{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2026,10,30]],"date-time":"2026-10-30T18:55:42Z","timestamp":1793386542072,"version":"4.5.0"},"reference-count":39,"publisher":"SAGE Publications","license":[{"start":{"date-parts":[[2021,1,1]],"date-time":"2021-01-01T00:00:00Z","timestamp":1609459200000},"content-version":"unspecified","delay-in-days":0,"URL":"https:\/\/creativecommons.org\/licenses\/by-nc\/4.0\/"}],"funder":[{"name":"Investigator initiated grant by InterMune International Inc"}],"content-domain":{"domain":["journals.sagepub.com"],"crossmark-restriction":true},"short-container-title":["Chron Respir Dis"],"published-print":{"date-parts":[[2021,1]]},"abstract":"<jats:p>Background: Various patient reported outcome measures (PROMs) are used in idiopathic pulmonary fibrosis (IPF). We aimed to describe their psychometric properties, assess their relationship with 1-year mortality and determine their minimal clinically important differences (MCIDs). Methods: In a prospective multicentre study, participants with IPF completed the King\u2019s Brief Interstitial Lung Disease Questionnaire (K-BILD), the modified Medical Research Council (mMRC) dyspnoea scale, St George\u2019s Respiratory Questionnaire (SGRQ) and University of California, San Diego shortness of breath questionnaire (UCSD-SOBQ) three-monthly intervals over a 12-month period. Forced vital capacity (FVC) was matched with questionnaires and mortality was captured. Anchor- and distribution-based methods were used to derive MCID. Results: Data were available from 238 participants. All PROMs had good internal consistency and high degree of correlations with other tools (except UCSD-SOBQ correlated poorly with FVC). There were significant associations with mortality for K-BILD (hazard ratio 16.67; 95% CI 2.38\u2013100) and SGRQ (hazard ratio 4.65; 95% CI 1.32\u201316.62) but not with the other PROMs or FVC. The median MCID (range) for K-BILD was 6.3 (4.1\u20137.0), SGRQ was 7.0 (3.8\u20139.6), mMRC was 0.4 (0.1\u20130.5) and UCSD-SOBQ was 9.6 (4.1\u201314.2). Conclusions: The K-BILD was related to other severity measures and had the strongest relationship with mortality.<\/jats:p>","DOI":"10.1177\/14799731211033925","type":"journal-article","created":{"date-parts":[[2021,10,5]],"date-time":"2021-10-05T08:58:11Z","timestamp":1633424291000},"update-policy":"https:\/\/doi.org\/10.1177\/sage-journals-update-policy","source":"Crossref","is-referenced-by-count":27,"title":["Psychometric properties of patient reported outcome measures in idiopathic pulmonary fibrosis"],"prefix":"10.1177","volume":"18","author":[{"ORCID":"https:\/\/orcid.org\/0000-0002-3063-2995","authenticated-orcid":false,"given":"Jee Whang","family":"Kim","sequence":"first","affiliation":[{"name":"Norwich Medical School, University of East Anglia, Norwich, UK"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Allan","family":"Clark","sequence":"additional","affiliation":[{"name":"Norwich Medical School, University of East Anglia, Norwich, UK"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Surinder S","family":"Birring","sequence":"additional","affiliation":[{"name":"Centre for Human & Applied Physiological Sciences, School of Basic & Medical Biosciences, Faculty of Life Sciences & Medicine, King\u2019s College London, London, UK"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Christopher","family":"Atkins","sequence":"additional","affiliation":[{"name":"Norwich Medical School, University of East Anglia, Norwich, UK"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Moira","family":"Whyte","sequence":"additional","affiliation":[{"name":"The Queen\u2019s Medical Research Institute, The University of Edinburgh, Edinburgh, UK"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"ORCID":"https:\/\/orcid.org\/0000-0002-5514-4867","authenticated-orcid":false,"given":"Andrew M","family":"Wilson","sequence":"additional","affiliation":[{"name":"Norwich Medical School, University 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