{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2026,5,7]],"date-time":"2026-05-07T15:17:32Z","timestamp":1778167052359,"version":"3.51.4"},"reference-count":19,"publisher":"SAGE Publications","issue":"4","license":[{"start":{"date-parts":[[2026,3,10]],"date-time":"2026-03-10T00:00:00Z","timestamp":1773100800000},"content-version":"tdm","delay-in-days":0,"URL":"https:\/\/journals.sagepub.com\/page\/policies\/text-and-data-mining-license"}],"funder":[{"DOI":"10.13039\/100000049","name":"National Institute on Aging","doi-asserted-by":"crossref","award":["R01AG077113"],"award-info":[{"award-number":["R01AG077113"]}],"id":[{"id":"10.13039\/100000049","id-type":"DOI","asserted-by":"crossref"}]}],"content-domain":{"domain":["journals.sagepub.com"],"crossmark-restriction":true},"short-container-title":["Journal of Alzheimer\u2019s Disease"],"published-print":{"date-parts":[[2026,4]]},"abstract":"<jats:sec>\n                    <jats:title>Background<\/jats:title>\n                    <jats:p>Persons living with dementia (PLWD) and their care partners face unique challenges in participating in research studies. Community Engagement Studios (CES) provide a framework for researchers to work directly with community members, considered as Community Experts, who experience conditions under study to enhance research design, implementation, and dissemination.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Objective<\/jats:title>\n                    <jats:p>We describe our experience conducting CES with PLWD and their care partners and lessons learned.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Methods<\/jats:title>\n                    <jats:p>PLWD and their care partners participated in three CES between July and December 2022; one in New Hampshire in English and two in New York, one of which was in Spanish. We followed the CES Toolkit guidance, which involves 1) inviting experts\/stakeholders (PLWD and their care partners) to a consultative meeting, 2) preparing a presentation (interview guide) and facilitating the meeting, and 3) receiving and analyzing feedback from participants.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Results<\/jats:title>\n                    <jats:p>12 community members (6 PLWD and 6 care partners) participated in our three studios. Three study design factors were identified during the CES: recruitment process (trust and communication with the research team), participants\u2019 autonomy, and trust and communication with clinicians. Spanish language community members raised similar issues to those in the English-speaking CES. However, Spanish language participants also noted the potential impact of interpreters during clinic visits.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Conclusions<\/jats:title>\n                    <jats:p>CES were feasible, informative, and well-received by PLWD and led to changes in our study design. We describe strategies for engaging care partners and PLWD, Community Experts, to elicit valid and valuable recommendations for making research studies more relevant and impactful.<\/jats:p>\n                  <\/jats:sec>","DOI":"10.1177\/13872877261424394","type":"journal-article","created":{"date-parts":[[2026,3,11]],"date-time":"2026-03-11T11:41:26Z","timestamp":1773229286000},"page":"1632-1639","update-policy":"https:\/\/doi.org\/10.1177\/sage-journals-update-policy","source":"Crossref","is-referenced-by-count":0,"title":["Using community engagement studios to involve persons living with dementia and their care partners in research design"],"prefix":"10.1177","volume":"110","author":[{"given":"Alejandra","family":"Martinez-Pereira","sequence":"first","affiliation":[{"name":"Center for Technology and Behavioral Health"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"ORCID":"https:\/\/orcid.org\/0000-0002-6964-6606","authenticated-orcid":false,"given":"Lisa A.","family":"Mistler","sequence":"additional","affiliation":[{"name":"Center for Technology and Behavioral Health"},{"name":"Dartmouth Health, Lebanon, NH, USA"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Susan","family":"Tarczewski","sequence":"additional","affiliation":[{"name":"Center for Technology and Behavioral Health"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Mauricio","family":"Arcila-Mesa","sequence":"additional","affiliation":[{"name":"Department of Medicine at NYU Grossman School of Medicine, New York, NY, USA"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Crystalinda","family":"Rapozo","sequence":"additional","affiliation":[{"name":"Department of Medicine at NYU Grossman School of Medicine, New York, NY, USA"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Joshua","family":"Chodosh","sequence":"additional","affiliation":[{"name":"Department of Medicine at NYU Grossman School of Medicine, New York, NY, USA"},{"name":"VA New York Harbor Healthcare System, New