{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2026,10,14]],"date-time":"2026-10-14T04:33:04Z","timestamp":1791952384133,"version":"4.3.4"},"reference-count":63,"publisher":"SAGE Publications","issue":"1","license":[{"start":{"date-parts":[[2025,11,10]],"date-time":"2025-11-10T00:00:00Z","timestamp":1762732800000},"content-version":"vor","delay-in-days":0,"URL":"https:\/\/creativecommons.org\/licenses\/by-nc\/4.0\/"},{"start":{"date-parts":[[2025,11,10]],"date-time":"2025-11-10T00:00:00Z","timestamp":1762732800000},"content-version":"tdm","delay-in-days":0,"URL":"https:\/\/journals.sagepub.com\/page\/policies\/text-and-data-mining-license"}],"content-domain":{"domain":["journals.sagepub.com"],"crossmark-restriction":true},"short-container-title":["Journal of Alzheimer\u2019s Disease"],"published-print":{"date-parts":[[2026,1]]},"abstract":"<jats:sec>\n                    <jats:title>Background<\/jats:title>\n                    <jats:p>\n                      Young-onset dementia (YOD), diagnosed before age 65, most often appears as Alzheimer's disease (AD) or frontotemporal dementia (FTD). Compared to late-onset dementia (LOD), YOD poses distinct caregiving, emotional, and social challenges. While research has expanded, it has largely centered on spouses and children, leaving the experiences of parents caring for an adult child with YOD underexplored and in need of greater scholarly attention\n                      <jats:bold>.<\/jats:bold>\n                    <\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Objective<\/jats:title>\n                    <jats:p>This study aims to investigate the unique experiences of parents caring for an adult child diagnosed with YOD.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Methods<\/jats:title>\n                    <jats:p>Qualitative semi-structured interviews were conducted with 12 Hebrew-speaking Jewish Israeli parents who provided informal care to an adult child diagnosed with YOD. The sample included cases of FTD and dementia with Lewy bodies (DLB). Participants were recruited through purposive sampling, and the data were analyzed using thematic analysis.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Results<\/jats:title>\n                    <jats:p>Thematic analysis revealed three themes. The first, \u201cThe Diagnosis,\u201d captured parents\u2019 descriptions of the long and complex diagnostic process, from initial recognition of symptoms to the formal diagnosis. The second, \u201cParent-Child Relationship,\u201d reflected experiences of loss and shifting dynamics within the relationship. The third, \u201cAssimilation Into the Caregiver Role,\u201d highlighted significant changes in personal identity alongside emotional, and practical caregiving challenges.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Conclusions<\/jats:title>\n                    <jats:p>Caring for an adult child with YOD involves a profound sense of loss and presents substantial challenges to parental identity, particularly as parents themselves age. These findings highlight the critical need for tailored interventions, improved communication, and strengthened support within healthcare and mental health systems to effectively address the unique needs of parent caregivers.