{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2026,10,26]],"date-time":"2026-10-26T22:36:16Z","timestamp":1793054176476,"version":"4.5.0"},"reference-count":55,"publisher":"SAGE Publications","issue":"3","license":[{"start":{"date-parts":[[2024,3,29]],"date-time":"2024-03-29T00:00:00Z","timestamp":1711670400000},"content-version":"vor","delay-in-days":0,"URL":"https:\/\/creativecommons.org\/licenses\/by\/4.0\/"},{"start":{"date-parts":[[2024,3,29]],"date-time":"2024-03-29T00:00:00Z","timestamp":1711670400000},"content-version":"tdm","delay-in-days":0,"URL":"https:\/\/journals.sagepub.com\/page\/policies\/text-and-data-mining-license"}],"funder":[{"name":"Golda Meir Post-Doctoral Fellowship Fund"},{"DOI":"10.13039\/501100000925","name":"National Health and Medical Research Council","doi-asserted-by":"publisher","award":["APP2008300"],"award-info":[{"award-number":["APP2008300"]}],"id":[{"id":"10.13039\/501100000925","id-type":"DOI","asserted-by":"publisher"}]}],"content-domain":{"domain":["journals.sagepub.com"],"crossmark-restriction":true},"short-container-title":["J Child Health Care"],"published-print":{"date-parts":[[2025,9]]},"abstract":"<jats:p>\n                    Parents of a child with a chronic illness can experience greater distress than the average population, yet little is understood about differences between illness groups. This cross-sectional survey study aimed to compare parents\u2019 psychological distress and perceived wellbeing across five chronic illnesses. Parents from one Australian pediatric hospital completed the Kessler Psychological Distress Scale and seven purpose-designed items about their wellbeing. Data from 106 parents (cancer = 48, cystic fibrosis [CF] = 27, kidney disease = 12, gastrointestinal condition\/disorder = 9, developmental and epileptic encephalopathy [DEE] = 10) was analysed using bivariate Pearson\u2019s Correlation and linear mixed-effects models. Parents\u2019 distress scores differed between groups (\n                    <jats:italic>F<\/jats:italic>\n                    (4,80) = 2.50,\n                    <jats:italic>p<\/jats:italic>\n                    = .049), with the DEE group reporting higher distress than the CF group (\n                    <jats:italic>mean difference<\/jats:italic>\n                    = 6.76, 95% CI [0.11, 13.42]). Distress scores were moderately correlated to parents\u2019 perceptions of their child\u2019s health and their own wellbeing. Parents\u2019 self-reported coping with their child\u2019s condition\/treatments differed (\n                    <jats:italic>F<\/jats:italic>\n                    (4,81) = 3.24,\n                    <jats:italic>p<\/jats:italic>\n                    = .016), with the DEE group rating their coping as poorer than the CF group (\n                    <jats:italic>mean difference<\/jats:italic>\n                    = \u221225.32, 95% CI [\u221246.52, 4.11]). Across all groups, parents reported unmet needs, particularly for psychosocial support and practical\/financial assistance. Support interventions may be most effective if tailored to the child\u2019s illness, with greater support potentially needed for parents who have a child with DEE and\/or severe comorbidities.\n                  <\/jats:p>","DOI":"10.1177\/13674935241238485","type":"journal-article","created":{"date-parts":[[2024,3,29]],"date-time":"2024-03-29T12:37:28Z","timestamp":1711715848000},"page":"626-641","update-policy":"https:\/\/doi.org\/10.1177\/sage-journals-update-policy","source":"Crossref","is-referenced-by-count":17,"title":["Psychological wellbeing among parents of a child living with a serious chronic illness: A cross-sectional survey study"],"prefix":"10.1177","volume":"29","author":[{"ORCID":"https:\/\/orcid.org\/0000-0001-9395-7896","authenticated-orcid":false,"given":"Eden G","family":"Robertson","sequence":"first","affiliation":[{"name":"Discipline of Paediatrics and Child Health, School of Clinical Medicine, UNSW