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Attention is drawn to the reaction of the parents in the audience. The power of the presenter to direct proceedings highlights the potential vulnerability of the audience. The relationship between clinician on stage and parents in the audience reflects the clinical relationship between doctor and patient. But through identifying insiders and outsiders, the conference setting also enables new relationships and collective identities to be formed. Drawing on an ethnographic study of rare disease conferences, this article extends understanding of medical work by identifying how conferences offer new ways of witnessing the clinical gaze, the doctor\u2013patient relationship and the formation and enactment of a conference community.<\/jats:p>","DOI":"10.1177\/1363459314524806","type":"journal-article","created":{"date-parts":[[2014,3,28]],"date-time":"2014-03-28T00:33:10Z","timestamp":1395966790000},"page":"631-645","update-policy":"https:\/\/doi.org\/10.1177\/sage-journals-update-policy","source":"Crossref","is-referenced-by-count":6,"title":["Parent-led conferences as sites of medical work"],"prefix":"10.1177","volume":"18","author":[{"given":"Rebecca","family":"Dimond","sequence":"first","affiliation":[{"name":"Cardiff University, UK"}],"role":[{"vocabulary":"crossref","role":"author"}]}],"member":"179","published-online":{"date-parts":[[2014,3,27]]},"reference":[{"key":"bibr1-1363459314524806","volume-title":"Diagnostic Dysmorphology","author":"Aase JM","year":"1990"},{"key":"bibr2-1363459314524806","volume-title":"Medical Talk and Medical Work: The Liturgy of the Clinic","author":"Atkinson P","year":"1995"},{"key":"bibr3-1363459314524806","doi-asserted-by":"publisher","DOI":"10.1136\/adc.83.6.475"},{"key":"bibr4-1363459314524806","doi-asserted-by":"publisher","DOI":"10.1016\/j.jpeds.2011.02.039"},{"key":"bibr5-1363459314524806","doi-asserted-by":"publisher","DOI":"10.1111\/1467-9566.ep10939100"},{"key":"bibr6-1363459314524806","doi-asserted-by":"publisher","DOI":"10.7551\/mitpress\/6352.001.0001"},{"key":"bibr7-1363459314524806","volume-title":"Acting in an Uncertain World: An Essay on Technical Democracy","author":"Callon M","year":"2001"},{"key":"bibr8-1363459314524806","doi-asserted-by":"publisher","DOI":"10.7208\/chicago\/9780226113791.001.0001"},{"key":"bibr9-1363459314524806","doi-asserted-by":"publisher","DOI":"10.1002\/ajmg.a.31910"},{"key":"bibr10-1363459314524806","volume-title":"Children in Clinics: A Sociological Analysis of Medical Work with Children","author":"Davis AG","year":"1982"},{"key":"bibr11-1363459314524806","doi-asserted-by":"publisher","DOI":"10.1016\/j.jpeds.2005.08.021"},{"key":"bibr12-1363459314524806","unstructured":"Dimond R (2010) Multiple meanings of a rare genetic syndrome : 22q11 deletion syndrome, PhD thesis, Cardiff University, UK."},{"key":"bibr13-1363459314524806","doi-asserted-by":"publisher","DOI":"10.1111\/1467-9566.12035"},{"key":"bibr14-1363459314524806","doi-asserted-by":"publisher","DOI":"10.4324\/9780203361832"},{"key":"bibr15-1363459314524806","volume-title":"Creating Conditions: The Making and Remaking of a Genetic Syndrome","author":"Featherstone K","year":"2011"},{"key":"bibr16-1363459314524806","first-page":"101","volume-title":"New Genetics, New Identities","author":"Featherstone K","year":"2006"},{"key":"bibr17-1363459314524806","doi-asserted-by":"publisher","DOI":"10.1111\/j.1467-9566.2005.00456.x"},{"key":"bibr18-1363459314524806","author":"Fine G","year":"2007","journal-title":"Presentation to Cardiff University"},{"key":"bibr19-1363459314524806","volume-title":"The Birth of the Clinic: An Archaeology of Medical Perception","author":"Foucault M","year":"1973"},{"key":"bibr20-1363459314524806","volume-title":"Profession of Medicine: A Study of the Sociology of Applied Knowledge","author":"Freidson E","year":"1970"},{"key":"bibr21-1363459314524806","doi-asserted-by":"publisher","DOI":"10.1016\/j.socscimed.2003.09.035"},{"key":"bibr22-1363459314524806","unstructured":"Goffman E (1963) Stigma: Notes on the Management of Spoiled Identity. 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