<\/jats:p>\n                  <\/jats:sec>","DOI":"10.1177\/13872877251393589","type":"journal-article","created":{"date-parts":[[2025,11,10]],"date-time":"2025-11-10T17:09:53Z","timestamp":1762794593000},"page":"266-277","update-policy":"https:\/\/doi.org\/10.1177\/sage-journals-update-policy","source":"Crossref","is-referenced-by-count":2,"title":["Against nature: The experiences of parents caring for an adult child with young-onset dementia"],"prefix":"10.1177","volume":"109","author":[{"ORCID":"https:\/\/orcid.org\/0009-0003-1608-2418","authenticated-orcid":false,"given":"Maya Sharon","family":"Rokach","sequence":"first","affiliation":[{"name":"School of Behavioral Sciences, The Academic College of Tel Aviv-Yaffo, Yaffo, Israel"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"ORCID":"https:\/\/orcid.org\/0000-0001-5111-5252","authenticated-orcid":false,"given":"Avital","family":"Gershfeld-Litvin","sequence":"additional","affiliation":[{"name":"School of Behavioral Sciences, The Academic College of Tel Aviv-Yaffo, Yaffo, Israel"}],"role":[{"vocabulary":"crossref","role":"author"}]}],"member":"179","published-online":{"date-parts":[[2025,11,10]]},"reference":[{"key":"e_1_3_3_2_2","unstructured":"World Health Organization (31 March 2025). Available from: https:\/\/www.who.int\/news-room\/fact-sheets\/detail\/dementia"},{"key":"e_1_3_3_3_2","doi-asserted-by":"publisher","DOI":"10.1001\/jamaneurol.2021.2161"},{"key":"e_1_3_3_4_2","doi-asserted-by":"publisher","DOI":"10.1016\/S1474-4422(10)70159-9"},{"key":"e_1_3_3_5_2","doi-asserted-by":"publisher","DOI":"10.1016\/B978-0-12-815868-5.00035-9"},{"key":"e_1_3_3_6_2","doi-asserted-by":"publisher","DOI":"10.1080\/13607863.2019.1673699"},{"key":"e_1_3_3_7_2","doi-asserted-by":"publisher","DOI":"10.1177\/14713012231173013"},{"key":"e_1_3_3_8_2","doi-asserted-by":"publisher","DOI":"10.1186\/s12877-020-01703-8"},{"key":"e_1_3_3_9_2","doi-asserted-by":"publisher","DOI":"10.1007\/978-3-319-69892-2_847-1"},{"key":"e_1_3_3_10_2","doi-asserted-by":"publisher","DOI":"10.1515\/soeu-2023-0015"},{"key":"e_1_3_3_11_2","doi-asserted-by":"publisher","DOI":"10.1177\/1471301216684401"},{"key":"e_1_3_3_12_2","doi-asserted-by":"publisher","DOI":"10.1080\/13607863.2023.2243585"},{"key":"e_1_3_3_13_2","doi-asserted-by":"publisher","DOI":"10.1017\/S1041610217001806"},{"key":"e_1_3_3_14_2","doi-asserted-by":"publisher","DOI":"10.1017\/S1041610220001118"},{"key":"e_1_3_3_15_2","doi-asserted-by":"publisher","DOI":"10.1007\/s11089-009-0264-0"},{"key":"e_1_3_3_16_2","doi-asserted-by":"publisher","DOI":"10.1300\/J083v37n02_08"},{"key":"e_1_3_3_17_2","doi-asserted-by":"publisher","DOI":"10.1177\/1049732312466294"},{"key":"e_1_3_3_18_2","doi-asserted-by":"publisher","DOI":"10.1017\/S1478951523001360"},{"key":"e_1_3_3_19_2","first-page":"430","article-title":"Elderly parents as caregivers for their adult dependent children","volume":"32","author":"Jennings J","year":"1987","unstructured":"Jennings J. Elderly parents as caregivers for their adult dependent children. Soc Work 1987; 32: 430\u2013433.","journal-title":"Soc