{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2026,5,29]],"date-time":"2026-05-29T23:38:30Z","timestamp":1780097910544,"version":"3.54.0"},"reference-count":43,"publisher":"SAGE Publications","issue":"4","license":[{"start":{"date-parts":[[2025,4,29]],"date-time":"2025-04-29T00:00:00Z","timestamp":1745884800000},"content-version":"vor","delay-in-days":0,"URL":"https:\/\/creativecommons.org\/licenses\/by\/4.0\/"},{"start":{"date-parts":[[2025,4,29]],"date-time":"2025-04-29T00:00:00Z","timestamp":1745884800000},"content-version":"tdm","delay-in-days":0,"URL":"https:\/\/journals.sagepub.com\/page\/policies\/text-and-data-mining-license"}],"funder":[{"DOI":"10.13039\/501100000377","name":"Dunhill Medical Trust","doi-asserted-by":"publisher","award":["RPGF\/2006\\236"],"award-info":[{"award-number":["RPGF\/2006\\236"]}],"id":[{"id":"10.13039\/501100000377","id-type":"DOI","asserted-by":"publisher"}]}],"content-domain":{"domain":["journals.sagepub.com"],"crossmark-restriction":true},"short-container-title":["Dementia"],"published-print":{"date-parts":[[2026,5]]},"abstract":"<jats:p>\n                    Complex health and social care needs of people living in prison with diagnosed or suspected dementia is a growing concern for prisons and prison healthcare staff. The literature is replete with recommendations to better understand the health and social needs of this vulnerable population, to move beyond speculation towards actions to improve their health and well-being. Despite this, there is scant literature exploring the lived care experience of individuals being assessed for or diagnosed with dementia in prisons. The aim of this multi method qualitative study was to investigate how those with suspected dementia were identified, assessed and cared for in Scottish prisons. This article presents case study data from one phase of the larger study. Case studies were constructed from five semi-structured interviews with men with a diagnosed (\n                    <jats:italic toggle=\"yes\">n<\/jats:italic>\n                    = 1) or suspected dementia (\n                    <jats:italic toggle=\"yes\">n<\/jats:italic>\n                    = 4), four semi-structured interviews with staff the men nominated and data from the men\u2019s health care records. The five men had multiple co-morbidities, three had significant mobility issues, two were in receipt of personal care and accommodated in accessible cells. Four of the five men exemplified previous descriptions of older prisoners in that they were socially and physically isolated, and reliant on support with everyday activities. A \u2018case by case\u2019 approach to referral, assessment and post diagnostic support was taken by staff who reported a complexity associated with meeting healthcare needs and access to specialist services and supports within a prison regime. This research provides unique and hither to seldom explored insight into the lived care experience of men living with a diagnosed or suspected dementia in prison. The findings have implications for how this marginalised vulnerable group are cared for in prison and on release.\n                  <\/jats:p>","DOI":"10.1177\/14713012251338873","type":"journal-article","created":{"date-parts":[[2025,4,29]],"date-time":"2025-04-29T15:57:18Z","timestamp":1745942238000},"page":"677-695","update-policy":"https:\/\/doi.org\/10.1177\/sage-journals-update-policy","source":"Crossref","is-referenced-by-count":2,"title":["The care experience of people with diagnosed or suspected dementia living in prison: A case study approach"],"prefix":"10.1177","volume":"25","author":[{"ORCID":"https:\/\/orcid.org\/0000-0001-9972-7506","authenticated-orcid":false,"given":"Rhoda","family":"MacRae","sequence":"first","affiliation":[{"name":"University of the West of Scotland"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Natalie","family":"Chalmers","sequence":"additional","affiliation":[{"name":"University of the West of Scotland"},{"name":"Edinburgh Napier University"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"ORCID":"https:\/\/orcid.org\/0000-0001-9660-5490","authenticated-orcid":false,"given":"Debbie","family":"Tolson","sequence":"additional","affiliation":[{"name":"University of the West of