{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2026,10,27]],"date-time":"2026-10-27T04:34:07Z","timestamp":1793075647381,"version":"4.5.0"},"reference-count":57,"publisher":"SAGE Publications","license":[{"start":{"date-parts":[[2026,10,18]],"date-time":"2026-10-18T00:00:00Z","timestamp":1792281600000},"content-version":"vor","delay-in-days":0,"URL":"https:\/\/creativecommons.org\/licenses\/by-nc\/4.0\/"},{"start":{"date-parts":[[2026,10,18]],"date-time":"2026-10-18T00:00:00Z","timestamp":1792281600000},"content-version":"tdm","delay-in-days":0,"URL":"https:\/\/journals.sagepub.com\/page\/policies\/text-and-data-mining-license"}],"content-domain":{"domain":["journals.sagepub.com"],"crossmark-restriction":true},"short-container-title":["J Child Health Care"],"abstract":"<jats:p>\n                    This scoping review identified responsibilities of physicians in primary care provision to children with heart disease using the Arksey and O\u2019Malley Framework. Original peer-reviewed research focused on experiences, perceptions, or roles of primary care physicians in caring for children with heart disease was included. Five bibliographic databases were searched (MEDLINE, Cumulative Index of Nursing and Allied Health Literature, Embase, PsychInfo, and Scopus). Google Scholar was used for citation tracking and grey literature searches. Two independent reviewers screened studies and extracted data. 20 studies were included, representing heterogenous patient cohorts (\n                    <jats:italic toggle=\"yes\">n<\/jats:italic>\n                    = 13, 65%), primary care physicians (\n                    <jats:italic toggle=\"yes\">n<\/jats:italic>\n                    = 6, 30%), paediatricians (\n                    <jats:italic toggle=\"yes\">n<\/jats:italic>\n                    = 6, 30%), and specialists (\n                    <jats:italic toggle=\"yes\">n<\/jats:italic>\n                    = 4, 20%). Three themes existed: primary care physician role and preferences in care (\n                    <jats:italic toggle=\"yes\">n<\/jats:italic>\n                    = 6, 30%); primary care access (\n                    <jats:italic toggle=\"yes\">n<\/jats:italic>\n                    = 8, 40%); and preventative and holistic healthcare measures (\n                    <jats:italic toggle=\"yes\">n<\/jats:italic>\n                    = 7, 35%). Barriers to care delivery included lack of confidence in physician knowledge; lack of time and financial incentive to reduce knowledge gaps; lack of clear responsibilities; and ineffective stakeholder communication. Enablers included knowledge of family and longevity in the family\u2019s care. Findings highlighted important roles, and barriers to delivery, of primary care in this patient group. Investigation of health systems, communication, education, and funding to support primary care participation remains a priority.\n                  <\/jats:p>","DOI":"10.1177\/13674935261494402","type":"journal-article","created":{"date-parts":[[2026,10,19]],"date-time":"2026-10-19T06:05:17Z","timestamp":1792389917000},"update-policy":"https:\/\/doi.org\/10.1177\/sage-journals-update-policy","source":"Crossref","is-referenced-by-count":0,"title":["The role of primary care in childhood heart disease: A scoping review"],"prefix":"10.1177","author":[{"ORCID":"https:\/\/orcid.org\/0000-0002-6280-4253","authenticated-orcid":false,"given":"Benjamin C.","family":"Auld","sequence":"first","affiliation":[{"name":"Queensland Children\u2019s Hospital"},{"name":"Australian Centre for Health Services Innovation and Centre for Healthcare Transformation"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"ORCID":"https:\/\/orcid.org\/0000-0002-9134-4188","authenticated-orcid":false,"given":"Karen","family":"Eagleson","sequence":"additional","affiliation":[{"name":"Queensland