{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2026,10,7]],"date-time":"2026-10-07T00:22:20Z","timestamp":1791332540989,"version":"4.3.1"},"reference-count":26,"publisher":"Oxford University Press (OUP)","issue":"8","license":[{"start":{"date-parts":[[2021,2,1]],"date-time":"2021-02-01T00:00:00Z","timestamp":1612137600000},"content-version":"vor","delay-in-days":62,"URL":"https:\/\/creativecommons.org\/licenses\/by\/4.0\/"},{"start":{"date-parts":[[2020,12,1]],"date-time":"2020-12-01T00:00:00Z","timestamp":1606780800000},"content-version":"unspecified","delay-in-days":0,"URL":"http:\/\/creativecommons.org\/licenses\/by\/4.0\/"}],"content-domain":{"domain":["journals.sagepub.com"],"crossmark-restriction":true},"short-container-title":[],"published-print":{"date-parts":[[2020,12,1]]},"abstract":"<jats:sec><jats:title>Background<\/jats:title><jats:p>Palliative care can improve outcomes for patients with advanced chronic heart failure and their families, but timely recognition of palliative care needs remains challenging.<\/jats:p><\/jats:sec><jats:sec><jats:title>Aim<\/jats:title><jats:p>The aim of this study was to identify characteristics of a tool to assess palliative care needs in chronic heart failure that are needed for successful implementation, according to patients, their family and healthcare professionals in The Netherlands.<\/jats:p><\/jats:sec><jats:sec><jats:title>Methods<\/jats:title><jats:p>Explorative qualitative study, part of the project \u2018Identification of patients with HeARt failure with PC needs\u2019 (I-HARP), focus groups and individual interviews were held with healthcare professionals, patients with chronic heart failure, and family members. Data were analysed using the Consolidated Framework for Implementation Research.<\/jats:p><\/jats:sec><jats:sec><jats:title>Results<\/jats:title><jats:p>A total of 13 patients, 10 family members and 26 healthcare professionals participated. Direct-content analysis revealed desired tool characteristics for successful implementation in four constructs: relative advantage, adaptability, complexity, and design quality and packaging. Healthcare professionals indicated that a tool should increase awareness, understanding and knowledge concerning palliative care needs. A tool needs to: be adaptable to different disease stages, facilitate early identification of palliative care needs and ease open conversations about palliative care. The complexity of chronic heart failure should be considered in a personalized approach.<\/jats:p><\/jats:sec><jats:sec><jats:title>Conclusions<\/jats:title><jats:p>The current study revealed the characteristics of a tool for timely identification of palliative care needs in chronic heart failure needed for successful implementation. The next steps will be to define the content of the tool, followed by development of a preliminary version and iterative testing of this version by the different stakeholders.<\/jats:p><\/jats:sec>","DOI":"10.1177\/1474515120918962","type":"journal-article","created":{"date-parts":[[2020,5,6]],"date-time":"2020-05-06T02:11:10Z","timestamp":1588731070000},"page":"711-720","update-policy":"https:\/\/doi.org\/10.1177\/sage-journals-update-policy","source":"Crossref","is-referenced-by-count":11,"title":["Characteristics for a tool for timely identification of palliative needs in heart failure: The views of Dutch patients, their families and healthcare professionals"],"prefix":"10.1093","volume":"19","author":[{"given":"Daisy JA","family":"Janssen","sequence":"first","affiliation":[{"name":"Department of Research & Development , CIRO, Horn, The Netherlands"},{"name":"Department of Health Services Research , Care and Public Health Research Institute, Faculty of Health Medicine and Life Sciences, Maastricht University, The Netherlands"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Stephanie MC","family":"Ament","sequence":"additional","affiliation":[{"name":"Department of Health Services Research , Care and Public Health Research Institute, Faculty of Health Medicine and Life Sciences, Maastricht University, The Netherlands"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Josiane","family":"Boyne","sequence":"additional","affiliation":[{"name":"Department of Patient and Care , Maastricht University Medical Centre (MUMC+), The Netherlands"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Jos MGA","family":"Schols","sequence":"additional","affiliation":[{"name":"Department of Health Services Research , Care and Public Health Research Institute, Faculty of Health Medicine and Life Sciences, Maastricht University, The Netherlands"},{"name":"Department of Family Medicine , Care and Public Health Research Institute, Faculty of Health Medicine and Life Sciences, Maastricht University, The Netherlands"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Hans-Peter