Scotland"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"James","family":"Taylor","sequence":"additional","affiliation":[{"name":"University of the West of Scotland"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Kirstin","family":"Anderson","sequence":"additional","affiliation":[{"name":"Edinburgh Napier University"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Lindsay","family":"Thomson","sequence":"additional","affiliation":[{"name":"University of Edinburgh"},{"name":"The State Hospitals Board for Scotland"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Tom","family":"Russ","sequence":"additional","affiliation":[{"name":"University of Edinburgh"}],"role":[{"vocabulary":"crossref","role":"author"}]}],"member":"179","published-online":{"date-parts":[[2025,4,29]]},"reference":[{"key":"e_1_3_7_2_1","doi-asserted-by":"publisher","DOI":"10.1111\/jgs.15521"},{"key":"e_1_3_7_3_1","doi-asserted-by":"publisher","DOI":"10.1080\/14789949.2016.1218533"},{"key":"e_1_3_7_4_1","doi-asserted-by":"publisher","DOI":"10.1093\/geronb\/gbad136"},{"key":"e_1_3_7_5_1","doi-asserted-by":"publisher","DOI":"10.1191\/1478088706qp063oa"},{"key":"e_1_3_7_6_1","doi-asserted-by":"publisher","DOI":"10.1111\/imj.16011"},{"key":"e_1_3_7_7_1","doi-asserted-by":"publisher","DOI":"10.1177\/1471301218801715"},{"key":"e_1_3_7_8_1","doi-asserted-by":"publisher","DOI":"10.1080\/14789949.2019.1638959"},{"key":"e_1_3_7_9_1","volume-title":"Dementia in prison","author":"Brown J.","year":"2014","unstructured":"Brown J. (2014). Dementia in prison. Alzheimer's Australia."},{"key":"e_1_3_7_10_1","volume-title":"Injustice. Towards a better understanding of health care access for prisoners","author":"Davies M.","year":"2021","unstructured":"Davies M., Keeble E., Hutchings R. (2021). Injustice. Towards a better understanding of health care access for prisoners. Nuffield Trust."},{"key":"e_1_3_7_11_1","doi-asserted-by":"publisher","DOI":"10.1080\/1068316x.2018.1535063"},{"key":"e_1_3_7_12_1","doi-asserted-by":"publisher","DOI":"10.1111\/j.1360-0443.2006.01316.x"},{"key":"e_1_3_7_13_1","doi-asserted-by":"publisher","DOI":"10.1192\/bjp.179.6.535"},{"key":"e_1_3_7_14_1","doi-asserted-by":"publisher","DOI":"10.1136\/jme.28.3.156"},{"issue":"7","key":"e_1_3_7_15_1","article-title":"Dementia and mild MCI in prisoners aged over 50 years in England and Wales: A mixed-methods study","volume":"8","author":"Forsyth K.","year":"2020","unstructured":"Forsyth K., Heathcote L., Senior J., Malik B., Meacock R., Perryman K., Tucker S., Domone R., Carr M., Hayes H., Webb R., Archer-Power L., Dawson A., Leonard S., Challis D., Ware S., Emsley R., Sanders C., Karim S., Shaw J. (2020). Dementia and mild MCI in prisoners aged over 50 years in England and Wales: A mixed-methods study. Health Services and Delivery Research, 8(7). ISSN 2050-4349.","journal-title":"Health Services and Delivery Research"},{"key":"e_1_3_7_16_1","doi-asserted-by":"publisher","DOI":"10.1016\/j.colegn.2017.05.004"},{"key":"e_1_3_7_17_1","doi-asserted-by":"publisher","DOI":"10.11124\/JBIES-21-00096"},{"key":"e_1_3_7_18_1","doi-asserted-by":"publisher","DOI":"10.3389\/fpsyt.2023.1119228"},{"key":"e_1_3_7_19_1","doi-asserted-by":"publisher","DOI":"10.1177\/14713012241299015"},{"key":"e_1_3_7_20_1","doi-asserted-by":"publisher","DOI":"10.1002\/gps.3761"},{"key":"e_1_3_7_21_1","unstructured":"Hospice U. K. (2021). Dying behind Bars: How can we better support people in prison at the end of life? https:\/\/www.hospiceuk.org\/publications-and-resources\/dying-behind-bars-how-can-we-better-support-people-prison-end-life (accessed 14 January 2025)."},{"key":"e_1_3_7_22_1","volume-title":"Fifth report of session 2019\u201321 ageing prison population (parliament.uk)","author":"House of Commons Justice Committee Ageing prison population","year":"2020","unstructured":"House of Commons Justice Committee Ageing prison population (2020). Fifth report of session 2019\u201321 ageing prison population (parliament.uk). House of Commons."},{"key":"e_1_3_7_23_1","doi-asserted-by":"publisher","DOI":"10.1108\/IJPH-11-2021-0110"},{"key":"e_1_3_7_24_1","doi-asserted-by":"publisher","DOI":"10.1111\/jgs.17724"},{"key":"e_1_3_7_25_1","unstructured":"Levy S. Campbell F. K. Kelly L. Fernandes F. (2018). 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