{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2026,7,29]],"date-time":"2026-07-29T19:34:36Z","timestamp":1785353676972,"version":"3.55.0"},"reference-count":42,"publisher":"SAGE Publications","issue":"3","license":[{"start":{"date-parts":[[2018,7,30]],"date-time":"2018-07-30T00:00:00Z","timestamp":1532908800000},"content-version":"tdm","delay-in-days":0,"URL":"http:\/\/journals.sagepub.com\/page\/policies\/text-and-data-mining-license"}],"content-domain":{"domain":["journals.sagepub.com"],"crossmark-restriction":true},"short-container-title":["Dementia"],"published-print":{"date-parts":[[2020,4]]},"abstract":"<jats:sec>\n                    <jats:title>Background<\/jats:title>\n                    <jats:p>Cognition and the ability to take care of daily activities and oneself gradually declines among people with dementia. Studies are scarce, especially regarding how people with young-onset dementia (YOD) (&lt;65 years) experience the quality of their lives with the progression of dementia. People with dementia living alone face special challenges.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Aim<\/jats:title>\n                    <jats:p>To examine the experience of the quality of life with YOD as a single person.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Method<\/jats:title>\n                    <jats:p>The study presents a longitudinal case study with in-depth interviews exploring the experiences of a person with YOD. Individual interviews were conducted seven times over a period of three years from 2014 to 2017.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Findings<\/jats:title>\n                    <jats:p>We examined if and how seven themes concerning the quality of life and well-being were fruitful for understanding the experiences of dementia in the everyday life of a single individual. The study explored needs and challenges during the development of dementia, and how the person reacted over time, set in context. The themes significant for well-being are: identity, connectedness, security, autonomy, meaning, growth and joy.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Conclusion<\/jats:title>\n                    <jats:p>The study shows how treatment, support, and services must be individualized when dementia develops in order to support identity, resources and mastering capacity, and promote well-being.<\/jats:p>\n                  <\/jats:sec>","DOI":"10.1177\/1471301218789990","type":"journal-article","created":{"date-parts":[[2018,7,30]],"date-time":"2018-07-30T06:39:59Z","timestamp":1532932799000},"page":"878-893","update-policy":"https:\/\/doi.org\/10.1177\/sage-journals-update-policy","source":"Crossref","is-referenced-by-count":28,"title":["Developing dementia: The existential experience of the quality of life with young-onset dementia \u2013 A longitudinal case study"],"prefix":"10.1177","volume":"19","author":[{"given":"Kirsten","family":"Thorsen","sequence":"first","affiliation":[{"name":"Norwegian National Advisory, Vestfold Hospital Trust, Unit on Ageing and Health, Norway; Norwegian Social Research (NOVA), Oslo Metropolitan University, Norway"},{"name":"Norwegian National Advisory Unit on Ageing and Health, Vestfold Hospital Trust, Norway; University of South-Eastern Norway, Norway"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Marcia Cristina Nascimento","family":"Dourado","sequence":"additional","affiliation":[{"name":"Center for Alzheimer\u2019s Disease and Related Disorders, Institute of Psychiatry, Universidade Federal do Rio de Janeiro, Brazil"},{"name":"Norwegian National Advisory Unit on Ageing and Health, Vestfold Hospital Trust, Norway; University of South-Eastern Norway, Norway"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Aud","family":"Johannessen","sequence":"additional","affiliation":[{"name":"Norwegian National Advisory Unit on Ageing and Health, Vestfold Hospital Trust, Norway; University of South-Eastern Norway, Norway"}],"role":[{"vocabulary":"crossref","role":"author"}]}],"member":"179","published-online":{"date-parts":[[2018,7,30]]},"reference":[{"key":"bibr1-1471301218789990","first-page":"143","volume-title":"Dementia: Mind, meaning, and the person","author":"Aquilina C.","year":"2006"},{"key":"bibr2-1471301218789990","doi-asserted-by":"publisher","DOI":"10.1186\/1471-2288-13-110"},{"key":"bibr3-1471301218789990","doi-asserted-by":"crossref","DOI":"10.2307\/j.ctv17vf63v","volume-title":"Old age in a new age: The promise of transformative nursing homes","author":"Baker B.","year":"2007"},{"key":"bibr4-1471301218789990","doi-asserted-by":"publisher","DOI":"10.1017\/S0144686X10000693"},{"key":"bibr6-1471301218789990","doi-asserted-by":"publisher","DOI":"10.1016\/j.cpr.2009.10.003"},{"key":"bibr7-1471301218789990","first-page":"421","volume-title":"The Sage handbook of qualitative research","author":"Chase S. 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