Brunner-La","family":"Rocca","sequence":"additional","affiliation":[{"name":"Department of Cardiology , Maastricht University Medical Centre (MUMC+), The Netherlands"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Jos\u00e9 MC","family":"Maessen","sequence":"additional","affiliation":[{"name":"Department of Patient and Care , Maastricht University Medical Centre (MUMC+), The Netherlands"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Marieke HJ","family":"van den Beuken-van Everdingen","sequence":"additional","affiliation":[{"name":"Centre of Expertise for PC , Maastricht University Medical Centre (MUMC+), The Netherlands"}],"role":[{"vocabulary":"crossref","role":"author"}]}],"member":"286","published-online":{"date-parts":[[2020,12,1]]},"reference":[{"key":"2023040618140829600_","doi-asserted-by":"crossref","first-page":"1003","DOI":"10.1177\/0269216319859148","article-title":"Multi-disciplinary palliative care is effective in people with symptomatic heart failure: A systematic review and narrative synthesis.","volume":"33","author":"Datla","year":"2019","journal-title":"Palliat Med"},{"key":"2023040618140829600_","doi-asserted-by":"crossref","first-page":"84","DOI":"10.1089\/jpm.2016.0330","article-title":"Palliative care interventions for patients with heart failure: A systematic review and meta-analysis.","volume":"20","author":"Diop","year":"2017","journal-title":"J Palliat Med"},{"key":"2023040618140829600_","doi-asserted-by":"crossref","first-page":"2492","DOI":"10.1056\/NEJMp1900584","article-title":"Serious-illness care 2.0 \u2013 meeting the needs of patients with heart failure","volume":"380","author":"Warraich","year":"2019","journal-title":"N Engl J Med"},{"key":"2023040618140829600_","doi-asserted-by":"crossref","first-page":"1731","DOI":"10.1016\/j.rmed.2013.06.003","article-title":"Referral to palliative care in COPD and other chronic diseases: A population-based study","volume":"107","author":"Beernaert","year":"2013","journal-title":"Respir Med"},{"key":"2023040618140829600_","doi-asserted-by":"crossref","first-page":"e113188","DOI":"10.1371\/journal.pone.0113188","article-title":"Palliative care among heart failure patients in primary care: A comparison to cancer patients using English family practice data.","volume":"9","author":"Gadoud","year":"2014","journal-title":"PLoS One"},{"key":"2023040618140829600_","doi-asserted-by":"crossref","first-page":"478","DOI":"10.1089\/jpm.2012.0510","article-title":"Trajectory of illness for patients with congestive heart failure.","volume":"16","author":"Kheirbek","year":"2013","journal-title":"J Palliat Med"},{"key":"2023040618140829600_","doi-asserted-by":"crossref","first-page":"95","DOI":"10.1177\/0269216307076348","article-title":"Dying trajectories in heart failure.","volume":"21","author":"Gott","year":"2007","journal-title":"Palliat Med"},{"key":"2023040618140829600_","doi-asserted-by":"crossref","first-page":"25","DOI":"10.1097\/SPC.0000000000000317","article-title":"Palliative care needs assessment in chronic heart failure","volume":"12","author":"Janssen","year":"2018","journal-title":"Curr Opin Support Palliat Care"},{"key":"2023040618140829600_","doi-asserted-by":"crossref","first-page":"912","DOI":"10.1016\/j.jpainsymman.2012.05.009","article-title":"Facilitating needs-based support and palliative care for people with chronic heart failure: Preliminary evidence for the acceptability, inter-rater reliability, and validity of a needs assessment tool.","volume":"45","author":"Waller","year":"2013","journal-title":"J Pain Symptom Manage"},{"key":"2023040618140829600_","doi-asserted-by":"crossref","first-page":"375","DOI":"10.1177\/1474515119831510","article-title":"Timely recognition of palliative care needs of patients with advanced chronic heart failure: A pilot study of a Dutch translation of the Needs Assessment Tool: Progressive Disease \u2013 Heart Failure (NAT:PD-HF","volume":"18","author":"Janssen","year":"2019","journal-title":"Eur J Cardiovasc Nurs"},{"key":"2023040618140829600_","doi-asserted-by":"crossref","first-page":"925","DOI":"10.1001\/jama.1997.03540350075038","article-title":"World Medical Association declaration of Helsinki. Recommendations guiding physicians in biomedical research involving human subjects","volume":"277","year":"1997","journal-title":"JAMA"},{"key":"2023040618140829600_","doi-asserted-by":"crossref","first-page":"5","DOI":"10.1080\/15710882.2014.888183","article-title":"Probes, toolkits and prototypes: Three approaches to making in codesigning","volume":"10","author":"Sanders","year":"2014","journal-title":"Codesign"},{"key":"2023040618140829600_","doi-asserted-by":"crossref","first-page":"42","DOI":"10.1177\/1744987117741667","article-title":"Directed qualitative content analysis: The description and elaboration of its