{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2026,10,16]],"date-time":"2026-10-16T06:19:09Z","timestamp":1792131549389,"version":"4.4.0"},"reference-count":48,"publisher":"SAGE Publications","issue":"2","license":[{"start":{"date-parts":[[2012,2,3]],"date-time":"2012-02-03T00:00:00Z","timestamp":1328227200000},"content-version":"tdm","delay-in-days":0,"URL":"https:\/\/journals.sagepub.com\/page\/policies\/text-and-data-mining-license"}],"content-domain":{"domain":["journals.sagepub.com"],"crossmark-restriction":true},"short-container-title":["J Child Health Care"],"published-print":{"date-parts":[[2012,6]]},"abstract":"<jats:p>The objective of this article is to explore information needs of children with juvenile idiopathic arthritis (JIA) and their parents in order to develop a web-based psychoeducational program aimed at improving their quality of life. A qualitative study design was used. A purposive sample of children ( n = 41; 8\u201311 years) with JIA and parents ( n = 48) participated in parent\u2013child interviews ( n = 29), and four child-focus and four parent-focus group interviews. Transcribed data were organized into categories that reflected emerging themes. Findings uncovered three major themes: \u201cliving with JIA\u201d, \u201cjointly managing JIA\u201d, and \u201cneed for a web-based program of JIA information and social Support\u201d. Subthemes for \u201cLiving with JIA\u201d were as follows: \u201cimpact on participation\u201d, \u201cworry and distress\u201d, and \u201creceiving social support\u201d. Subthemes under \u201cJointly Managing JIA\u201d included \u201cobtaining JIA information\u201d, \u201ccommunication and advocacy\u201d, and \u201cstrategies to manage JIA\u201d. Participants endorsed a web-based program as a way to access JIA information and social support. In order to jointly manage JIA, participants expressed the need for disease-specific information, management strategies, and social support and felt that the Internet was acceptable for delivering these disease-management strategies. Findings from this study will inform development and evaluation of an online program to help children and parents jointly manage JIA.<\/jats:p>","DOI":"10.1177\/1367493511430679","type":"journal-article","created":{"date-parts":[[2012,2,3]],"date-time":"2012-02-03T23:04:09Z","timestamp":1328310249000},"page":"124-140","update-policy":"https:\/\/doi.org\/10.1177\/sage-journals-update-policy","source":"Crossref","is-referenced-by-count":29,"title":["Jointly managing arthritis"],"prefix":"10.1177","volume":"16","author":[{"given":"Jennifer N","family":"Stinson","sequence":"first","affiliation":[{"name":"The Hospital for Sick Children and University of Toronto, Canada"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Brian M","family":"Feldman","sequence":"additional","affiliation":[{"name":"The Hospital for Sick Children and University of Toronto, Canada"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Ciaran 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