{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2026,7,13]],"date-time":"2026-07-13T20:45:42Z","timestamp":1783975542636,"version":"3.55.0"},"reference-count":39,"publisher":"SAGE Publications","issue":"4","license":[{"start":{"date-parts":[[2022,4,4]],"date-time":"2022-04-04T00:00:00Z","timestamp":1649030400000},"content-version":"tdm","delay-in-days":0,"URL":"https:\/\/journals.sagepub.com\/page\/policies\/text-and-data-mining-license"}],"content-domain":{"domain":["journals.sagepub.com"],"crossmark-restriction":true},"short-container-title":["J Child Health Care"],"published-print":{"date-parts":[[2023,12]]},"abstract":"<jats:p>This qualitative study was conducted to explore the experiences of youth living with bronchiectasis in New Zealand (NZ). Semi-structured interviews were conducted with youth with bronchiectasis. Key themes were identified using an inductive approach through constant comparative analysis and guided by Thorne\u2019s interpretive description (ID). Fifteen young people of mixed ethnicity (nine females and six males) aged between 13 and 23\u00a0years participated. Three key themes \u2018sore and tired\u2019, \u2018life interrupted and \u2018looking after self\u2019 were identified. This paper will focus on \u2018sore and tired\u2019 and its three subthemes which describe the participants symptom experience. While there was variability in physical symptom patterns, cough, soreness and fatigue were prominent features impacting physical, emotional and social aspects of day-to-day life. All identified pervasive and profound fatigue as significant. The identification of prodromal symptoms provides opportunity for greater appreciation of the varied and personal symptom experience of young people with bronchiectasis. Early identification of these symptoms and inclusion within management plans for escalating treatment has the potential to improve outcomes, reducing delays in seeking additional medical management and preventing further exacerbation.<\/jats:p>","DOI":"10.1177\/13674935221082437","type":"journal-article","created":{"date-parts":[[2022,4,4]],"date-time":"2022-04-04T21:49:41Z","timestamp":1649108981000},"page":"587-598","update-policy":"https:\/\/doi.org\/10.1177\/sage-journals-update-policy","source":"Crossref","is-referenced-by-count":2,"title":["Sore and tired. A qualitative study exploring the symptom experience of youth with bronchiectasis"],"prefix":"10.1177","volume":"27","author":[{"ORCID":"https:\/\/orcid.org\/0000-0002-8515-1769","authenticated-orcid":false,"given":"Julie","family":"Blamires","sequence":"first","affiliation":[{"name":"School of Clinical Sciences, Auckland University of Technology, Auckland, New Zealand"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Annette","family":"Dickinson","sequence":"additional","affiliation":[{"name":"School of Clinical Sciences, Auckland University of Technology, Auckland, New Zealand"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Catherine A","family":"Byrnes","sequence":"additional","affiliation":[{"name":"Department of Paediatrics, Child and Youth Health, Faculty of Health & Medical Sciences, University of Auckland, Auckland, New Zealand"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"El Shadan","family":"Tautolo","sequence":"additional","affiliation":[{"name":"School of Public Health & Interdisciplinary Studies. Director \u2013 AUT Pacific Health Research Centre, Auckland University of Technology, Auckland, New Zealand"}],"role":[{"vocabulary":"crossref","role":"author"}]}],"member":"179","published-online":{"date-parts":[[2022,4,4]]},"reference":[{"key":"bibr1-13674935221082437","volume-title":"A \u2018Pretty Normal Life\u2019 with Bronchiectasis. An Interpretive Description","author":"Blamires J","year":"2020"},{"key":"bibr2-13674935221082437","doi-asserted-by":"publisher","DOI":"10.1080\/17482631.2021.2003520"},{"key":"bibr3-13674935221082437","unstructured":"bpac nz (2020) Preventing and managing bronchiectasis in high risk populations. Epub ahead of print 13 May 2020."