{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2026,4,30]],"date-time":"2026-04-30T11:30:09Z","timestamp":1777548609479,"version":"3.51.4"},"reference-count":52,"publisher":"SAGE Publications","issue":"8","license":[{"start":{"date-parts":[[2023,8,5]],"date-time":"2023-08-05T00:00:00Z","timestamp":1691193600000},"content-version":"tdm","delay-in-days":0,"URL":"http:\/\/journals.sagepub.com\/page\/policies\/text-and-data-mining-license"}],"funder":[{"DOI":"10.13039\/100008710","name":"Dementia Australia Research Foundation","doi-asserted-by":"publisher","id":[{"id":"10.13039\/100008710","id-type":"DOI","asserted-by":"publisher"}]}],"content-domain":{"domain":["journals.sagepub.com"],"crossmark-restriction":true},"short-container-title":["Dementia"],"published-print":{"date-parts":[[2023,11]]},"abstract":"<jats:p>There is a significant and longstanding problem of harm to people living with dementia in long term care institutions (\u2018LTC institutions\u2019, referred to by others as \u2018care homes\u2019, \u2018nursing homes\u2019, \u2018long term care\u2019, \u2018residential aged care facilities\u2019), along with a failure to redress the harm or hold people accountable for this harm. This article reports on an Australian project that found reparations must be a response to harm to people living with dementia in residential aged care. Using a disability human rights methodology, focus groups were conducted with people living with dementia, care partners and family members, advocates and lawyers to explore perspectives on why and how to redress harm to people living with dementia in Australian LTC institutions. Researchers found four key themes provide the basis for the necessity and design of a reparative approach to redress \u2013 recognition, accountability, change, now. The article calls for further attention to reparations in dementia scholarship, with a particular focus on the role that can be played in the delivery of reparations by the LTC industry, dementia practitioners, and dementia scholars. Ultimately, this article provides a new understanding of responses to violence, abuse, neglect and other harms experienced by people living with dementia in LTC institutions, which centres justice, rights, and transformative change.<\/jats:p>","DOI":"10.1177\/14713012231190832","type":"journal-article","created":{"date-parts":[[2023,8,5]],"date-time":"2023-08-05T07:00:40Z","timestamp":1691218840000},"page":"1738-1756","update-policy":"https:\/\/doi.org\/10.1177\/sage-journals-update-policy","source":"Crossref","is-referenced-by-count":6,"title":["Reparations for people living with dementia: Recognition, accountability, change, now!"],"prefix":"10.1177","volume":"22","author":[{"ORCID":"https:\/\/orcid.org\/0000-0001-6944-7888","authenticated-orcid":false,"given":"Linda","family":"Steele","sequence":"first","affiliation":[{"name":"Faculty of Law, University of Technology Sydney, Broadway, NSW, Australia"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"ORCID":"https:\/\/orcid.org\/0000-0001-8963-2431","authenticated-orcid":false,"given":"Kate","family":"Swaffer","sequence":"additional","affiliation":[{"name":"School of Justice and Society, University of South Australia, Adelaide, Australia"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"ORCID":"https:\/\/orcid.org\/0009-0009-5031-3818","authenticated-orcid":false,"given":"Hope","family":"Siciliano","sequence":"additional","affiliation":[{"name":"Faculty of Law, University of Technology Sydney, Broadway, NSW, Australia"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"ORCID":"https:\/\/orcid.org\/0000-0002-7742-3576","authenticated-orcid":false,"given":"Evelyn","family":"Rose","sequence":"additional","affiliation":[{"name":"School of Social and Political Sciences, The University of Melbourne, VIC, Australia"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"ORCID":"https:\/\/orcid.org\/0000-0002-1872-8791","authenticated-orcid":false,"given":"William John","family":"Mitchell","sequence":"additional","affiliation":[{"name":"College of Business, Law and Governance, James Cook University, Townsville, QLD, Australia"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Karen","family":"Kobier","sequence":"additional","affiliation":[{"name":"People with Disability Australia, Sydney, NSW, Australia"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Brenda","family":"Bailey","sequence":"additional","affiliation":[{"name":"Independent Researcher, Sydney, NSW, Australia"}],"role":[{"role":"author","vocabulary":"crossref"}]}],"member":"179","published-online":{"date-parts":[[2023,8,5]]},"reference":[{"key":"bibr1-14713012231190832","doi-asserted-by":"publisher","DOI":"10.1093\/hrlr\/ngaa021"},{"key":"bibr2-14713012231190832","doi-asserted-by":"publisher","DOI":"10.1017\/S0144686X10000693"},{"key":"bibr3-14713012231190832","doi-asserted-by":"publisher","DOI":"10.1016\/j.colegn.2013.02.001"},{"key":"bibr4-14713012231190832","doi-asserted-by":"publisher","DOI":"10.9783\/9780812299915"},{"key":"bibr5-14713012231190832","volume-title":"\u201cFading away\u201d: How aged care facilities in Australia chemically restrain older people with dementia","author":"Brown B.","year":"2019"},{"key":"bibr6-14713012231190832","volume-title":"The forgotten injured: Recovery for injuries in aged care","author":"Burns K.","year":"2021"},{"key":"bibr7-14713012231190832","volume-title":"Allies and obstacles: Disability activism and parents of children with disabilities","author":"Carey A. 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