York, NY, USA"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Paul J.","family":"Barr","sequence":"additional","affiliation":[{"name":"Center for Technology and Behavioral Health"},{"name":"Department of Psychiatry, The Dartmouth Institute for Health Policy &amp; Clinical Practice, Lebanon, NH, USA"}],"role":[{"role":"author","vocabulary":"crossref"}]}],"member":"179","published-online":{"date-parts":[[2026,3,10]]},"reference":[{"key":"e_1_3_3_2_2","doi-asserted-by":"publisher","DOI":"10.1016\/j.trci.2019.09.018"},{"key":"e_1_3_3_3_2","doi-asserted-by":"publisher","DOI":"10.1136\/bmjopen-2023-078479"},{"key":"e_1_3_3_4_2","doi-asserted-by":"publisher","DOI":"10.1037\/prj0000568"},{"key":"e_1_3_3_5_2","doi-asserted-by":"publisher","DOI":"10.1080\/07352166.2024.2305132"},{"key":"e_1_3_3_6_2","doi-asserted-by":"publisher","DOI":"10.1016\/S2214-109X(24)00521-7"},{"key":"e_1_3_3_7_2","first-page":"1567","article-title":"Innovative programs for community health: a model for addressing healthcare needs through collaborative relationships","volume":"5","author":"Olamide Tomoh B","year":"2024","unstructured":"Olamide Tomoh B, Saheed Soyege O, Nwannebuike Nwokedi C, et al. Innovative programs for community health: a model for addressing healthcare needs through collaborative relationships. Int J Multidiscip Res Growth Eval 2024; 5: 1567\u20131573.","journal-title":"Int J Multidiscip Res Growth Eval"},{"key":"e_1_3_3_8_2","doi-asserted-by":"publisher","DOI":"10.1080\/10410236.2021.1943978"},{"key":"e_1_3_3_9_2","doi-asserted-by":"publisher","DOI":"10.1186\/s40249-024-01257-6"},{"key":"e_1_3_3_10_2","doi-asserted-by":"publisher","DOI":"10.1097\/ACM.0000000000000794"},{"key":"e_1_3_3_11_2","article-title":"Utilizing community engagement studios to inform clinical trial design at a Center of Excellence for Alzheimer\u2019s Disease","volume":"6","author":"Stock MR","year":"2022","unstructured":"Stock MR, Ce\u00efde ME, Lounsbury DW, et al. Utilizing community engagement studios to inform clinical trial design at a Center of Excellence for Alzheimer\u2019s Disease. J Clin Transl Sci 2022; 6: e73.","journal-title":"J Clin Transl Sci"},{"key":"e_1_3_3_12_2","unstructured":"Investing in Alzheimer\u2019s Research | Alzheimer\u2019s Impact Movement https:\/\/alzimpact.org\/research (2024 accessed 22 May 2025)."},{"key":"e_1_3_3_13_2","unstructured":"Israel T Farrow H Joosten Y et al. Community Engagement Studio Toolkit 2.0 https:\/\/victr.vanderbilt.edu\/pub\/community\/."},{"key":"e_1_3_3_14_2","doi-asserted-by":"publisher","DOI":"10.1097\/JIM.0000000000000097"},{"key":"e_1_3_3_15_2","article-title":"Community Engagement Studios to advance multi-site research with older adults","volume":"8","author":"Masel MC","year":"2024","unstructured":"Masel MC, Cavanaugh KL, Croisant SP, et al. Community Engagement Studios to advance multi-site research with older adults. J Clin Transl Sci 2024; 8: e186.","journal-title":"J Clin Transl Sci"},{"key":"e_1_3_3_16_2","volume-title":"Refining research through dialogue: lessons from older adult Community Engagement Studio feedback","author":"Kerper SA","year":"2024","unstructured":"Kerper SA. Refining research through dialogue: lessons from older adult Community Engagement Studio feedback. Pittsburgh, PA, USA: Master of Public Health, University of Pittsburgh, 2024."},{"key":"e_1_3_3_17_2","doi-asserted-by":"publisher","DOI":"10.1002\/alz.069401"},{"key":"e_1_3_3_18_2","doi-asserted-by":"publisher","DOI":"10.54656\/jces.v15i2.490"},{"key":"e_1_3_3_19_2","doi-asserted-by":"publisher","DOI":"10.1017\/cts.2017.1"},{"key":"e_1_3_3_20_2","doi-asserted-by":"publisher","DOI":"10.1093\/geront\/gnac060"}],"container-title":["Journal of Alzheimer\u2019s Disease"],"original-title":[],"language":"en","link":[{"URL":"https:\/\/journals.sagepub.com\/doi\/pdf\/10.1177\/13872877261424394","content-type":"application\/pdf","content-version":"vor","intended-application":"text-mining"},{"URL":"https:\/\/journals.sagepub.com\/doi\/full-xml\/10.1177\/13872877261424394","content-type":"application\/xml","content-version":"vor","intended-application":"text-mining"},{"URL":"https:\/\/journals.sagepub.com\/doi\/pdf\/10.1177\/13872877261424394","content-type":"unspecified","content-version":"vor","intended-application":"similarity-checking"}],"deposited":{"date-parts":[[2026,5,7]],"date-time":"2026-05-07T14:48:11Z","timestamp":1778165291000},"score":1,"resource":{"primary":{"URL":"https:\/\/journals.sagepub.com\/doi\/10.1177\/13872877261424394"}},"subtitle":[],"short-title":[],"issued":{"date-parts":[[2026,3,10]]},"references-count":19,"journal-issue":{"issue":"4","published-print":{"date-parts":[[2026,4]]}},"alternative-id":["10.1177\/13872877261424394"],"URL":"https:\/\/doi.org\/10.1177\/13872877261424394","relation":{},"ISSN":["1387-2877","1875-8908"],"issn-type":[{"value":"1387-2877","type":"print"},{"value":"1875-8908","type":"electronic"}],"subject":[],"published":{"date-parts":[[2026,3,10]]}}}