{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2026,6,22]],"date-time":"2026-06-22T22:46:40Z","timestamp":1782168400321,"version":"3.54.5"},"reference-count":78,"publisher":"SAGE Publications","issue":"4","license":[{"start":{"date-parts":[[2020,7,30]],"date-time":"2020-07-30T00:00:00Z","timestamp":1596067200000},"content-version":"unspecified","delay-in-days":0,"URL":"https:\/\/creativecommons.org\/licenses\/by-nc\/4.0\/"}],"content-domain":{"domain":["journals.sagepub.com"],"crossmark-restriction":true},"short-container-title":["Health Informatics J"],"published-print":{"date-parts":[[2020,12]]},"abstract":"<jats:p>Data from digitally administered patient reported outcomes (PROs) is used more and more in routine healthcare for long-term conditions as a part of daily clinical practice. This literature study reviews empirical studies of digital PRO to examine patients\u2019 reasons for non-use of digitally administered PRO data in routine care. This scoping review searched through PubMed, Embase, Web of Science and PsycINFO databases, reporting on study population, intervention, duration of intervention and motivational factors alongside stated reasons for nonparticipation or dropout for each study. The patients\u2019 reasons for not participating, either from study start or by dropout, were analysed through a thematic approach.<\/jats:p>\n                  <jats:p>Fifty-one studies were included, published from 2010 to 2019, mostly from Europe and the Unites States covering different long-term conditions. The reasons for non-use are manifold and cover the themes of ability to use PRO, engagement, emotional distress and technical barriers.<\/jats:p>\n                  <jats:p>Several reasons are given explaining why patients with long-term conditions are not using digitally administered PRO as intended. This should be taken into account in the design phase of digital PRO interventions and considered in conversations with patients during the intervention.<\/jats:p>","DOI":"10.1177\/1460458220942649","type":"journal-article","created":{"date-parts":[[2020,7,31]],"date-time":"2020-07-31T02:09:58Z","timestamp":1596161398000},"page":"2811-2833","update-policy":"https:\/\/doi.org\/10.1177\/sage-journals-update-policy","source":"Crossref","is-referenced-by-count":55,"title":["Patients\u2019 reasons for non-use of digital patient-reported outcome concepts: A scoping review"],"prefix":"10.1177","volume":"26","author":[{"ORCID":"https:\/\/orcid.org\/0000-0002-2884-3902","authenticated-orcid":false,"given":"Amalie S\u00f8gaard","family":"Nielsen","sequence":"first","affiliation":[{"name":"University of Copenhagen, Denmark; Deakin University, Australia"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Kristian","family":"Kidholm","sequence":"additional","affiliation":[{"name":"Kristian Kidholm Odense University Hospital, University of Southern Denmark, Denmark"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Lars","family":"Kayser","sequence":"additional","affiliation":[{"name":"University of Copenhagen, Denmark"}],"role":[{"vocabulary":"crossref","role":"author"}]}],"member":"179","published-online":{"date-parts":[[2020,7,30]]},"reference":[{"key":"bibr1-1460458220942649","doi-asserted-by":"crossref","unstructured":"Ishaque S, Karnon J, Chen G, et al. A systematic review of randomised controlled trials evaluating the use of patient-reported outcome measures (PROMs). Qual Life Res 2019; 28: 567\u2013592, http:\/\/link.springer.com\/10.1007\/s11136-018-2016-z (accessed 26 October 2018).","DOI":"10.1007\/s11136-018-2016-z"},{"key":"bibr2-1460458220942649","doi-asserted-by":"publisher","DOI":"10.1093\/bjaed\/mkw060"},{"key":"bibr3-1460458220942649","doi-asserted-by":"crossref","unstructured":"Dawson J, Doll H, Fitzpatrick R, et al. The routine use of patient reported outcome measures in healthcare settings. BMJ 2010; 340: c186, http:\/\/www.bmj.com\/content\/340\/bmj.c186.abstract","DOI":"10.1136\/bmj.c186"},{"key":"bibr4-1460458220942649","doi-asserted-by":"publisher","DOI":"10.1136\/bmj.324.7351.1417"},{"key":"bibr5-1460458220942649","doi-asserted-by":"publisher","DOI":"10.2217\/cer-2015-0014"},{"key":"bibr6-1460458220942649","doi-asserted-by":"publisher","DOI":"10.1007\/s11136-008-9430-6"},{"key":"bibr7-1460458220942649","doi-asserted-by":"publisher","DOI":"10.1007\/s11136-007-9295-0"},{"key":"bibr8-1460458220942649","doi-asserted-by":"publisher","DOI":"10.3310\/hsdr05020"},{"key":"bibr9-1460458220942649","doi-asserted-by":"publisher","DOI":"10.1016\/j.arth.2013.06.025"},{"key":"bibr10-1460458220942649","doi-asserted-by":"publisher","DOI":"10.1093\/annonc\/mdv181"},{"key":"bibr11-1460458220942649","doi-asserted-by":"publisher","DOI":"10.1186\/1472-6963-13-211"},{"key":"bibr12-1460458220942649","unstructured":"ViBIS. Program PRO. Anvendelse af PRO\u2013data i kvalitetsudviklingen af det danske sundhedsv\u00e6sen \u2013 anbefalinger og vidensgrundlag, 2016, https:\/\/www.danskepatienter.dk\/files\/media\/Publikationer%20-%20Egne\/B_ViBIS\/A_Rapporter%20og%20unders%C3%B8gelser\/program_pro-rapport.pdf"},{"key":"bibr13-1460458220942649","doi-asserted-by":"publisher","DOI":"10.1186\/s12911-016-0359-3"},{"key":"bibr14-1460458220942649","doi-asserted-by":"publisher","DOI":"10.1177\/0269216313491619"},{"key":"bibr15-1460458220942649","doi-asserted-by":"publisher","DOI":"10.1080\/1364557032000119616"},{"key":"bibr16-1460458220942649","doi-asserted-by":"publisher","DOI":"10.7326\/M18-0850"},{"key":"bibr17-1460458220942649","doi-asserted-by":"publisher","DOI":"10.1186\/1472-6963-12-96"},{"key":"bibr18-1460458220942649","doi-asserted-by":"crossref","unstructured":"Greenhalgh J, Gooding K, Gibbons E, et al. How do patient reported outcome measures (PROMs) support clinician-patient communication and patient care? A realist synthesis. 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