Work"},{"key":"e_1_3_3_20_2","doi-asserted-by":"publisher","DOI":"10.1002\/smi.2780"},{"key":"e_1_3_3_21_2","doi-asserted-by":"publisher","DOI":"10.1177\/1049732302239413"},{"key":"e_1_3_3_22_2","doi-asserted-by":"publisher","DOI":"10.1300\/J002v35n01_11"},{"key":"e_1_3_3_23_2","doi-asserted-by":"publisher","DOI":"10.1177\/1471301215581081"},{"key":"e_1_3_3_24_2","doi-asserted-by":"publisher","DOI":"10.1080\/13607863.2016.1247428"},{"key":"e_1_3_3_25_2","doi-asserted-by":"publisher","DOI":"10.1177\/1471301218783542"},{"key":"e_1_3_3_26_2","doi-asserted-by":"publisher","DOI":"10.1093\/geront\/gnab053"},{"key":"e_1_3_3_27_2","doi-asserted-by":"publisher","DOI":"10.1080\/17482631.2024.2330233"},{"key":"e_1_3_3_28_2","doi-asserted-by":"publisher","DOI":"10.1002\/berj.3448"},{"key":"e_1_3_3_29_2","doi-asserted-by":"publisher","DOI":"10.1080\/13607863.2021.2008871"},{"key":"e_1_3_3_30_2","doi-asserted-by":"publisher","DOI":"10.1177\/14713012241247339"},{"key":"e_1_3_3_31_2","doi-asserted-by":"publisher","DOI":"10.2147\/JMDH.S418285"},{"key":"e_1_3_3_32_2","doi-asserted-by":"publisher","DOI":"10.1177\/1471301220988231"},{"key":"e_1_3_3_33_2","first-page":"33","volume-title":"Handbook of methodological approaches to community-based research: qualitative, quantitative, and mixed methods","author":"Riger S","year":"2016","unstructured":"Riger S, Sigurvinsdottir R. Thematic analysis. In: Jason LA, Glenwick DS (eds) Handbook of methodological approaches to community-based research: qualitative, quantitative, and mixed methods. New York: Oxford University Press, 2016, pp.33\u201341."},{"key":"e_1_3_3_34_2","doi-asserted-by":"publisher","DOI":"10.1080\/2159676X.2019.1704846"},{"key":"e_1_3_3_35_2","doi-asserted-by":"publisher","DOI":"10.1002\/gps.4749"},{"key":"e_1_3_3_36_2","doi-asserted-by":"publisher","DOI":"10.3233\/JAD-170409"},{"key":"e_1_3_3_37_2","doi-asserted-by":"publisher","DOI":"10.3233\/JAD-231006"},{"key":"e_1_3_3_38_2","doi-asserted-by":"publisher","DOI":"10.1191\/1478088706qp063oa"},{"key":"e_1_3_3_39_2","doi-asserted-by":"publisher","DOI":"10.1080\/2159676X.2019.1628806"},{"key":"e_1_3_3_40_2","first-page":"3351","article-title":"Doing a thematic analysis: a practical, step-by-step guide for learning and teaching scholars","volume":"9","author":"Maguire M","year":"2017","unstructured":"Maguire M, Delahunt B. Doing a thematic analysis: a practical, step-by-step guide for learning and teaching scholars. All Irel J High Educ 2017; 9: 3351\u20133364.","journal-title":"All Irel J High Educ"},{"key":"e_1_3_3_41_2","volume-title":"Qualitative Inquiry and Research Design: Choosing Among Five Approaches","author":"Creswell JW","year":"2016","unstructured":"Creswell JW, Poth CN. Qualitative Inquiry and Research Design: Choosing Among Five Approaches. 4th ed. Thousand Oaks, CA: Sage Publications, 