{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2026,4,29]],"date-time":"2026-04-29T20:35:22Z","timestamp":1777494922347,"version":"3.51.4"},"reference-count":39,"publisher":"SAGE Publications","issue":"3","license":[{"start":{"date-parts":[[2022,3,2]],"date-time":"2022-03-02T00:00:00Z","timestamp":1646179200000},"content-version":"unspecified","delay-in-days":0,"URL":"https:\/\/creativecommons.org\/licenses\/by\/4.0\/"}],"funder":[{"DOI":"10.13039\/501100015509","name":"National Institute for Health Research Collaboration for Leadership in Applied Health Research and Care North West Coast","doi-asserted-by":"publisher","id":[{"id":"10.13039\/501100015509","id-type":"DOI","asserted-by":"publisher"}]}],"content-domain":{"domain":["journals.sagepub.com"],"crossmark-restriction":true},"short-container-title":["J Child Health Care"],"published-print":{"date-parts":[[2023,9]]},"abstract":"<jats:p>Transition services for young people with long-term conditions often fall short. This qualitative study explored perspectives on service features that enable effective transition in epilepsy and juvenile idiopathic arthritis. Patients, parents, clinicians and service commissioners took part in semi-structured interviews ( n = 18). Thematic analysis was used to identify key features, barriers and facilitators of effective transition across participant groups. Analysis led to the development of nine sub-themes which mapped to overarching domains of communication, capability, continuity and capacity. Findings include the need for age appropriate communication, the link between parental dependence, self-care and patient knowledge, the value of service integration for continuity and the impact of capacity on flexible and age appropriate transition services.<\/jats:p>","DOI":"10.1177\/13674935221074777","type":"journal-article","created":{"date-parts":[[2022,3,2]],"date-time":"2022-03-02T13:49:57Z","timestamp":1646228997000},"page":"435-449","update-policy":"https:\/\/doi.org\/10.1177\/sage-journals-update-policy","source":"Crossref","is-referenced-by-count":4,"title":["Stuck in transit: A qualitative study of the transitional care needs of young people with epilepsy and juvenile idiopathic arthritis"],"prefix":"10.1177","volume":"27","author":[{"ORCID":"https:\/\/orcid.org\/0000-0003-2235-6086","authenticated-orcid":false,"given":"Neil","family":"Wilson","sequence":"first","affiliation":[{"name":"Faculty of Health and Care, University of Central Lancashire, Preston, UK"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Karen","family":"Whittaker","sequence":"additional","affiliation":[{"name":"Visiting Fellow, School of Nursing, University of Central Lancashire, Preston, UK"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Janine","family":"Arnott","sequence":"additional","affiliation":[{"name":"Faculty of Health and Care, University of Central Lancashire, Preston, UK"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Lauren","family":"Burke","sequence":"additional","affiliation":[{"name":"Institute of Translational Medicine, University of Liverpool, Liverpool, UK"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Michael W","family":"Beresford","sequence":"additional","affiliation":[{"name":"Institute of Translational Medicine, University of Liverpool, Liverpool, UK"},{"name":"Alder Hey Children\u2019s NHS Foundation Trust, Liverpool, UK"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Matthew","family":"Peak","sequence":"additional","affiliation":[{"name":"Alder Hey Children\u2019s NHS Foundation Trust, Liverpool, UK"}],"role":[{"role":"author","vocabulary":"crossref"}]}],"member":"179","published-online":{"date-parts":[[2022,3,2]]},"reference":[{"key":"bibr1-13674935221074777","doi-asserted-by":"publisher","DOI":"10.1080\/24694193.2021.1933264"},{"key":"bibr2-13674935221074777","doi-asserted-by":"publisher","DOI":"10.1191\/1478088706qp063oa"},{"key":"bibr3-13674935221074777","doi-asserted-by":"publisher","DOI":"10.1177\/1367493517753330"},{"key":"bibr4-13674935221074777","doi-asserted-by":"publisher","DOI":"10.1016\/j.pediatrneurol.2014.02.020"},{"key":"bibr5-13674935221074777","doi-asserted-by":"publisher","DOI":"10.5698\/1535-7511-12.4s.13"},{"key":"bibr6-13674935221074777","first-page":"CD009794","volume":"4","author":"Campbell F","year":"2016","journal-title":"The Cochrane Database of Systematic Reviews Electronic Resource"},{"key":"bibr7-13674935221074777","unstructured":"Care Quality Commission (2014) From the pond into the sea: children\u2019s transition to adult health services. Available at: http:\/\/www.cqc.org.uk\/content\/teenagers-complex-health-needs-lacksupport-they-approach- adulthood (accessed 13 June 2016)."