underpinning methods and data analysis process","volume":"23","author":"Assarroudi","year":"2018","journal-title":"J Res Nurs"},{"key":"2023040618140829600_","author":"CFIR Research Team-Center for Clinical Management Research. Consolidated Framework for Implementation Research"},{"key":"2023040618140829600_","author":"Sobanski"},{"key":"2023040618140829600_","author":"Im"},{"key":"2023040618140829600_","doi-asserted-by":"crossref","first-page":"260","DOI":"10.1177\/0269216314556565","article-title":"A survey of clinician attitudes and self-reported practices regarding end-of-life care in heart failure.","volume":"29","author":"Dunlay","year":"2015","journal-title":"Palliat Med"},{"key":"2023040618140829600_","doi-asserted-by":"crossref","first-page":"938","DOI":"10.1177\/0269216308096906","article-title":"Daily symptom burden in end-stage chronic organ failure: A systematic review.","volume":"22","author":"Janssen","year":"2008","journal-title":"Palliat Med"},{"key":"2023040618140829600_","doi-asserted-by":"crossref","first-page":"477","DOI":"10.1177\/1474515118777421","article-title":"The incidence and impact of implantable cardioverter defibrillator shocks in the last phase of life: An integrated review.","volume":"17","author":"Stoevelaar","year":"2018","journal-title":"Eur J Cardiovasc Nurs"},{"key":"2023040618140829600_","doi-asserted-by":"crossref","first-page":"735","DOI":"10.1089\/jpm.2010.0479","article-title":"Symptoms, comorbidities, and health care in advanced chronic obstructive pulmonary disease or chronic heart failure.","volume":"14","author":"Janssen","year":"2011","journal-title":"J Palliat Med"},{"key":"2023040618140829600_","first-page":"1","article-title":"Family caregiving for persons with advanced heart failure: An integrative review","author":"Hodson","year":"2019","journal-title":"Palliat Support Care"},{"key":"2023040618140829600_","author":"Schichtel"},{"key":"2023040618140829600_","doi-asserted-by":"crossref","first-page":"1317","DOI":"10.1089\/jpm.2011.0179","article-title":"Giving voice to patients\u2019 and family caregivers\u2019 needs in chronic heart failure: Implications for palliative care programs.","volume":"14","author":"Bekelman","year":"2011","journal-title":"J Palliat Med"},{"key":"2023040618140829600_","doi-asserted-by":"crossref","first-page":"15","DOI":"10.1186\/s13012-017-0550-7","article-title":"Using the Consolidated Framework for Implementation Research (CFIR) to produce actionable findings: A rapid-cycle evaluation approach to improving implementation","volume":"12","author":"Keith","year":"2017","journal-title":"Implement Sci"},{"key":"2023040618140829600_","doi-asserted-by":"crossref","first-page":"268","DOI":"10.1183\/09031936.00157710","article-title":"Patient\u2013clinician communication about end-of-life care for Dutch and US patients with COPD","volume":"38","author":"Janssen","year":"2011","journal-title":"Eur Respir J"},{"key":"2023040618140829600_","doi-asserted-by":"crossref","first-page":"1195","DOI":"10.1089\/jpm.2017.0039","article-title":"The palliative care challenge: Analysis of barriers and opportunities to integrate palliative care in Europe in the view of national associations","volume":"20","author":"Centeno","year":"2017","journal-title":"J Palliat Med"}],"container-title":["European Journal of Cardiovascular Nursing"],"original-title":[],"language":"en","link":[{"URL":"http:\/\/journals.sagepub.com\/doi\/pdf\/10.1177\/1474515120918962","content-type":"application\/pdf","content-version":"vor","intended-application":"text-mining"},{"URL":"http:\/\/journals.sagepub.com\/doi\/full-xml\/10.1177\/1474515120918962","content-type":"application\/xml","content-version":"vor","intended-application":"text-mining"},{"URL":"https:\/\/academic.oup.com\/eurjcn\/article-pdf\/19\/8\/711\/49790001\/eurjcn0711.pdf","content-type":"application\/pdf","content-version":"vor","intended-application":"syndication"},{"URL":"https:\/\/academic.oup.com\/eurjcn\/article-pdf\/19\/8\/711\/49790001\/eurjcn0711.pdf","content-type":"unspecified","content-version":"vor","intended-application":"similarity-checking"}],"deposited":{"date-parts":[[2023,9,30]],"date-time":"2023-09-30T18:44:35Z","timestamp":1696099475000},"score":1,"resource":{"primary":{"URL":"https:\/\/academic.oup.com\/eurjcn\/article\/19\/8\/711\/6124933"}},"subtitle":[],"short-title":[],"issued":{"date-parts":[[2020,12,1]]},"references-count":26,"journal-issue":{"issue":"8","published-online":{"date-parts":[[2020,12,1]]},"published-print":{"date-parts":[[2020,12,1]]}},"URL":"https:\/\/doi.org\/10.1177\/1474515120918962","relation":{},"ISSN":["1873-1953","1474-5151"],"issn-type":[{"value":"1873-1953","type":"electronic"},{"value":"1474-5151","type":"print"}],"subject":[],"published-other":{"date-parts":[[2020,12,1]]},"published":{"date-parts":[[2020,12,1]]}}}