Medicine and Health, UNSW Sydney, Randwick, NSW, Australia"},{"name":"Behavioural Sciences Unit, Kids Cancer Centre, Sydney Children\u2019s Hospital, Randwick, NSW, Australia"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Lauren","family":"Kelada","sequence":"additional","affiliation":[{"name":"Discipline of Paediatrics and Child Health, School of Clinical Medicine, UNSW Medicine and Health, UNSW Sydney, Randwick, NSW, Australia"},{"name":"Behavioural Sciences Unit, Kids Cancer Centre, Sydney Children\u2019s Hospital, Randwick, NSW, Australia"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Robert","family":"Ilin","sequence":"additional","affiliation":[{"name":"Discipline of Paediatrics and Child Health, School of Clinical Medicine, UNSW Medicine and Health, UNSW Sydney, Randwick, NSW, Australia"},{"name":"Behavioural Sciences Unit, Kids Cancer Centre, Sydney Children\u2019s Hospital, Randwick, NSW, Australia"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Elizabeth Emma","family":"Palmer","sequence":"additional","affiliation":[{"name":"Discipline of Paediatrics and Child Health, School of Clinical Medicine, UNSW Medicine and Health, UNSW Sydney, Randwick, NSW, Australia"},{"name":"Centre for Clinical Genetics, Sydney Children\u2019s Hospitals Network, Randwick, NSW, Australia"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Ann","family":"Bye","sequence":"additional","affiliation":[{"name":"Discipline of Paediatrics and Child Health, School of Clinical Medicine, UNSW Medicine and Health, UNSW Sydney, Randwick, NSW, Australia"},{"name":"Department of Neurology, Sydney Children\u2019s Hospital, Randwick, NSW, Australia"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Adam","family":"Jaffe","sequence":"additional","affiliation":[{"name":"Discipline of Paediatrics and Child Health, School of Clinical Medicine, UNSW Medicine and Health, UNSW Sydney, Randwick, NSW, Australia"},{"name":"Department of Respiratory Medicine, Sydney Children\u2019s Hospital, Randwick, NSW, Australia"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Sean E","family":"Kennedy","sequence":"additional","affiliation":[{"name":"Discipline of Paediatrics and Child Health, School of Clinical Medicine, UNSW Medicine and Health, UNSW Sydney, Randwick, NSW, Australia"},{"name":"Department of Nephrology, Sydney Children\u2019s Hospital, Randwick, NSW, Australia"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Chee Y","family":"Ooi","sequence":"additional","affiliation":[{"name":"Discipline of Paediatrics and Child Health, School of Clinical Medicine, UNSW Medicine and Health, UNSW Sydney, Randwick, NSW, Australia"},{"name":"Department of Gastroenterology, Sydney Children\u2019s Hospital, Randwick, NSW, Australia"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Donna","family":"Drew","sequence":"additional","affiliation":[{"name":"Kids Cancer Centre, Sydney Children\u2019s Hospital, Randwick, NSW, Australia"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Claire E","family":"Wakefield","sequence":"additional","affiliation":[{"name":"Discipline of Paediatrics and Child Health, School of Clinical Medicine, UNSW Medicine and Health, UNSW Sydney, Randwick, NSW, Australia"},{"name":"Behavioural Sciences Unit, Kids Cancer Centre, Sydney Children\u2019s Hospital, Randwick, NSW, Australia"}],"role":[{"vocabulary":"crossref","role":"author"}]}],"member":"179","published-online":{"date-parts":[[2024,3,29]]},"reference":[{"key":"e_1_3_4_2_1","doi-asserted-by":"publisher","DOI":"10.1111\/j.1467-842X.2001.tb00310.x"},{"key":"e_1_3_4_3_1","volume-title":"Information Paper: Use of the Kessler Psychological Distress Scale in ABS Health Surveys, Australia, 2007-08","author":"Australian Bureau of Statistics","year":"2012","unstructured":"Australian Bureau of Statistics (2012) Information Paper: Use of the Kessler Psychological Distress Scale in ABS Health Surveys, Australia, 2007-08. 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