{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2026,5,1]],"date-time":"2026-05-01T19:17:10Z","timestamp":1777663030112,"version":"3.51.4"},"reference-count":67,"publisher":"SAGE Publications","issue":"2","license":[{"start":{"date-parts":[[2020,6,2]],"date-time":"2020-06-02T00:00:00Z","timestamp":1591056000000},"content-version":"unspecified","delay-in-days":0,"URL":"https:\/\/creativecommons.org\/licenses\/by\/4.0\/"}],"funder":[{"DOI":"10.13039\/501100002341","name":"Academy of Finland","doi-asserted-by":"publisher","award":["315067"],"award-info":[{"award-number":["315067"]}],"id":[{"id":"10.13039\/501100002341","id-type":"DOI","asserted-by":"publisher"}]},{"DOI":"10.13039\/501100002341","name":"Academy of Finland","doi-asserted-by":"publisher","award":["326546"],"award-info":[{"award-number":["326546"]}],"id":[{"id":"10.13039\/501100002341","id-type":"DOI","asserted-by":"publisher"}]}],"content-domain":{"domain":["journals.sagepub.com"],"crossmark-restriction":true},"short-container-title":["Health (London)"],"published-print":{"date-parts":[[2022,3]]},"abstract":"<jats:p>The article traces the emergence of a new type of vaccine injury\u2014vaccine-associated narcolepsy\u2014following immunization with Pandemrix vaccine during the 2009 H1N1 pandemic in Europe. The article highlights the processual nature of vaccine injury: it shows how vaccine-associated narcolepsy emerges gradually as a recognized object through epidemiological and immunological studies as well as patient organizations\u2019 public discourses. The article argues that despite public recognition of injury, vaccine-associated narcolepsy remains an incongruous object characterized by underlying tensions. These tensions take shape in relation to the history of vaccine injury debates, on the one hand, and the connection between vaccine-associated narcolepsy and non-vaccine-related narcolepsy, on the other. The article shows how these underlying tensions enable a range of mutually incompatible framings and mobilizations through which risk, harm, responsibility, and justice are claimed and negotiated.<\/jats:p>","DOI":"10.1177\/1363459320925880","type":"journal-article","created":{"date-parts":[[2020,6,3]],"date-time":"2020-06-03T00:05:48Z","timestamp":1591142748000},"page":"162-180","update-policy":"https:\/\/doi.org\/10.1177\/sage-journals-update-policy","source":"Crossref","is-referenced-by-count":5,"title":["The 2009 H1N1 pandemic, vaccine-associated narcolepsy, and the politics of risk and harm"],"prefix":"10.1177","volume":"26","author":[{"ORCID":"https:\/\/orcid.org\/0000-0001-8613-0428","authenticated-orcid":false,"given":"Venla","family":"Oikkonen","sequence":"first","affiliation":[{"name":"Tampere University, Finland"}],"role":[{"role":"author","vocabulary":"crossref"}]}],"member":"179","published-online":{"date-parts":[[2020,6,2]]},"reference":[{"key":"bibr1-1363459320925880","doi-asserted-by":"publisher","DOI":"10.1057\/9781137467201"},{"key":"bibr2-1363459320925880","doi-asserted-by":"publisher","DOI":"10.1126\/scitranslmed.aab2354"},{"key":"bibr3-1363459320925880","doi-asserted-by":"publisher","DOI":"10.1016\/j.jneuroim.2014.08.134"},{"key":"bibr4-1363459320925880","unstructured":"Briggs H (2011) Swine flu narcolepsy \u201clink\u201d probed by WHO.\n                      BBC\n                      , 8 February. Available at: https:\/\/www.bbc.co.uk\/news\/health-12390540"},{"key":"bibr5-1363459320925880","volume-title":"State of Immunity: The Politics of Vaccination in Twentieth-Century America","author":"Colgrove J","year":"2006"},{"key":"bibr6-1363459320925880","volume-title":"Vaccine Nation: America\u2019s Changing Relationship with Immunization","author":"Conis E","year":"2015"},{"key":"bibr7-1363459320925880","unstructured":"Connolly M-L (2011) Link between narcolepsy and flu vaccine investigated.\n                      BBC\n                      , 30 September. https:\/\/www.bbc.co.uk\/news\/uk-northern-ireland-15130951"},{"key":"bibr8-1363459320925880","doi-asserted-by":"publisher","DOI":"10.1093\/brain\/awt187"},{"key":"bibr9-1363459320925880","doi-asserted-by":"publisher","DOI":"10.1177\/0306312715600278"},{"key":"bibr10-1363459320925880","doi-asserted-by":"publisher","DOI":"10.2307\/j.ctt6wrdfm"},{"key":"bibr11-1363459320925880","unstructured":"European Centre for Disease Prevention and Control (ECDC) (2011) ECDC\u2014VAESCO investigation into narcolepsy. Available at: https:\/\/ecdc.europa.eu\/en\/news-events\/ecdc-vaesco-investigation-narcolepsy"},{"key":"bibr12-1363459320925880","volume-title":"Narcolepsy in Association with Pandemic Influenza Vaccination: A Multi-Country European Epidemiological Investigation","author":"European Centre for Disease Prevention and Control (ECDC) (","year":"2012"},{"key":"bibr13-1363459320925880","doi-asserted-by":"publisher","DOI":"10.1111\/joim.12391"},{"key":"bibr14-1363459320925880","volume-title":"Genetics and the Social Sciences: Making Biologies and Identities","author":"Gibbon S","year":"2008"},{"key":"bibr15-1363459320925880","doi-asserted-by":"publisher","DOI":"10.1057\/biosoc.2015.30"},{"issue":"2","key":"bibr16-1363459320925880","first-page":"211","volume":"75","author":"Haertlein LL","year":"2012","journal-title":"Law and Contemporary Problems"},{"key":"bibr17-1363459320925880","doi-asserted-by":"publisher","DOI":"10.1177\/1363459319886112"},{"key":"bibr18-1363459320925880","doi-asserted-by":"publisher","DOI":"10.1002\/ana.22587"},{"key":"bibr19-1363459320925880","doi-asserted-by":"publisher","DOI":"10.1353\/nib.2016.0058"},{"key":"bibr20-1363459320925880","doi-asserted-by":"publisher","DOI":"10.1016\/j.sleep.2013.03.020"},{"key":"bibr21-1363459320925880","doi-asserted-by":"publisher","DOI":"10.2307\/j.ctv16755tt"},{"key":"bibr22-1363459320925880","first-page":"415","volume":"67","author":"Holland MS","year":"2018","journal-title":"Emory Law Journal"},{"key":"bibr23-1363459320925880","unstructured":"Ilta-Sanomat (2010) Tehosteaineen yhteys narkolepsiaan selvitet\u00e4\u00e4n.\n                      Ilta-Sanomat\n                      , 24 August. Available at: https:\/\/www.is.fi\/kotimaa\/art-2000000044084.html"},{"key":"bibr24-1363459320925880","doi-asserted-by":"publisher","DOI":"10.1111\/j.1548-1352.2009.01079.x"},{"key":"bibr25-1363459320925880","unstructured":"Kelland K (2013) Insight: GSK vaccine ingredient scrutinized for narcolepsy clues. Reuters, 8 February. Available at: https:\/\/www.reuters.com\/article\/us-narcolepsy-vaccine-adjuvant\/insight-gsk-vaccine-ingredient-scrutinized-for-narcolepsy-clues-idUSBRE91708V20130208"},{"key":"bibr26-1363459320925880","doi-asserted-by":"publisher","DOI":"10.18574\/nyu\/9781479876938.001.0001"},{"key":"bibr27-1363459320925880","doi-asserted-by":"publisher","DOI":"10.16995\/ee.1142"},{"key":"bibr28-1363459320925880","doi-asserted-by":"publisher","DOI":"10.7765\/9781526110916.00019"},{"key":"bibr29-1363459320925880","volume-title":"The Viral Network: A Pathography of the H1N1 Influenza Pandemic","author":"MacPhail T","year":"2014"},{"key":"bibr30-1363459320925880","unstructured":"Medical Products Agency\/L\u00e4kemedelsverket (MPA) (2011a) A registry based comparative cohort study in four Swedish counties of the risk for narcolepsy after vaccination with Pandemrix\u2014A first and preliminary report."},{"key":"bibr31-1363459320925880","unstructured":"Medical Products Agency\/L\u00e4kemedelsverket (MPA) (2011b) Occurrence of narcolepsy with cataplexy among children and adolescents in relation to the H1N1 pandemic and Pandemrix vaccinations\u2014Results of a case inventory study by the MPA in Sweden during 2009-2010."},{"key":"bibr32-1363459320925880","doi-asserted-by":"publisher","DOI":"10.1371\/journal.pone.0068402"},{"key":"bibr33-1363459320925880","doi-asserted-by":"publisher","DOI":"10.1136\/bmj.f794"},{"key":"bibr34-1363459320925880","volume-title":"Homes and Farms","author":"Mol A","year":"2010"},{"key":"bibr35-1363459320925880","doi-asserted-by":"publisher","DOI":"10.1111\/ane.12749"},{"key":"bibr36-1363459320925880","unstructured":"Narcolepsy UK (2015) Important ruling in Pandemrix case. 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Available at: https:\/\/www.narkolepsiforeningen.se\/ (accessed 22 November 2018)."},{"key":"bibr44-1363459320925880","doi-asserted-by":"publisher","DOI":"10.1177\/0306312710391923"},{"key":"bibr45-1363459320925880","doi-asserted-by":"publisher","DOI":"10.1057\/biosoc.2014.18"},{"key":"bibr46-1363459320925880","doi-asserted-by":"publisher","DOI":"10.1371\/journal.pone.0033536"},{"issue":"17","key":"bibr47-1363459320925880","doi-asserted-by":"crossref","first-page":"15","DOI":"10.2807\/1560-7917.ES2014.19.17.20789","volume":"19","author":"O\u2019Flanagan D","year":"2014","journal-title":"Eurosurveillance"},{"key":"bibr48-1363459320925880","doi-asserted-by":"publisher","DOI":"10.1111\/joim.12150"},{"key":"bibr49-1363459320925880","doi-asserted-by":"publisher","DOI":"10.1057\/biosoc.2014.4"},{"key":"bibr50-1363459320925880","doi-asserted-by":"publisher","DOI":"10.1057\/biosoc.2014.2"},{"key":"bibr51-1363459320925880","volume-title":"Essays on the Anthropology of Reason","author":"Rabinow P","year":"1996"},{"key":"bibr52-1363459320925880","volume-title":"Calling the Shots: Why Parents Reject Vaccines","author":"Reich JA","year":"2016"},{"key":"bibr53-1363459320925880","unstructured":"Riegel R (2018) Revealed: Children got double dose of \u201cnarcolepsy\u201d jab.\n                      The Irish Independent\n                      , 7 August. 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