{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2026,9,11]],"date-time":"2026-09-11T05:11:05Z","timestamp":1789103465039,"version":"build-2803163510"},"reference-count":22,"publisher":"SAGE Publications","issue":"2","license":[{"start":{"date-parts":[[2014,1,13]],"date-time":"2014-01-13T00:00:00Z","timestamp":1389571200000},"content-version":"tdm","delay-in-days":0,"URL":"https:\/\/journals.sagepub.com\/page\/policies\/text-and-data-mining-license"}],"content-domain":{"domain":["journals.sagepub.com"],"crossmark-restriction":true},"short-container-title":["Dementia"],"published-print":{"date-parts":[[2016,3]]},"abstract":"<jats:p>Statistics show that an increase in the statutory retirement age in the UK will mean that many more people will develop a dementia while still in employment. A review of the literature confirmed that there are no existing studies in the UK which examine this issue in any detail. The aim of this study was to investigate the experiences of people who develop a dementia while still in employment and to understand how they make sense of these experiences; therefore a qualitative explorative inquiry based on an Interpretive Phenomenological Analysis methodology was used. Interviews with five people who had developed a dementia while still in employment were carried out, with ages ranging from 58 to 74 years. Interview transcripts were analysed and four super-ordinate themes were identified: the realization that something is wrong; managing the situation in the workplace; trying to make sense of change; and coming to terms with retirement or unemployment. The results showed that people who develop a dementia while still in employment do not always receive the \u2018reasonable adjustments\u2019 in the workplace to which they are entitled under the Equality Act (2010) . Some of the participants felt that they were poorly treated by their workplace and described some distressing experiences. The study highlights the need for more effective specialized advice and support regarding employment issues and more research into the numbers of people in the UK that are affected by this issue.<\/jats:p>","DOI":"10.1177\/1471301213519252","type":"journal-article","created":{"date-parts":[[2014,1,13]],"date-time":"2014-01-13T23:27:15Z","timestamp":1389655635000},"page":"147-161","update-policy":"https:\/\/doi.org\/10.1177\/sage-journals-update-policy","source":"Crossref","is-referenced-by-count":61,"title":["What are the experiences of people with dementia in employment?"],"prefix":"10.1177","volume":"15","author":[{"given":"Ruth","family":"Chaplin","sequence":"first","affiliation":[{"name":"Occupational Therapist, Older Adult Mental Health Services, The Meadows, UK"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Ian","family":"Davidson","sequence":"additional","affiliation":[{"name":"Senior Lecturer in Physiotherapy, Manchester Metropolitan University, Manchester, UK"}],"role":[{"vocabulary":"crossref","role":"author"}]}],"member":"179","published-online":{"date-parts":[[2014,1,13]]},"reference":[{"key":"bibr1-1471301213519252","volume-title":"Employment","author":"Alzheimer\u2019s Society","year":"2010"},{"key":"bibr2-1471301213519252","unstructured":"Armstrong, M. (2003). The needs of people with young onset dementia and their carers.\n                      Nursing times\n                      ,\n                      18\n                      , 681\u2013684."},{"key":"bibr3-1471301213519252","doi-asserted-by":"publisher","DOI":"10.1080\/13607860220142396"},{"key":"bibr4-1471301213519252","first-page":"6","author":"Brechin D.","year":"2004","journal-title":"Science and Public Affairs"},{"key":"bibr5-1471301213519252","unstructured":"Brownlie, N. (2011). Trade Union Membership 2011.\n                      Department for Business, Innovation and Skills,\n                      Retrieved from http:\/\/www.bis.gov.uk\/assets\/BISCore\/employment-matters\/docs\/T\/12-p77-trade-union-membership-2011.pdf."},{"key":"bibr6-1471301213519252","volume-title":"My journey into Alzheimer\u2019s disease","author":"Davis R.","year":"1989"},{"key":"bibr7-1471301213519252","volume-title":"Losing my mind; An intimate look at life with Alzheimer\u2019s disease","author":"De Baggio T.","year":"2002"},{"key":"bibr8-1471301213519252","unstructured":"Equality Act. (2010). H.M.S.O."