{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2026,11,2]],"date-time":"2026-11-02T04:27:30Z","timestamp":1793593650485,"version":"4.5.0"},"reference-count":57,"publisher":"SAGE Publications","issue":"8","license":[{"start":{"date-parts":[[2026,6,2]],"date-time":"2026-06-02T00:00:00Z","timestamp":1780358400000},"content-version":"tdm","delay-in-days":0,"URL":"https:\/\/journals.sagepub.com\/page\/policies\/text-and-data-mining-license"}],"funder":[{"DOI":"10.13039\/100000049","name":"National Institute on Aging","doi-asserted-by":"publisher","award":["K01AG081502"],"award-info":[{"award-number":["K01AG081502"]}],"id":[{"id":"10.13039\/100000049","id-type":"DOI","asserted-by":"publisher"}]}],"content-domain":{"domain":["journals.sagepub.com"],"crossmark-restriction":true},"short-container-title":["Dementia"],"published-print":{"date-parts":[[2026,11]]},"abstract":"<jats:p>In the United States, home health care (HH) provides skilled nursing, therapy, and aide services delivered in patients\u2019 homes. One-third of HH patients have diagnosed dementia and these individuals rely heavily on support from family and unpaid caregivers during HH care. Yet, caregiving context is not systematically assessed in HH, presenting a barrier to high-quality care for patients with dementia. Partnering with a major HH agency, we developed a dementia caregiver assessment tool designed to fit within existing HH clinical workflows. We engaged HH administrators, frontline clinicians, and caregivers of HH patients with dementia in a participatory, user-centered approach to intervention development. This process included 3 stages leading to the final assessment instrument: (1) development, (2) refinement, and (3) content validity testing. Research activities included structured focus groups with HH clinicians (n = 18), recurring co-design workgroup with administrators and clinicians (n = 19), and cognitive interviews with clinicians (n = 10) and caregivers (n = 11). The final assessment tool includes 10 items across three domains: (1) \u201cwho\u201d is helping the patient and \u201cwhen\u201d they are in the home (caregiver identity and availability), (2) \u201cwhat\u201d types of help they are providing (caregiving tasks), and (3) \u201chow\u201d they are coping (caregiver burden). The final assessment received a Scale-Content Validity Index score of 0.96 from clinicians and caregivers, indicating excellent content validity. This assessment instrument is now poised for evaluation within a \u201creal-world\u201d HH clinical context to assess its impact on care delivery and caregiver experiences.<\/jats:p>","DOI":"10.1177\/14713012261456892","type":"journal-article","created":{"date-parts":[[2026,6,2]],"date-time":"2026-06-02T20:15:40Z","timestamp":1780431340000},"page":"1962-1980","update-policy":"https:\/\/doi.org\/10.1177\/sage-journals-update-policy","source":"Crossref","is-referenced-by-count":0,"title":["Creating a Dementia Caregiver Assessment Tool for Home Health: User-Centered Development, Refinement, and Content Validity Testing"],"prefix":"10.1177","volume":"25","author":[{"ORCID":"https:\/\/orcid.org\/0000-0002-3356-1897","authenticated-orcid":false,"given":"Julia G.","family":"Burgdorf","sequence":"first","affiliation":[{"name":"Center for Home Care Policy & Research, VNS Health"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Sasha","family":"Vergez","sequence":"additional","affiliation":[{"name":"Center for Home Care Policy & Research, VNS Health"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Jennifer L.","family":"Wolff","sequence":"additional","affiliation":[{"name":"Johns Hopkins Bloomberg School of Public Health"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Margaret V.","family":"McDonald","sequence":"additional","affiliation":[{"name":"Center for Home Care Policy & Research, VNS Health"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Kathryn","family":"Bowles","sequence":"additional","affiliation":[{"name":"Center for Home Care Policy & Research, VNS Health"},{"name":"University of Pennsylvania School of Nursing"}],"role":[{"vocabulary":"crossref","role":"author"}]}],"member":"179","published-online":{"date-parts":[[2026,6,2]]},"reference":[{"key":"e_1_3_8_2_1","volume-title":"National strategy to support family caregivers","author":"Administration for Community Living","year":"2022","unstructured":"Administration for Community Living. 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