},{"key":"bibr8-13674935221074777","doi-asserted-by":"publisher","DOI":"10.1186\/s12969-017-0179-8"},{"key":"bibr9-13674935221074777","doi-asserted-by":"publisher","DOI":"10.1136\/archdischild-2013-303945"},{"key":"bibr10-13674935221074777","doi-asserted-by":"publisher","DOI":"10.1186\/s12916-018-1102-y"},{"key":"bibr12-13674935221074777","doi-asserted-by":"publisher","DOI":"10.1111\/jocn.15006"},{"key":"bibr13-13674935221074777","doi-asserted-by":"publisher","DOI":"10.1177\/13674935211028410"},{"key":"bibr15-13674935221074777","doi-asserted-by":"publisher","DOI":"10.1136\/archdischild-2015-309473"},{"key":"bibr16-13674935221074777","doi-asserted-by":"publisher","DOI":"10.1016\/j.ijnurstu.2013.02.001"},{"key":"bibr17-13674935221074777","doi-asserted-by":"publisher","DOI":"10.1136\/annrheumdis-2016-210112"},{"key":"bibr18-13674935221074777","doi-asserted-by":"publisher","DOI":"10.1016\/j.yebeh.2014.12.041"},{"key":"bibr19-13674935221074777","doi-asserted-by":"publisher","DOI":"10.1016\/j.yebeh.2017.05.003"},{"key":"bibr20-13674935221074777","doi-asserted-by":"publisher","DOI":"10.1016\/j.yebeh.2020.107324"},{"key":"bibr21-13674935221074777","doi-asserted-by":"publisher","DOI":"10.1016\/j.pec.2016.08.011"},{"key":"bibr22-13674935221074777","doi-asserted-by":"publisher","DOI":"10.1016\/j.jadohealth.2016.04.004"},{"key":"bibr24-13674935221074777","doi-asserted-by":"publisher","DOI":"10.1016\/j.bpg.2020.101687"},{"key":"bibr25-13674935221074777","doi-asserted-by":"publisher","DOI":"10.1136\/bmjpo-2017-000085"},{"key":"bibr26-13674935221074777","doi-asserted-by":"publisher","DOI":"10.1186\/1471-2431-13-169"},{"key":"bibr27-13674935221074777","doi-asserted-by":"publisher","DOI":"10.1542\/peds.2012-1450"},{"key":"bibr28-13674935221074777","doi-asserted-by":"publisher","DOI":"10.1177\/1355819617752744"},{"key":"bibr29-13674935221074777","doi-asserted-by":"publisher","DOI":"10.1016\/j.chc.2016.12.010"},{"key":"bibr30-13674935221074777","doi-asserted-by":"publisher","DOI":"10.1186\/s13075-017-1502-y"},{"key":"bibr31-13674935221074777","volume-title":"Transition from Children\u2019s to Adults\u2019 Services for Young People Using Health and Social Care Services","author":"National Institute for Health and Care Excellence (NICE)","year":"2016"},{"key":"bibr32-13674935221074777","doi-asserted-by":"publisher","DOI":"10.1377\/hlthaff.2014.0832"},{"key":"bibr33-13674935221074777","doi-asserted-by":"publisher","DOI":"10.1136\/bmjopen-2019-029107"},{"key":"bibr34-13674935221074777","doi-asserted-by":"publisher","DOI":"10.1186\/s12913-019-4726-5"},{"key":"bibr35-13674935221074777","volume-title":"Adolescent Transition Care: Guidance for Nursing Staff","author":"Royal College of Nursing","year":"2013","edition":"2"},{"key":"bibr36-13674935221074777","doi-asserted-by":"publisher","DOI":"10.2147\/OARRR.S138370"},{"key":"bibr37-13674935221074777","doi-asserted-by":"publisher","DOI":"10.1177\/1367493520936422"},{"key":"bibr39-13674935221074777","doi-asserted-by":"publisher","DOI":"10.1111\/j.1365-2214.2008.00844.x"},{"key":"bibr40-13674935221074777","doi-asserted-by":"publisher","DOI":"10.1016\/j.pec.2010.12.001"},{"key":"bibr41-13674935221074777","doi-asserted-by":"publisher","DOI":"10.1111\/j.1365-2214.2011.01261.x"},{"key":"bibr43-13674935221074777","doi-asserted-by":"publisher","DOI":"10.1111\/jspn.12314"},{"key":"bibr44-13674935221074777","volume-title":"Global Standards for Quality Health-Care Services for Adolescents: A Guide to Implement a Standards-Driven Approach to Improve the Quality of Health-Care Services for Adolescents","author":"World Health Organization","year":"2015"}],"container-title":["Journal of Child Health Care"],"original-title":[],"language":"en","link":[{"URL":"http:\/\/journals.sagepub.com\/doi\/pdf\/10.1177\/13674935221074777","content-type":"application\/pdf","content-version":"vor","intended-application":"text-mining"},{"URL":"http:\/\/journals.sagepub.com\/doi\/full-xml\/10.1177\/13674935221074777","content-type":"application\/xml","content-version":"vor","intended-application":"text-mining"},{"URL":"http:\/\/journals.sagepub.com\/doi\/pdf\/10.1177\/13674935221074777","content-type":"unspecified","content-version":"vor","intended-application":"similarity-checking"}],"deposited":{"date-parts":[[2026,4,28]],"date-time":"2026-04-28T14:59:25Z","timestamp":1777388365000},"score":1,"resource":{"primary":{"URL":"http:\/\/journals.sagepub.com\/doi\/10.1177\/13674935221074777"}},"subtitle":[],"short-title":[],"issued":{"date-parts":[[2022,3,2]]},"references-count":39,"journal-issue":{"issue":"3","published-print":{"date-parts":[[2023,9]]}},"alternative-id":["10.1177\/13674935221074777"],"URL":"https:\/\/doi.org\/10.1177\/13674935221074777","relation":{},"ISSN":["1367-4935","1741-2889"],"issn-type":[{"value":"1367-4935","type":"print"},{"value":"1741-2889","type":"electronic"}],"subject":[],"published":{"date-parts":[[2022,3,2]]}}}