},{"issue":"2","key":"bibr9-1471301213519252","first-page":"111","volume":"5","author":"Harris P. B.","year":"2004","journal-title":"Alzheimer\u2019s Care Quarterly"},{"key":"bibr10-1471301213519252","doi-asserted-by":"crossref","unstructured":"Jha, A., Tabet, N. & Orrel, M. (2001). To tell or not to tell: A comparison of older patients reaction to their diagnosis of dementia or depression.\n                      International Journal of Geriatric Psychiatry\n                      ,\n                      16\n                      (9), 879\u2013885.","DOI":"10.1002\/gps.412"},{"key":"bibr11-1471301213519252","volume-title":"Just love me; My life turned upside down by Alzheimer\u2019s","author":"Lee J. L.","year":"2003"},{"key":"bibr12-1471301213519252","doi-asserted-by":"publisher","DOI":"10.1002\/(SICI)1099-1166(199805)13:5<323::AID-GPS768>3.0.CO;2-O"},{"key":"bibr13-1471301213519252","unstructured":"McErlean, S. (2002). Younger people with dementia and their spouses \u2013 a qualitative study.\n                      Journal of Dementia Care\n                      ,\n                      10\n                      , 38."},{"key":"bibr14-1471301213519252","volume-title":"Living in the labyrinth; A personal journey through the maze of Alzheimer\u2019s disease","author":"McGowin D. F.","year":"1993"},{"key":"bibr15-1471301213519252","first-page":"17","volume":"13","author":"McKillop J.","year":"2005","journal-title":"Journal of Dementia Care"},{"key":"bibr16-1471301213519252","doi-asserted-by":"publisher","DOI":"10.1046\/j.1471-6712.2001.1510034.x"},{"key":"bibr17-1471301213519252","unstructured":"Office of National Statistics. (2010). Standard occupational classifications. Retrieved from http:\/\/www.ons.gov.uk\/ons\/guide-method\/classifications\/current-standard-classifications\/soc2010\/soc2010-volume-3-ns-sec\u2013rebased-on-soc2010\u2013user-manual\/index.html."},{"key":"bibr18-1471301213519252","unstructured":"Office of National Statistics. (2012)\n                      Pension Trends\n                      . Index HTML Office of National Statistics."},{"key":"bibr19-1471301213519252","doi-asserted-by":"crossref","unstructured":"Roach P. & Keady, J. (2008). Younger people with dementia: Time for fair play.\n                      British Journal of Nursing\n                      ,\n                      17\n                      , 690.","DOI":"10.12968\/bjon.2008.17.11.29604"},{"key":"bibr20-1471301213519252","unstructured":"Smith, J. A., Flowers, P. & Larkin, M. (2009)\n                      Interpretive Phenomenological Analysis: Theory Method and Research\n                      . London: Sage."},{"key":"bibr21-1471301213519252","doi-asserted-by":"crossref","unstructured":"Tindall, L. & Manthorpe, J. (1997). Early onset dementia: A case of ill timing?\n                      Journal of Mental Health\n                      ,\n                      6\n                      , 237\u2013249.","DOI":"10.1080\/09638239718770"},{"key":"bibr22-1471301213519252","doi-asserted-by":"crossref","unstructured":"Vernooj-Dassen, M., Derksen, E., Scheltens, P. & Moniz-Cook, E. (2006). Receiving a diagnosis of dementia; The experience over time.\n                      Dementia\n                      ,\n                      5\n                      (3), 397\u2013410.","DOI":"10.1177\/1471301206067114"}],"container-title":["Dementia"],"original-title":[],"language":"en","link":[{"URL":"https:\/\/journals.sagepub.com\/doi\/pdf\/10.1177\/1471301213519252","content-type":"application\/pdf","content-version":"vor","intended-application":"text-mining"},{"URL":"https:\/\/journals.sagepub.com\/doi\/full-xml\/10.1177\/1471301213519252","content-type":"application\/xml","content-version":"vor","intended-application":"text-mining"},{"URL":"https:\/\/journals.sagepub.com\/doi\/pdf\/10.1177\/1471301213519252","content-type":"unspecified","content-version":"vor","intended-application":"similarity-checking"}],"deposited":{"date-parts":[[2026,4,28]],"date-time":"2026-04-28T17:47:30Z","timestamp":1777398450000},"score":1,"resource":{"primary":{"URL":"https:\/\/journals.sagepub.com\/doi\/10.1177\/1471301213519252"}},"subtitle":[],"short-title":[],"issued":{"date-parts":[[2014,1,13]]},"references-count":22,"journal-issue":{"issue":"2","published-print":{"date-parts":[[2016,3]]}},"alternative-id":["10.1177\/1471301213519252"],"URL":"https:\/\/doi.org\/10.1177\/1471301213519252","relation":{},"ISSN":["1471-3012","1741-2684"],"issn-type":[{"value":"1471-3012","type":"print"},{"value":"1741-2684","type":"electronic"}],"subject":[],"published":{"date-parts":[[2014,1,13]]}}}