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Yet, little practical guidance is provided, and transitional care remains suboptimal for many families. This study aimed to examine how parents understand and experience their caregiving role during their child\u2019s transition to adult services, to identify parents\u2019 needs, and to inform service improvements. Focus groups were undertaken with parents of young people with brittle asthma, osteogenesis imperfecta, or epilepsy. Data were analysed using interpretative phenomenological analysis. Participants ( n = 13) described how their parenting roles extended beyond what they consider usual in adolescence. These roles were presented as time consuming, stressful, and unrelenting but necessary to protect children from harm in the face of multiple risks and uncertainties. Such protective strategies were also perceived to hinder adolescent development, family functioning, and their own development as midlife adults. Finding a balance between protecting immediate health and long-term well-being was a major theme. Participants called for improved support, including improved service organization. Recommendations are provided for working with parents and young people to manage the risks and uncertainties associated with their condition, as part of routine transitional care.<\/jats:p>","DOI":"10.1177\/1367493520936422","type":"journal-article","created":{"date-parts":[[2020,6,30]],"date-time":"2020-06-30T08:08:31Z","timestamp":1593504511000},"page":"305-319","update-policy":"https:\/\/doi.org\/10.1177\/sage-journals-update-policy","source":"Crossref","is-referenced-by-count":28,"title":["\u2018A confident parent breeds a confident child\u2019: Understanding the experience and needs of parents whose children will transition from paediatric to adult care"],"prefix":"10.1177","volume":"25","author":[{"given":"Karen L","family":"Shaw","sequence":"first","affiliation":[{"name":"Institute of Applied Health Research, University of Birmingham, UK"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Lydia","family":"Baldwin","sequence":"additional","affiliation":[{"name":"College of Medical and Dental Sciences, University of Birmingham, UK"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"ORCID":"https:\/\/orcid.org\/0000-0002-1569-5576","authenticated-orcid":false,"given":"Gemma","family":"Heath","sequence":"additional","affiliation":[{"name":"Institute of Human Sciences, University of Wolverhampton, UK"}],"role":[{"vocabulary":"crossref","role":"author"}]}],"member":"179","published-online":{"date-parts":[[2020,6,30]]},"reference":[{"key":"bibr1-1367493520936422","doi-asserted-by":"publisher","DOI":"10.1136\/bmj.327.7417.728"},{"key":"bibr2-1367493520936422","doi-asserted-by":"publisher","DOI":"10.1016\/j.pedn.2015.05.020"},{"key":"bibr3-1367493520936422","doi-asserted-by":"publisher","DOI":"10.1542\/peds.110.S3.1304"},{"key":"bibr4-1367493520936422","doi-asserted-by":"publisher","DOI":"10.1177\/1074840715595024"},{"key":"bibr5-1367493520936422","unstructured":"Care Quality Commission (2014) From the pond into the sea (children's transition to adult health services). 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