{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2026,7,13]],"date-time":"2026-07-13T12:12:52Z","timestamp":1783944772085,"version":"3.55.0"},"reference-count":71,"publisher":"SAGE Publications","issue":"3","license":[{"start":{"date-parts":[[2026,3,3]],"date-time":"2026-03-03T00:00:00Z","timestamp":1772496000000},"content-version":"vor","delay-in-days":0,"URL":"https:\/\/creativecommons.org\/licenses\/by\/4.0\/"},{"start":{"date-parts":[[2026,3,3]],"date-time":"2026-03-03T00:00:00Z","timestamp":1772496000000},"content-version":"tdm","delay-in-days":0,"URL":"https:\/\/journals.sagepub.com\/page\/policies\/text-and-data-mining-license"}],"funder":[{"DOI":"10.13039\/501100008747","name":"Deutsche Alzheimer Gesellschaft","doi-asserted-by":"publisher","id":[{"id":"10.13039\/501100008747","id-type":"DOI","asserted-by":"publisher"}]}],"content-domain":{"domain":["journals.sagepub.com"],"crossmark-restriction":true},"short-container-title":["Journal of Alzheimer\u2019s Disease"],"published-print":{"date-parts":[[2026,4]]},"abstract":"<jats:sec>\n                    <jats:title>Background<\/jats:title>\n                    <jats:p>Alzheimer's disease is common in later life and affects the person with dementia as well as their family. As the disease progresses, declining functions of activities of daily living increase dependence on relatives for support, who can become caregivers.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Objective<\/jats:title>\n                    <jats:p>To summarize the current state of knowledge regarding caregivers\u2019 views on Alzheimer's disease and other types of dementia, and to identify overarching themes.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Methods<\/jats:title>\n                    <jats:p>We conducted a scoping review using PRISMA guidelines. Inclusion criteria were: a) qualitative studies or qualitative sections of mixed-methods studies about views on dementia among informal caregivers, b) publication between 2013 and 2023, c) publication in a peer-reviewed journal, d) English or German language. The search was carried out in five scientific databases (MEDLINE, PsycInfo, PSYNDEX, CINHAL, Web of Science). Information on authors, years, settings, participants, aims, methods, type of analysis, and results were extracted. Using reflexive thematic analysis, themes of views on dementia reported in the given articles were summarized.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Results<\/jats:title>\n                    <jats:p>We identified 42 relevant studies reporting views on dementia in informal caregivers and constructed seven themes: \u201cDementia as natural cognitive decline\u201d, \u201cDementia as caregiver burden\u201d, \u201cDementia as stigmatized experience\u201d, \u201cDementia as transition in relationship dynamics\u201d, \u201cDementia as uncertainty\u201d, \u201cDementia as enriching experience\u201d and \u201cDementia as self-inflicted vs. externally determined\u201d.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Conclusions<\/jats:title>\n                    <jats:p>Views on dementia among informal caregivers encompass complex, multi-dimensional attitudes and perceptions warranting a nuanced dementia discourse and offering various starting points for interventions. \u201cDementia as transition in relationships dynamics\u201d emerged as an especially important topic requiring more attention in dementia research.<\/jats:p>\n                  <\/jats:sec>","DOI":"10.1177\/13872877261420210","type":"journal-article","created":{"date-parts":[[2026,3,11]],"date-time":"2026-03-11T14:37:12Z","timestamp":1773239832000},"page":"999-1021","update-policy":"https:\/\/doi.org\/10.1177\/sage-journals-update-policy","source":"Crossref","is-referenced-by-count":1,"title":["Views on dementia among informal caregivers of people with dementia: A scoping review and thematic analysis of qualitative studies"],"prefix":"10.1177","volume":"110","author":[{"ORCID":"https:\/\/orcid.org\/0009-0004-4995-6852","authenticated-orcid":false,"given":"Lina Charlotte","family":"Jeran","sequence":"first","affiliation":[{"name":"Interventional Health Care Research, German Center for Neurodegenerative Diseases, site Rostock-Greifswald, Greifswald"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"ORCID":"https:\/\/orcid.org\/0000-0001-9523-275X","authenticated-orcid":false,"given":"Anne","family":"Blawert","sequence":"additional","affiliation":[{"name":"Interventional Health Care Research, German Center for Neurodegenerative Diseases, site Rostock-Greifswald, Greifswald"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"ORCID":"https:\/\/orcid.org\/0009-0009-0371-8855","authenticated-orcid":false,"given":"Anna","family":"Gr\u00fcnewald","sequence":"additional","affiliation":[{"name":"Interventional Health Care Research, German Center for Neurodegenerative Diseases, site Rostock-Greifswald, Greifswald"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Swen","family":"Staack","sequence":"additional","affiliation":[{"name":"Kompetenzzentrum Demenz in Schleswig-Holstein, Norderstedt, Germany"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Anna","family":"Jannes","sequence":"additional","affiliation":[{"name":"Kompetenzzentrum Demenz in Schleswig-Holstein, Norderstedt, Germany"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"ORCID":"https:\/\/orcid.org\/0000-0001-6889-693X","authenticated-orcid":false,"given":"Jochen Ren\u00e9","family":"Thyrian","sequence":"additional","affiliation":[{"name":"Interventional Health Care Research, German Center for Neurodegenerative Diseases, site Rostock-Greifswald, Greifswald"},{"name":"Institute for Community Medicine, University Medicine Greifswald, Greifswald, Germany"}],"role":[{"vocabulary":"crossref","role":"author"}]}],"member":"179","published-online":{"date-parts":[[2026,3,3]]},"reference":[{"key":"e_1_3_3_2_2","article-title":"2025 Alzheimer's disease facts and figures","volume":"21","author":"Alzheimer's Association","year":"2025","unstructured":"Alzheimer's Association. 2025 Alzheimer's disease facts and figures. 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