{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2026,9,30]],"date-time":"2026-09-30T11:32:45Z","timestamp":1790767965305,"version":"4.1.0"},"reference-count":17,"publisher":"SAGE Publications","issue":"1","license":[{"start":{"date-parts":[[2007,3,1]],"date-time":"2007-03-01T00:00:00Z","timestamp":1172707200000},"content-version":"tdm","delay-in-days":0,"URL":"https:\/\/journals.sagepub.com\/page\/policies\/text-and-data-mining-license"}],"content-domain":{"domain":[],"crossmark-restriction":false},"short-container-title":["J Child Health Care"],"published-print":{"date-parts":[[2007,3]]},"abstract":"<jats:p>There has been little research into the psychosocial impact of Juvenile Huntington\u2019s Disease on the child and family. This study investigates the social and health care needs of those affected by Juvenile Huntington\u2019s Disease. Ten semi-structured interviews with carers were analysed using the qualitative methodology interpretative phenomenological analysis. This article reports three themes on the social support that families received. The first theme describes how parents perceived the support that they received from family and friends. The second and third themes describe how parents perceived helpful and unhelpful experiences of professional support. This corresponds to the view that social support is a \u2018double-edged sword\u2019, which can both ameliorate the effects of, and be a source of, stress. This information should be useful to those supporting the family of a child with a chronic or terminal illness.<\/jats:p>","DOI":"10.1177\/1367493507073060","type":"journal-article","created":{"date-parts":[[2007,2,7]],"date-time":"2007-02-07T05:04:34Z","timestamp":1170824674000},"page":"40-52","source":"Crossref","is-referenced-by-count":15,"title":["Caring for a child with Juvenile Huntington\u2019s Disease: helpful and                 unhelpful support"],"prefix":"10.1177","volume":"11","author":[{"given":"Helen M.","family":"Brewer","sequence":"first","affiliation":[{"name":"Huntington\u2019s Disease Association, London and School of\r                        Psychology, Birkbeck College, London, UK"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Jonathan A.","family":"Smith","sequence":"additional","affiliation":[{"name":"School of Psychology, Birkbeck College, London, UK"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Virginia","family":"Eatough","sequence":"additional","affiliation":[{"name":"School of Psychology, Birkbeck College, London, UK"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Cath A.","family":"Stanley","sequence":"additional","affiliation":[{"name":"Huntington\u2019s Disease Association (England and Wales), London, UK"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Neil W.","family":"Glendinning","sequence":"additional","affiliation":[{"name":"Huntington\u2019s Disease Association, London, UK"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Oliver W.J.","family":"Quarrell","sequence":"additional","affiliation":[{"name":"Huntington\u2019s Disease Association, London and North Trent,\r                        Clinical Genetics Service, Sheffield Children\u2019s Hospital,\r                        Sheffield, UK"}],"role":[{"vocabulary":"crossref","role":"author"}]}],"member":"179","published-online":{"date-parts":[[2007,3,1]]},"reference":[{"key":"atypb1","doi-asserted-by":"publisher","DOI":"10.1037\/h0077140"},{"key":"atypb2","doi-asserted-by":"publisher","DOI":"10.1111\/j.1600-0404.1980.tb03041.x"},{"key":"atypb3","first-page":"298","volume-title":"Diseases in the Basal Ganglia: Handbook of Clinical Neurology","author":"Bruyn, G. W.","year":"1968"},{"key":"atypb4","volume-title":"Chronic Childhood Disease: an Introduction to Psychological Theory and Research","author":"Eiser, C.","year":"1990"},{"key":"atypb5","volume-title":"Growing Up with a Chronic Disease: the Impact on Children and Their Families","author":"Eiser, C.","year":"1993"},{"key":"atypb6","first-page":"159","volume-title":"Huntington\u2019s Disease","author":"Harper, P. S.","year":"2002","edition":"3"},{"key":"atypb7","doi-asserted-by":"publisher","DOI":"10.1007\/978-1-4471-1308-9"},{"key":"atypb8","first-page":"28","volume-title":"Huntington\u2019s Disease","author":"Kremer, B.","year":"2002","edition":"3"},{"key":"atypb9","doi-asserted-by":"publisher","DOI":"10.1212\/WNL.49.4.1048"},{"key":"atypb10","doi-asserted-by":"publisher","DOI":"10.1212\/WNL.52.2.392"},{"key":"atypb11","doi-asserted-by":"publisher","DOI":"10.1016\/0277-9536(91)90385-P"},{"key":"atypb12","first-page":"3","volume-title":"Stress and Emotion: Anxiety, Anger and Curiosity","author":"Sarason, I. G.","year":"1996"},{"key":"atypb13","doi-asserted-by":"publisher","DOI":"10.1080\/08870448908400361"},{"issue":"1","key":"atypb14","first-page":"39","volume":"1","author":"Smith, J. A.","year":"2004","journal-title":"Qualitative Research in Psychology"},{"key":"atypb15","first-page":"51","volume-title":"Qualitative Psychology","author":"Smith, J. A.","year":"2003"},{"key":"atypb16","first-page":"255","volume-title":"Social Psychology of Health and Illness","author":"Suls, J.","year":"1982"},{"key":"atypb17","doi-asserted-by":"publisher","DOI":"10.1093\/hmg\/2.10.1535"}],"container-title":["Journal of Child Health Care"],"original-title":[],"language":"en","link":[{"URL":"https:\/\/journals.sagepub.com\/doi\/pdf\/10.1177\/1367493507073060","content-type":"application\/pdf","content-version":"vor","intended-application":"text-mining"},{"URL":"https:\/\/journals.sagepub.com\/doi\/pdf\/10.1177\/1367493507073060","content-type":"unspecified","content-version":"vor","intended-application":"similarity-checking"}],"deposited":{"date-parts":[[2026,4,28]],"date-time":"2026-04-28T14:57:59Z","timestamp":1777388279000},"score":1,"resource":{"primary":{"URL":"https:\/\/journals.sagepub.com\/doi\/10.1177\/1367493507073060"}},"subtitle":[],"short-title":[],"issued":{"date-parts":[[2007,3]]},"references-count":17,"journal-issue":{"issue":"1","published-print":{"date-parts":[[2007,3]]}},"alternative-id":["10.1177\/1367493507073060"],"URL":"https:\/\/doi.org\/10.1177\/1367493507073060","relation":{},"ISSN":["1367-4935","1741-2889"],"issn-type":[{"value":"1367-4935","type":"print"},{"value":"1741-2889","type":"electronic"}],"subject":[],"published":{"date-parts":[[2007,3]]}}}