition of the Diagnostic and Statistical Manual of Mental Disorders or Fifth Edition of the Diagnostic and Statistical Manual of Mental Disorders criteria for autism spectrum disorder, were eligible for inclusion in the autism spectrum disorder registry program. A total of 1120 cases were registered from January 2015 to December 2023. The majority of the participants were male (81.60%), diagnosed with autism spectrum disorder between the ages of 3 and 7\u2009years (41.90%), born through cesarean delivery (73.56%), and received their primary diagnosis from a psychiatrist (85.49%). According to the Fourth Edition of the Diagnostic and Statistical Manual of Mental Disorders criteria, approximately 83% of the cases were diagnosed with autistic disorder, 3% with Asperger\u2019s disorder, and 13% with pervasive developmental disorder not otherwise specified. The autism spectrum disorder registry has the potential to contribute significantly to the development of effective policies for diagnosis and treatment services. By linking children\u2019s clinical and treatment data, it can help shape healthcare policies and services on a broader scale.<\/jats:p>\n                  <jats:sec>\n                    <jats:title>Lay abstract<\/jats:title>\n                    <jats:p>The autism spectrum disorder (ASD) registry program presents a unique opportunity to facilitate advanced research in various aspects of ASD, particularly in low-resource countries like Iran. Given the international significance of autism research, registry programs play a critical role in data sharing. ASD registry programs have been effectively established in high-income countries over a few decades; however, there are limited examples from low- and middle-income countries. This study presents a firsthand description of the design and primary findings of a 9-year established ASD registry program from the northwest of Iran. It elucidates the program\u2019s feasibility for other low-income settings, providing valuable insights for researchers and policymakers.<\/jats:p>\n                  <\/jats:sec>","DOI":"10.1177\/13623613241305723","type":"journal-article","created":{"date-parts":[[2024,12,21]],"date-time":"2024-12-21T07:51:26Z","timestamp":1734767486000},"page":"1446-1457","update-policy":"https:\/\/doi.org\/10.1177\/sage-journals-update-policy","source":"Crossref","is-referenced-by-count":4,"title":["Design, methodology, and early findings of an autism registry program: ABBILAR project"],"prefix":"10.1177","volume":"29","author":[{"given":"Hassan","family":"Shahrokhi","sequence":"first","affiliation":[{"name":"Research Center of Psychiatry and Behavioral Sciences, Tabriz University of Medical Sciences, Tabriz, Iran"},{"name":"Autism and Related Neurodevelopmental Disorders Research Team, Tabriz University of Medical Sciences, Tabriz, 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