Children\u2019s Hospital"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Bridget","family":"Abell","sequence":"additional","affiliation":[{"name":"Australian Centre for Health Services Innovation and Centre for Healthcare Transformation"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Steven M.","family":"McPhail","sequence":"additional","affiliation":[{"name":"Australian Centre for Health Services Innovation and Centre for Healthcare Transformation"},{"name":"Metro South Health"}],"role":[{"vocabulary":"crossref","role":"author"}]}],"member":"179","published-online":{"date-parts":[[2026,10,18]]},"reference":[{"key":"e_1_3_6_2_1","doi-asserted-by":"publisher","DOI":"10.1038\/s41390-024-03722-2"},{"key":"e_1_3_6_3_1","doi-asserted-by":"publisher","DOI":"10.1136\/bmjgh-2023-012505"},{"key":"e_1_3_6_4_1","doi-asserted-by":"publisher","DOI":"10.1080\/1364557032000119616"},{"key":"e_1_3_6_5_1","doi-asserted-by":"publisher","DOI":"10.1186\/s12939-023-02040-z"},{"key":"e_1_3_6_6_1","doi-asserted-by":"publisher","DOI":"10.1136\/hrt.2007.122671"},{"key":"e_1_3_6_7_1","doi-asserted-by":"publisher","DOI":"10.1542\/peds.90.1.71"},{"key":"e_1_3_6_8_1","doi-asserted-by":"publisher","DOI":"10.1161\/CIRCRESAHA.116.309302"},{"key":"e_1_3_6_9_1","doi-asserted-by":"publisher","DOI":"10.1161\/JAHA.123.032415"},{"key":"e_1_3_6_10_1","doi-asserted-by":"publisher","DOI":"10.1542\/peds.2008-2600"},{"key":"e_1_3_6_11_1","doi-asserted-by":"publisher","DOI":"10.1016\/j.jacc.2023.02.021"},{"key":"e_1_3_6_12_1","doi-asserted-by":"publisher","DOI":"10.12968\/bjca.2023.0083"},{"issue":"58","key":"e_1_3_6_13_1","first-page":"31","article-title":"Specialist outreach clinics in primary care and rural hospital settings (Cochrane Review)","volume":"19","author":"Gruen R","year":"2006","unstructured":"Gruen R, Weeramanthri T, Knight S, et al. (2006) Specialist outreach clinics in primary care and rural hospital settings (Cochrane Review). Community Eye Health 19(58): 31.","journal-title":"Community Eye Health"},{"key":"e_1_3_6_14_1","doi-asserted-by":"publisher","DOI":"10.1007\/s00246-023-03249-z"},{"key":"e_1_3_6_15_1","doi-asserted-by":"publisher","DOI":"10.1111\/j.1475-6773.2008.00877.x"},{"key":"e_1_3_6_16_1","doi-asserted-by":"publisher","DOI":"10.1016\/j.athoracsur.2020.01.030"},{"key":"e_1_3_6_17_1","doi-asserted-by":"publisher","DOI":"10.1093\/ehjqcco\/qcab009"},{"key":"e_1_3_6_18_1","doi-asserted-by":"publisher","DOI":"10.1186\/s12875-020-01234-6"},{"key":"e_1_3_6_19_1","doi-asserted-by":"publisher","DOI":"10.1071\/AH19132"},{"key":"e_1_3_6_20_1","doi-asserted-by":"publisher","DOI":"10.1016\/j.jpeds.2016.05.029"},{"key":"e_1_3_6_21_1","doi-asserted-by":"publisher","DOI":"10.1136\/archdischild-2017-313653"},{"key":"e_1_3_6_22_1","doi-asserted-by":"publisher","DOI":"10.1542\/peds.2017-2607"},{"key":"e_1_3_6_23_1","doi-asserted-by":"publisher","DOI":"10.1186\/1748-5908-5-69"},{"key":"e_1_3_6_24_1","doi-asserted-by":"publisher","DOI":"10.3390\/ijerph111212716"},{"key":"e_1_3_6_25_1","doi-asserted-by":"publisher","DOI":"10.1186\/s12913-023-10159-6"},{"key":"e_1_3_6_26_1","doi-asserted-by":"publisher","DOI":"10.1007\/s002460010079"},{"key":"e_1_3_6_27_1","doi-asserted-by":"publisher","DOI":"10.1007\/s00246-015-1257-7"},{"key":"e_1_3_6_28_1","doi-asserted-by":"publisher","DOI":"10.1161\/CIRCULATIONAHA.108.839464"},{"key":"e_1_3_6_29_1","doi-asserted-by":"publisher","DOI":"10.1111\/jspn.12185"},{"key":"e_1_3_6_30_1","doi-asserted-by":"publisher","DOI":"10.1161\/CIR.0b013e318265ee8a"},{"key":"e_1_3_6_31_1","doi-asserted-by":"publisher","DOI":"10.2143\/AC.61.4.2017300"},{"key":"e_1_3_6_32_1","doi-asserted-by":"publisher","DOI":"10.1136\/bmj.298.6667.172"},{"key":"e_1_3_6_33_1","doi-asserted-by":"publisher","DOI":"10.1177\/0009922814528035"},{"key":"e_1_3_6_34_1","doi-asserted-by":"publisher","DOI":"10.1186\/s12939-026-02892-1"},{"key":"e_1_3_6_35_1","doi-asserted-by":"publisher","DOI":"10.1016\/j.jpeds.2013.11.066"},{"key":"e_1_3_6_36_1","doi-asserted-by":"publisher","DOI":"10.1542\/peds.106.2.264"},{"issue":"1","key":"e_1_3_6_37_1","first-page":"1","article-title":"The