},{"key":"bibr4-13674935221082437","doi-asserted-by":"publisher","DOI":"10.5694\/j.1326-5377.2010.tb03949.x"},{"key":"bibr5-13674935221082437","doi-asserted-by":"publisher","DOI":"10.5694\/mja14.00287"},{"key":"bibr6-13674935221082437","doi-asserted-by":"publisher","DOI":"10.1016\/S0140-6736(18)31554-X"},{"key":"bibr7-13674935221082437","doi-asserted-by":"publisher","DOI":"10.1183\/20734735.0105-2021"},{"key":"bibr8-13674935221082437","doi-asserted-by":"publisher","DOI":"10.1016\/B978-0-323-44887-1.00026-2"},{"key":"bibr9-13674935221082437","doi-asserted-by":"publisher","DOI":"10.1177\/1043454208321117"},{"key":"bibr10-13674935221082437","doi-asserted-by":"publisher","DOI":"10.1177\/1359105312471569"},{"key":"bibr11-13674935221082437","doi-asserted-by":"publisher","DOI":"10.1186\/s12890-018-0631-7"},{"key":"bibr12-13674935221082437","doi-asserted-by":"publisher","DOI":"10.1136\/pmj.76.897.413"},{"key":"bibr13-13674935221082437","doi-asserted-by":"publisher","DOI":"10.1016\/j.jcf.2009.04.003"},{"key":"bibr14-13674935221082437","doi-asserted-by":"publisher","DOI":"10.1183\/13993003.00051-2017"},{"key":"bibr15-13674935221082437","doi-asserted-by":"publisher","DOI":"10.1136\/thoraxjnl-2018-212468"},{"key":"bibr16-13674935221082437","doi-asserted-by":"publisher","DOI":"10.1016\/j.rmedc.2008.12.007"},{"key":"bibr17-13674935221082437","doi-asserted-by":"publisher","DOI":"10.2147\/IJGM.S39280"},{"key":"bibr18-13674935221082437","doi-asserted-by":"publisher","DOI":"10.1002\/ppul.20783"},{"issue":"2","key":"bibr19-13674935221082437","first-page":"111","volume":"92","author":"Lesan A","year":"2019","journal-title":"Medicine and Pharmacy Reports"},{"key":"bibr20-13674935221082437","doi-asserted-by":"publisher","DOI":"10.1080\/02770903.2016.1201835"},{"issue":"27","key":"bibr21-13674935221082437","first-page":"1","volume":"5","author":"McCallum GB","year":"2017","journal-title":"Frontiers in Pediatrics"},{"key":"bibr22-13674935221082437","doi-asserted-by":"publisher","DOI":"10.1111\/hex.12217"},{"key":"bibr23-13674935221082437","doi-asserted-by":"publisher","DOI":"10.1093\/jpepsy\/jsj112"},{"key":"bibr24-13674935221082437","unstructured":"Morse JM (1994) Emerging from the Data: The Cognitive Processes of Analysis in Qualitative InquiryCritical Issues in Qualitative Research Methods. Thousand Oaks, CA: Sage, 23\u201343."},{"key":"bibr25-13674935221082437","doi-asserted-by":"publisher","DOI":"10.1002\/ppul.21331"},{"key":"bibr26-13674935221082437","doi-asserted-by":"publisher","DOI":"10.1016\/j.jaip.2013.01.012"},{"key":"bibr27-13674935221082437","volume-title":"NVivo Qualitative Data Analysis Software Version 12","author":"QSR International Pty Ltd","year":"2018"},{"key":"bibr28-13674935221082437","doi-asserted-by":"publisher","DOI":"10.1378\/chest.14-0126"},{"key":"bibr29-13674935221082437","doi-asserted-by":"publisher","DOI":"10.1016\/j.pedhc.2009.10.003"},{"key":"bibr30-13674935221082437","doi-asserted-by":"publisher","DOI":"10.1111\/j.1752-699X.2009.00147.x"},{"key":"bibr31-13674935221082437","doi-asserted-by":"publisher","DOI":"10.1016\/S0954-6111(97)90251-1"},{"key":"bibr32-13674935221082437","doi-asserted-by":"publisher","DOI":"10.3109\/09593985.2013.845863"},{"key":"bibr33-13674935221082437","doi-asserted-by":"publisher","DOI":"10.1378\/chest.10-0099"},{"key":"bibr34-13674935221082437","doi-asserted-by":"publisher","DOI":"10.1503\/cmaj.160830"},{"key":"bibr35-13674935221082437","volume-title":"Understanding Patients' Experience of Living with Non-cystic Fibrosis Bronchiectasis","author":"Spinou A","year":"2013"},{"key":"bibr36-13674935221082437","unstructured":"Telfar-Barnard L, Zhang J (2019) .The impact of respiratory disease in New Zealand: 2018 update. Reportno. Report Number|, Date. Place Published|. Institution|"},{"key":"bibr37-13674935221082437","doi-asserted-by":"publisher","DOI":"10.4324\/9781315426259"},{"key":"bibr38-13674935221082437","doi-asserted-by":"publisher","DOI":"10.1136\/adc.2004.066472"},{"key":"bibr39-13674935221082437","doi-asserted-by":"publisher","DOI":"10.4187\/respcare.06394"}],"container-title":["Journal of Child Health Care"],"original-title":[],"language":"en","link":[{"URL":"https:\/\/journals.sagepub.com\/doi\/pdf\/10.1177\/13674935221082437","content-type":"application\/pdf","content-version":"vor","intended-application":"text-mining"},{"URL":"https:\/\/journals.sagepub.com\/doi\/full-xml\/10.1177\/13674935221082437","content-type":"application\/xml","content-version":"vor","intended-application":"text-mining"},{"URL":"https:\/\/journals.sagepub.com\/doi\/pdf\/10.1177\/13674935221082437","content-type":"unspecified","content-version":"vor","intended-application":"similarity-checking"}],"deposited":{"date-parts":[[2026,4,28]],"date-time":"2026-04-28T14:59:27Z","timestamp":1777388367000},"score":1,"resource":{"primary":{"URL":"https:\/\/journals.sagepub.com\/doi\/10.1177\/13674935221082437"}},"subtitle":[],"short-title":[],"issued":{"date-parts":[[2022,4,4]]},"references-count":39,"journal-issue":{"issue":"4","published-print":{"date-parts":[[2023,12]]}},"alternative-id":["10.1177\/13674935221082437"],"URL":"https:\/\/doi.org\/10.1177\/13674935221082437","relation":{},"ISSN":["1367-4935","1741-2889"],"issn-type":[{"value":"1367-4935","type":"print"},{"value":"1741-2889","type":"electronic"}],"subject":[],"published":{"date-parts":[[2022,4,4]]}}}