2016.","edition":"4"},{"key":"e_1_3_3_42_2","doi-asserted-by":"publisher","DOI":"10.1007\/s11135-017-0574-8"},{"key":"e_1_3_3_43_2","doi-asserted-by":"publisher","DOI":"10.1002\/gps.5765"},{"key":"e_1_3_3_44_2","doi-asserted-by":"publisher","DOI":"10.1080\/13607863.2016.1191057"},{"key":"e_1_3_3_45_2","doi-asserted-by":"publisher","DOI":"10.56916\/jesi.v1i1.478"},{"key":"e_1_3_3_46_2","doi-asserted-by":"publisher","DOI":"10.1007\/s12144-025-07311-2"},{"key":"e_1_3_3_47_2","doi-asserted-by":"publisher","DOI":"10.1300\/J083V24N01_02"},{"key":"e_1_3_3_48_2","doi-asserted-by":"publisher","DOI":"10.1080\/02646830410001723733"},{"key":"e_1_3_3_49_2","doi-asserted-by":"publisher","DOI":"10.1007\/s12147-003-0017-9"},{"key":"e_1_3_3_50_2","doi-asserted-by":"publisher","DOI":"10.1177\/0265407506064216"},{"key":"e_1_3_3_51_2","doi-asserted-by":"publisher","DOI":"10.1002\/cd.71"},{"key":"e_1_3_3_52_2","doi-asserted-by":"publisher","DOI":"10.1016\/j.cobeha.2017.05.012"},{"key":"e_1_3_3_53_2","doi-asserted-by":"publisher","DOI":"10.1177\/07399863241310475"},{"key":"e_1_3_3_54_2","doi-asserted-by":"publisher","DOI":"10.1177\/14713012211072929"},{"key":"e_1_3_3_55_2","doi-asserted-by":"publisher","DOI":"10.1177\/1471301214564792"},{"key":"e_1_3_3_56_2","doi-asserted-by":"publisher","DOI":"10.1186\/s12877-020-01754-x"},{"key":"e_1_3_3_57_2","doi-asserted-by":"publisher","DOI":"10.1017\/S1041610216000879"},{"key":"e_1_3_3_58_2","doi-asserted-by":"publisher","DOI":"10.1007\/s12671-021-01634-4"},{"key":"e_1_3_3_59_2","doi-asserted-by":"publisher","DOI":"10.54127\/BHNM9453"},{"key":"e_1_3_3_60_2","doi-asserted-by":"publisher","DOI":"10.1177\/09593535221130698"},{"key":"e_1_3_3_61_2","doi-asserted-by":"publisher","DOI":"10.1007\/978-3-030-41231-9_3"},{"key":"e_1_3_3_62_2","first-page":"131","volume-title":"Caregiving across the lifespan: research, practice, policy","author":"Montgomery RJ","year":"2012","unstructured":"Montgomery RJ, Kosloski KD. Pathways to a caregiver identity and implications for support services. In: Whitbourne SK, Sliwinski MJ (eds) Caregiving across the lifespan: research, practice, policy. New York: Springer, 2012, pp.131\u2013156."},{"key":"e_1_3_3_63_2","doi-asserted-by":"publisher","DOI":"10.1080\/01609513.2022.2148038"},{"key":"e_1_3_3_64_2","doi-asserted-by":"publisher","DOI":"10.4103\/ijsp.ijsp_17_20"}],"container-title":["Journal of Alzheimer\u2019s Disease"],"original-title":[],"language":"en","link":[{"URL":"https:\/\/journals.sagepub.com\/doi\/pdf\/10.1177\/13872877251393589","content-type":"application\/pdf","content-version":"vor","intended-application":"text-mining"},{"URL":"https:\/\/journals.sagepub.com\/doi\/full-xml\/10.1177\/13872877251393589","content-type":"application\/xml","content-version":"vor","intended-application":"text-mining"},{"URL":"https:\/\/journals.sagepub.com\/doi\/pdf\/10.1177\/13872877251393589","content-type":"unspecified","content-version":"vor","intended-application":"similarity-checking"}],"deposited":{"date-parts":[[2026,4,28]],"date-time":"2026-04-28T10:09:37Z","timestamp":1777370977000},"score":1,"resource":{"primary":{"URL":"https:\/\/journals.sagepub.com\/doi\/10.1177\/13872877251393589"}},"subtitle":[],"short-title":[],"issued":{"date-parts":[[2025,11,10]]},"references-count":63,"journal-issue":{"issue":"1","published-print":{"date-parts":[[2026,1]]}},"alternative-id":["10.1177\/13872877251393589"],"URL":"https:\/\/doi.org\/10.1177\/13872877251393589","relation":{},"ISSN":["1387-2877","1875-8908"],"issn-type":[{"value":"1387-2877","type":"print"},{"value":"1875-8908","type":"electronic"}],"subject":[],"published":{"date-parts":[[2025,11,10]]}}}