implementation of a cross-jurisdictional clinical network for congenital heart disease","volume":"19","author":"Morrow S","year":"2019","unstructured":"Morrow S, Carroll A (2019) The implementation of a cross-jurisdictional clinical network for congenital heart disease. International Journal of Integrated Care 19(S1): 1\u20132. https:\/\/doi.org\/10.5334\/ijic.s3610","journal-title":"International Journal of Integrated Care"},{"key":"e_1_3_6_38_1","doi-asserted-by":"publisher","DOI":"10.1186\/s12874-018-0611-x"},{"key":"e_1_3_6_39_1","doi-asserted-by":"publisher","DOI":"10.1017\/S104795112200052X"},{"key":"e_1_3_6_40_1","doi-asserted-by":"publisher","DOI":"10.1186\/s12875-024-02389-2"},{"key":"e_1_3_6_41_1","doi-asserted-by":"publisher","DOI":"10.1186\/s13643-016-0384-4"},{"key":"e_1_3_6_42_1","doi-asserted-by":"publisher","DOI":"10.1186\/s12875-016-0442-y"},{"key":"e_1_3_6_43_1","doi-asserted-by":"publisher","DOI":"10.1016\/j.pop.2021.04.005"},{"key":"e_1_3_6_44_1","doi-asserted-by":"publisher","DOI":"10.1053\/jpdn.2001.26572"},{"key":"e_1_3_6_45_1","doi-asserted-by":"publisher","DOI":"10.1542\/peds.2009-1959"},{"key":"e_1_3_6_46_1","doi-asserted-by":"publisher","DOI":"10.1097\/01.mop.0000144442.68016.92"},{"key":"e_1_3_6_47_1","doi-asserted-by":"publisher","DOI":"10.1542\/peds.112.6.1314"},{"key":"e_1_3_6_48_1","doi-asserted-by":"publisher","DOI":"10.1136\/archdischild-2015-308827"},{"key":"e_1_3_6_49_1","doi-asserted-by":"publisher","DOI":"10.7326\/M18-0850"},{"key":"e_1_3_6_50_1","doi-asserted-by":"publisher","DOI":"10.1161\/CIRCULATIONAHA.116.023544"},{"key":"e_1_3_6_51_1","doi-asserted-by":"publisher","DOI":"10.1007\/BF02278871"},{"key":"e_1_3_6_52_1","doi-asserted-by":"publisher","DOI":"10.1056\/NEJMoa1603693"},{"key":"e_1_3_6_53_1","doi-asserted-by":"publisher","DOI":"10.1053\/j.semtcvs.2019.09.005"},{"key":"e_1_3_6_54_1","doi-asserted-by":"publisher","DOI":"10.3399\/bjgp15X686509"},{"key":"e_1_3_6_55_1","doi-asserted-by":"publisher","DOI":"10.1016\/j.jpeds.2024.113931"},{"key":"e_1_3_6_56_1","doi-asserted-by":"publisher","DOI":"10.1097\/MD.0000000000020593"},{"key":"e_1_3_6_57_1","doi-asserted-by":"publisher","DOI":"10.1542\/peds.94.3.284"},{"key":"e_1_3_6_58_1","doi-asserted-by":"publisher","DOI":"10.1007\/s00431-025-06085-w"}],"container-title":["Journal of Child Health Care"],"original-title":[],"language":"en","link":[{"URL":"https:\/\/journals.sagepub.com\/doi\/pdf\/10.1177\/13674935261494402","content-type":"application\/pdf","content-version":"vor","intended-application":"text-mining"},{"URL":"https:\/\/journals.sagepub.com\/doi\/full-xml\/10.1177\/13674935261494402","content-type":"application\/xml","content-version":"vor","intended-application":"text-mining"},{"URL":"https:\/\/journals.sagepub.com\/doi\/pdf\/10.1177\/13674935261494402","content-type":"unspecified","content-version":"vor","intended-application":"similarity-checking"}],"deposited":{"date-parts":[[2026,10,27]],"date-time":"2026-10-27T04:28:12Z","timestamp":1793075292000},"score":1,"resource":{"primary":{"URL":"https:\/\/journals.sagepub.com\/doi\/10.1177\/13674935261494402"}},"subtitle":[],"short-title":[],"issued":{"date-parts":[[2026,10,18]]},"references-count":57,"alternative-id":["10.1177\/13674935261494402"],"URL":"https:\/\/doi.org\/10.1177\/13674935261494402","relation":{},"ISSN":["1367-4935","1741-2889"],"issn-type":[{"value":"1367-4935","type":"print"},{"value":"1741-2889","type":"electronic"}],"subject":[],"published":{"date-parts":[[2026,10,18]]},"article-number":"13674935261494402"}}