{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2026,10,23]],"date-time":"2026-10-23T13:27:55Z","timestamp":1792762075534,"version":"4.5.0"},"reference-count":81,"publisher":"SAGE Publications","issue":"5","license":[{"start":{"date-parts":[[2024,1,3]],"date-time":"2024-01-03T00:00:00Z","timestamp":1704240000000},"content-version":"unspecified","delay-in-days":0,"URL":"https:\/\/creativecommons.org\/licenses\/by\/4.0\/"}],"funder":[{"DOI":"10.13039\/501100000272","name":"National Institute for Health and Care Research","doi-asserted-by":"publisher","award":["ARC NWC"],"award-info":[{"award-number":["ARC NWC"]}],"id":[{"id":"10.13039\/501100000272","id-type":"DOI","asserted-by":"publisher"}]}],"content-domain":{"domain":["journals.sagepub.com"],"crossmark-restriction":true},"short-container-title":["Dementia"],"published-print":{"date-parts":[[2024,7]]},"abstract":"<jats:sec>\n                    <jats:title>Background<\/jats:title>\n                    <jats:p>The life expectancy of people with a learning disability is increasing and with this comes a greater risk of developing dementia. Dementia poses new challenges for both family and formal learning disability carers as they try to support dementia\u2019s progressive nature and quality of life for their care recipient. This qualitative systematic review explores the evidence base of family and formal carers\u2019 experiences and needs of caring for someone with both a learning disability and dementia.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Methods<\/jats:title>\n                    <jats:p>Six electronic databases (PubMed, PsycINFO, Cochrane Library, Prospero, Scopus, CINAHL), were searched in May 2022, utilising a predefined search strategy. Thirteen papers fulfilled inclusion criteria and were included in in the review.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Results<\/jats:title>\n                    <jats:p>Thematic synthesis was used to explore and synthesise the qualitative findings of the studies. Four conceptual themes were identified following analysis: Knowledge and skills, Accessing support, Repercussions of dementia for carers, Influences of continuity of caring role.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Conclusion<\/jats:title>\n                    <jats:p>There are significant training and educational needs for all carers who support the dual diagnosis of dementia and learning disability. Differences between family and formal carers relate to the organisational support and process available to formal carers. Parity across services combined with sufficiently trained carers may support dementia diagnosis and improve quality of care provided. Further research is needed to address environmental, and economic barriers carers face to facilitate ageing in place for their care recipients.<\/jats:p>\n                  <\/jats:sec>","DOI":"10.1177\/14713012231225797","type":"journal-article","created":{"date-parts":[[2024,1,3]],"date-time":"2024-01-03T22:59:01Z","timestamp":1704322741000},"page":"817-849","update-policy":"https:\/\/doi.org\/10.1177\/sage-journals-update-policy","source":"Crossref","is-referenced-by-count":6,"title":["The experiences of caring for someone with dementia and a learning disability: A qualitative systematic review"],"prefix":"10.1177","volume":"23","author":[{"given":"Michelle","family":"Hughes","sequence":"first","affiliation":[{"name":"Department of Primary Care and Mental Health, University of Liverpool, UK"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"ORCID":"https:\/\/orcid.org\/0000-0001-7357-7749","authenticated-orcid":false,"given":"Kerry","family":"Hanna","sequence":"additional","affiliation":[{"name":"School of Health Sciences, University of Liverpool, UK"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Akpevwoghene","family":"Wiles","sequence":"additional","affiliation":[{"name":"Department of Primary Care and Mental Health, University of Liverpool, UK"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Ellie","family":"Taylor","sequence":"additional","affiliation":[{"name":"Mersey Care NHS Trust, UK"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"ORCID":"https:\/\/orcid.org\/0000-0002-0746-0566","authenticated-orcid":false,"given":"Clarissa","family":"Giebel","sequence":"additional","affiliation":[{"name":"Department of Primary Care and Mental Health, University of Liverpool, UK; NIHR Applied Research Collaboration North West Coast, UK"}],"role":[{"vocabulary":"crossref","role":"author"}]}],"member":"179","published-online":{"date-parts":[[2024,1,3]]},"reference":[{"key":"bibr1-14713012231225797","doi-asserted-by":"publisher","DOI":"10.1108\/AMHID-08-2022-0027"},{"key":"bibr2-14713012231225797","volume-title":"Types of dementia","volume":"19","author":"Alzheimer\u2019s Disease International","year":"2020"},{"key":"bibr3-14713012231225797","volume-title":"Symptoms of dementia","author":"Alzheimer\u2019s Disease International","year":"2020"},{"key":"bibr4-14713012231225797","volume-title":"Learning disabilities and dementia","author":"Alzheimer\u2019s Society","year":"2019"},{"key":"bibr5-14713012231225797","doi-asserted-by":"publisher","DOI":"10.1111\/j.1365-2850.2008.01259.x"},{"key":"bibr6-14713012231225797","doi-asserted-by":"publisher","DOI":"10.1093\/geronb\/59.4.S202"},{"key":"bibr7-14713012231225797","doi-asserted-by":"publisher","DOI":"10.1016\/S1471-5953(03)00016-7"},{"key":"bibr8-14713012231225797","doi-asserted-by":"publisher","DOI":"10.1001\/jamaneurol.2018.2210"},{"key":"bibr9-14713012231225797","doi-asserted-by":"publisher","DOI":"10.1111\/jgs.12549"},{"key":"bibr10-14713012231225797","doi-asserted-by":"publisher","DOI":"10.1108\/WWOP-12-2016-0039"},{"key":"bibr11-14713012231225797","volume-title":"Hidden in plain sight-dementia and learning disability","author":"Burke C.","year":"2018"},{"key":"bibr12-14713012231225797","doi-asserted-by":"publisher","DOI":"10.3109\/13668250.2011.645473"},{"key":"bibr13-14713012231225797","doi-asserted-by":"publisher","DOI":"10.1111\/bld.12210"},{"key":"bibr14-14713012231225797","doi-asserted-by":"publisher","DOI":"10.1177\/1744629516638245"},{"key":"bibr15-14713012231225797","doi-asserted-by":"publisher","DOI":"10.1016\/j.burn.2016.06.003"},{"key":"bibr16-14713012231225797","doi-asserted-by":"publisher","DOI":"10.1017\/S1041610218001606"},{"key":"bibr17-14713012231225797","doi-asserted-by":"publisher","DOI":"10.1111\/j.1741-1130.2010.00244.x"},{"key":"bibr18-14713012231225797","doi-asserted-by":"publisher","DOI":"10.1111\/jppi.12094"},{"key":"bibr19-14713012231225797","volume-title":"Learning disability and dementia","author":"Dementia UK","year":"2021"},{"key":"bibr20-14713012231225797","volume-title":"Valuing people: A new strategy for learning disability for the 21st century","author":"Department of Health","year":"2001"},{"key":"bibr21-14713012231225797","volume-title":"Valuing people now: A new three-year strategy for people with learning disabilities","author":"Department of Health","year":"2009"},{"key":"bibr22-14713012231225797","doi-asserted-by":"publisher","DOI":"10.7748\/ldp.18.9.28.s26"},{"key":"bibr23-14713012231225797","doi-asserted-by":"publisher","DOI":"10.5042\/tldr.2011.0008"},{"key":"bibr24-14713012231225797","doi-asserted-by":"publisher","DOI":"10.1111\/j.1741-1130.2009.00231.x"},{"key":"bibr25-14713012231225797","volume-title":"Winterbourne view hospital. 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